EMX2
type: SIO_000750
description: MOLGENIS EMX2 database at http://catalogue.hdsu.nl
creator: molgenis.org

catalogue-rdf
is part of: EMX2
type: Container
description: temporary schema for harvesting of hri ready production data
contains: Endpoint
contains: Profiles
contains: Resources
contains: Samplesets
contains: Subpopulations
contains: Version
contains: Agents
contains: Contacts
contains: Datasets
contains: External identifiers
contains: Linkages
contains: Publications
contains: Resource mappings
contains: Subpopulation counts
contains: Variables
contains: Collection events
contains: Documentation
contains: Organisations
contains: Reused variables
contains: Variable values
contains: Dataset mappings
contains: Resource counts
contains: Internal identifiers
contains: Variable mappings

Endpoint
type: Class
subclass of: DataSet
subclass of: Thing
description: General information describing an endpoint

Profiles
type: Class
subclass of: DataSet
subclass of: Thing
description: DataCatalogueFlat

Resources
type: Class
subclass of: DataSet
subclass of: Thing
description: Resource of data and/or samples. Use 'resource type' to specify

Samplesets
type: Class
subclass of: DataSet
subclass of: Thing
description: Definition of a sample set

Subpopulations
type: Class
subclass of: DataSet
subclass of: Thing
description: Subpopulations defined for this resource

Version
type: Class
subclass of: DataSet
subclass of: Thing
description: 7.4.0

Agents
type: Class
subclass of: DataSet
subclass of: Thing
description: An organisation, department or individual

Contacts
type: Class
subclass of: DataSet
subclass of: Thing
description: Listing of contact persons per resource

Datasets
type: Class
subclass of: DataSet
subclass of: Thing
description: Definition of a dataset

External identifiers
type: Class
subclass of: DataSet
subclass of: Thing
description: External identifier(s) for this resource

Linkages
type: Class
subclass of: DataSet
subclass of: Thing
description: Links between resources, e.g. data source and databank

Publications
type: Class
subclass of: DataSet
subclass of: Thing
description: Publications based on doi

Resource mappings
type: Class
subclass of: DataSet
subclass of: Thing
description: Mapping from collected resources to standard/harmonised resources, optionally including ETL syntaxes

Subpopulation counts
type: Class
subclass of: DataSet
subclass of: Thing
description: Number of participants per cohort age group, optionally divided per sex

Variables
type: Class
subclass of: DataSet
subclass of: Thing
description: Definition of a variable

Collection events
type: Class
subclass of: DataSet
subclass of: Thing
description: Definition of a collection event for a resource

Documentation
type: Class
subclass of: DataSet
subclass of: Thing
description: Documentation attached to a resource

Organisations
type: Class
subclass of: DataSet
subclass of: Agents
description: Research organisations, departments and research groups

Reused variables
type: Class
subclass of: DataSet
subclass of: Thing
description: Listing of variables from another resource that are re-used by a resource

Variable values
type: Class
subclass of: DataSet
subclass of: Thing
description: Listing of categorical value+label definition in case of a categorical variable

Dataset mappings
type: Class
subclass of: DataSet
subclass of: Thing
description: Mappings from collected or source datasets to harmonised or target datasets

Resource counts
type: Class
subclass of: DataSet
subclass of: Thing
description: Quantitative information on the resource

Internal identifiers
type: Class
subclass of: DataSet
subclass of: Thing
description: Internal identifier(s) for this resource

Variable mappings
type: Class
subclass of: DataSet
subclass of: Thing
description: Mappings from collected or source variables to target or harmonised variables, optionally including ETL syntax

mg_draft
type: DatatypeProperty
range: boolean
domain: Endpoint

mg_insertedOn
type: DatatypeProperty
range: dateTime
domain: Endpoint

mg_updatedOn
type: DatatypeProperty
range: dateTime
domain: Endpoint

id
type: DatatypeProperty
range: string
domain: Endpoint
description: A unique proper name or character sequence that identifies this particular person. In Beacon v2: id, in FAIR Genomes: PersonalIdentifier. In RD3: subjectID.

type
type: ObjectProperty
domain: Endpoint
description: This row is an instance of one or more of these class(es) other than the Endpoint table.

name
type: DatatypeProperty
range: string
domain: Endpoint
description: A name given to the resource.

version
type: DatatypeProperty
range: string
domain: Endpoint
description: An account of the resource version.

description
type: DatatypeProperty
range: string
domain: Endpoint
description: An account of the resource.

publisher
type: ObjectProperty
range: Agents
domain: Endpoint
description: An entity responsible for making the resource available.

language
type: ObjectProperty
domain: Endpoint
description: A language of the resource.

license
type: ObjectProperty
domain: Endpoint
description: A legal document giving official permission to do something with the resource.

conformsTo
type: ObjectProperty
domain: Endpoint
description: An established standard to which the described resource conforms.

rights
type: ObjectProperty
domain: Endpoint
description: Information about rights held in and over the resource.

accessRights
type: ObjectProperty
domain: Endpoint
description: Information about who access the resource or an indication of its security status.

contact
type: ObjectProperty
range: Contacts
domain: Endpoint
description: Relevant contact information for the cataloged resource

keyword
type: DatatypeProperty
range: string
domain: Endpoint
description: A keyword or tag describing a resource.

theme
type: ObjectProperty
domain: Endpoint
description: A main category of the resource. A resource can have multiple themes.

endPointDescription
type: ObjectProperty
domain: Endpoint
description: A description of the service end-point, including its operations, parameters etc.

metadataCatalog
type: ObjectProperty
range: Resources
domain: Endpoint
description: With the definition of the FDP as a type of metadata service that serves metadata catalogs, the relation between the Metadata Service and dcat:Catalog is represented by this predicate.

conformsToFdpSpec
type: ObjectProperty
domain: Endpoint
description: The relation should point to an URI that contains the version of the FDP specifications for which this instance of the FDP conforms to

EJP_RD_personalData
type: DatatypeProperty
range: string
domain: Endpoint
description: Set to true if the resource onboarded to the EJP-RD Virtual Platform contains personal data, personal data meaning data related to identified or identifiable persons (as per GDPR definition), otherwise false. Must be String as workaround for current FDP reference implementation limitations.

EJP_RD_vpConnection
type: ObjectProperty
domain: Endpoint
description: This property must be attached to every entity that you wish the EJP-RD Virtual Platform to explore.

issued
type: DatatypeProperty
range: dateTime
domain: Endpoint

modified
type: DatatypeProperty
range: dateTime
domain: Endpoint

mg_draft
type: DatatypeProperty
range: boolean
domain: Profiles

mg_insertedOn
type: DatatypeProperty
range: dateTime
domain: Profiles

mg_updatedOn
type: DatatypeProperty
range: dateTime
domain: Profiles

DataCatalogueFlat
type: DatatypeProperty
range: string
domain: Profiles
description: DataCatalogueFlat

mg_draft
type: DatatypeProperty
range: boolean
domain: Resources

mg_insertedOn
type: DatatypeProperty
range: dateTime
domain: Resources

mg_updatedOn
type: DatatypeProperty
range: dateTime
domain: Resources

rdf type
type: ObjectProperty
domain: Resources
description: The DCAT type such as dcat:Catalog as computed field

fdp endpoint
type: ObjectProperty
range: Endpoint
domain: Resources
description: FDP endpoint to associated with the catalogue

ldp membership relation
type: ObjectProperty
domain: Resources
description: LDP membership relation

overview
type: DatatypeProperty
range: string
domain: Resources
description: General information

hricore
type: DatatypeProperty
range: boolean
domain: Resources
description: Do you want your metadata to be compatible with HRICore v2.0.1, so that the metadata can be shared with the Dutch National Health Data Catalogue?

id
type: DatatypeProperty
range: string
domain: Resources
description: Internal identifier

pid
type: DatatypeProperty
range: string
domain: Resources
description: Persistent identifier

name
type: DatatypeProperty
range: string
domain: Resources
description: Name used in international projects

local name
type: DatatypeProperty
range: string
domain: Resources
description: If different from above, name in the national language

acronym
type: DatatypeProperty
range: string
domain: Resources
description: Acronym, if applicable

type
type: ObjectProperty
range: ResourceTypes
domain: Resources
description: Type of resource, e.g. registry, cohort, biobank

catalogue type
type: ObjectProperty
range: CatalogueTypes
domain: Resources
description: Type of catalogue

main catalogue
type: DatatypeProperty
range: boolean
domain: Resources
description: Is this the main catalogue of this catalogue server?

cohort type
type: ObjectProperty
range: CohortStudyTypes
domain: Resources
description: Type of cohort

clinical study type
type: ObjectProperty
range: ClinicalStudyTypes
domain: Resources
description: Type of clinical study

registry or health record type
type: ObjectProperty
range: DatasourceTypes
domain: Resources
description: Type of registry or health record

network type
type: ObjectProperty
range: NetworkTypes
domain: Resources
description: Type of network

website
type: ObjectProperty
domain: Resources
description: Link to the website or homepage

description
type: DatatypeProperty
range: string
domain: Resources
description: Short description

keywords
type: DatatypeProperty
range: string
domain: Resources
description: Keywords to increase findability of this resource. Try to use words that are not used in the description. Keywords are not displayed on the resource page

internal identifiers
type: ObjectProperty
range: Internal identifiers
domain: Resources
description: Internal identifier(s) for this resource (e.g. UMCG register number)

external identifiers
type: ObjectProperty
range: External identifiers
domain: Resources
description: External identifier(s) for this resource (e.g. EUPASS number or BBMRI persistent identifer)

start year
type: DatatypeProperty
range: int
domain: Resources
description: The year when the resource started, e.g. when data or samples started to be collected or extracted, or when the resource was established

end year
type: DatatypeProperty
range: int
domain: Resources
description: The year the resource ceased, e.g. when data or sample collection was stopped

time span description
type: DatatypeProperty
range: string
domain: Resources
description: Description of time span

contact email
type: DatatypeProperty
range: anyURI
domain: Resources
description: Contact e-mail address

logo
type: DatatypeProperty
range: anyURI
domain: Resources
description: Logo of the resource, for use on homepages etc.

status
type: ObjectProperty
range: StudyStatus
domain: Resources
description: Status of the study

conforms to
type: ObjectProperty
domain: Resources
description: The specification of the catalog metadata schema

has member relation
type: ObjectProperty
domain: Resources
description: This relation points to the URI of the custom relation/predicate used to relate the FAIR Data Point with its member catalogs. The object of this property MUST be fdp-o:metadataCatalog.

issued
type: DatatypeProperty
range: dateTime
domain: Resources
description: When the data of the resource was first published

modified
type: DatatypeProperty
range: dateTime
domain: Resources
description: When the data of the resource was last modified

design and structure
type: DatatypeProperty
range: string
domain: Resources
description: Structure of the resource

design
type: ObjectProperty
range: CohortDesigns
domain: Resources
description: The study design of this cohort, i.e. cross-sectional or longitudinal

design description
type: DatatypeProperty
range: string
domain: Resources
description: Short description of the study design of this resource, if applicable

design schematic
type: DatatypeProperty
range: anyURI
domain: Resources
description: A schematic depiction of the study design of this resource

data collection type
type: ObjectProperty
range: CohortCollectionTypes
domain: Resources
description: Retrospective or prospective data collection

data collection description
type: DatatypeProperty
range: string
domain: Resources
description: Describe the process of collection and recording of data

reason sustained
type: DatatypeProperty
range: string
domain: Resources
description: Description of the reason why the data bank is sustained by the organisation (e.g. for surveillance, clinical purposes, financial or administrative purposes, research purposes)

record trigger
type: DatatypeProperty
range: string
domain: Resources
description: What triggers the creation of a record in the data bank? e.g. planned collection events, hospital discharge, specialist encounter, dispensation of a medicinal product, recording of a congenital anomaly

unit of observation
type: DatatypeProperty
range: string
domain: Resources
description: Based on the record trigger or promt, what is the unit(s) of observation of a record (e.g. person, prescription)?

subpopulations
type: ObjectProperty
range: Subpopulations
domain: Resources
description: List of cohorts or subpopulations defined in this resource, if applicable

collection events
type: ObjectProperty
range: Collection events
domain: Resources
description: List of data/sample collection events defined for this collection, if applicable

data resources
type: ObjectProperty
range: Resources
domain: Resources
description: List of other data collections included in this network, e.g. cohorts, biobanks or real world data sources. Do not list other networks or catalogues here

part of networks
type: ObjectProperty
range: Resources
domain: Resources
description: List of other collections included in this resource

population
type: DatatypeProperty
range: string
domain: Resources
description: Description of the population that is sampled in this resource

number of participants
type: DatatypeProperty
range: nonNegativeInteger
domain: Resources
description: Total number of individuals for which data is collected

number of participants with samples
type: DatatypeProperty
range: nonNegativeInteger
domain: Resources
description: Number of individuals for which samples are collected

underlying population
type: DatatypeProperty
range: string
domain: Resources
description: Provide a summary description of the underlying population from which participants are sampled

population of interest
type: ObjectProperty
range: PopulationOfInterest
domain: Resources
description: Select population of interest

population of interest other
type: DatatypeProperty
range: string
domain: Resources
description: If population of interest is 'Other', please specify which other population has been studied

countries
type: ObjectProperty
range: Countries
domain: Resources
description: Countries where data/samples from this resource largely originate from

continents
type: ObjectProperty
range: Continents
domain: Resources
description: Continent(s) where data/samples from this resource originate from

regions
type: ObjectProperty
range: Regions
domain: Resources
description: Geographical regions where data/samples from this resource largely originate from

population age groups
type: ObjectProperty
range: AgeGroups
domain: Resources
description: Which population age groups are captured in this resource? Select all that are relevant

age min
type: DatatypeProperty
range: nonNegativeInteger
domain: Resources
description: Minimum age of participants within this resource

age max
type: DatatypeProperty
range: nonNegativeInteger
domain: Resources
description: Maximum age of participants within this resource

inclusion criteria
type: ObjectProperty
range: InclusionExclusionCriteria
domain: Resources
description: Inclusion criteria applied to the participants of this resource

other inclusion criteria
type: DatatypeProperty
range: string
domain: Resources
description: Other inclusion criteria applied to the participants of this resource

exclusion criteria
type: ObjectProperty
range: InclusionExclusionCriteria
domain: Resources
description: Exclusion criteria applied to the participants of this resource

other exclusion criteria
type: DatatypeProperty
range: string
domain: Resources
description: Other exclusion criteria applied to the participants of this resource

population entry
type: ObjectProperty
range: PopulationEntry
domain: Resources
description: Select the possible causes / events that trigger the registration of a person in the data source

population entry other
type: DatatypeProperty
range: string
domain: Resources
description: If other, specify the causes of entry to the underlying population

population exit
type: ObjectProperty
range: PopulationExit
domain: Resources
description: Select the possible causes / events that trigger the de-registration of a person in the data source

population exit other
type: DatatypeProperty
range: string
domain: Resources
description: If other, specify the causes of exit from the underlying population

population disease
type: ObjectProperty
range: Diseases
domain: Resources
description: Is information on a specific disease subpopulation collected (e.g. as in a disease-specific registry or cohort)?

population oncology topology
type: ObjectProperty
range: ICDOTopologies
domain: Resources
description: Is information on specific cancer subtype(s) collected? If yes, select topology specifications

population oncology morphology
type: ObjectProperty
range: ICDOMorphologies
domain: Resources
description: Is information on specific cancer subtype(s) collected? If yes, select morphology specifications

population coverage
type: DatatypeProperty
range: string
domain: Resources
description: Estimated percentage of the population covered by the data source in the catchment area. Please describe the denominator

population not covered
type: DatatypeProperty
range: string
domain: Resources
description: Description of the population covered by the data source in the catchment area whose data are not collected, where applicable (e.g. people who are registered only for private care)

counts
type: ObjectProperty
range: Resource counts
domain: Resources
description: Counts of e.g. samples defined for this resource

contributors
type: DatatypeProperty
range: string
domain: Resources
description: List of relevant collaborations

organisations involved
type: ObjectProperty
range: Organisations
domain: Resources
description: Organisations involved in this resource and their role(s)

publisher
type: ObjectProperty
range: Organisations
domain: Resources
description: From organisations involved, point out the organisation that published this resource

creator
type: ObjectProperty
range: Organisations
domain: Resources
description: From organisations involved, point out the organisation(s) that created this resource

people involved
type: ObjectProperty
range: Contacts
domain: Resources
description: Persons that contributed to this resource

contact point
type: ObjectProperty
range: Contacts
domain: Resources
description: From people involved, point out the primary contact point for this resource

child networks
type: ObjectProperty
range: Resources
domain: Resources
description: List of networks, consortia or catalogues included in this network

parent networks
type: ObjectProperty
range: Resources
domain: Resources
description: The consortia or networks that this resource is part of

available data and samples
type: DatatypeProperty
range: string
domain: Resources
description: Data model and contents

datasets
type: ObjectProperty
range: Datasets
domain: Resources
description: List of datasets contained in this resouce if applicable

samplesets
type: ObjectProperty
range: Samplesets
domain: Resources
description: List of sample sets contained in this resource if applicable

areas of information
type: ObjectProperty
range: AreasOfInformationCohorts
domain: Resources
description: Areas of information that were collected

areas of information rwd
type: ObjectProperty
range: AreasOfInformationDs
domain: Resources
description: Areas of information that were collected

quality of life other
type: DatatypeProperty
range: string
domain: Resources
description: If 'other', specify additional quality of life measures

cause of death code other
type: DatatypeProperty
range: string
domain: Resources
description: If 'other', what cause of death vocabulary is used?

indication vocabulary other
type: DatatypeProperty
range: string
domain: Resources
description: If 'other', what indication for use vocabulary is used?

genetic data vocabulary other
type: DatatypeProperty
range: string
domain: Resources
description: If 'other', what genetic data vocabulary is used?

care setting other
type: DatatypeProperty
range: string
domain: Resources
description: If 'other', description of the setting of care

medicinal product vocabulary other
type: DatatypeProperty
range: string
domain: Resources
description: If 'other', description of the medicinal product vocabulary

prescriptions vocabulary other
type: DatatypeProperty
range: string
domain: Resources
description: If 'other', what prescriptions vocabulary is used?

dispensings vocabulary other
type: DatatypeProperty
range: string
domain: Resources
description: If 'other', what dispensings vocabulary is used?

procedures vocabulary other
type: DatatypeProperty
range: string
domain: Resources
description: If 'other', what procedures vocabulary is used?

biomarker data vocabulary other
type: DatatypeProperty
range: string
domain: Resources
description: If 'other', what biomarker data vocabulary is used?

diagnosis medical event vocabulary other
type: DatatypeProperty
range: string
domain: Resources
description: If 'other', what diagnosis medical event vocabulary is used?

data dictionary available
type: DatatypeProperty
range: boolean
domain: Resources
description: Are a data dictionary and a data model available?

biospecimen collected
type: ObjectProperty
range: Biospecimens
domain: Resources
description: If the data bank contains biospecimens, what types of specimen

languages
type: ObjectProperty
range: Languages
domain: Resources
description: Languages that the records are recorded in (ISO 639)

multiple entries
type: DatatypeProperty
range: boolean
domain: Resources
description: Can there be multiple entries for a single person in the data bank?

linkage
type: DatatypeProperty
range: string
domain: Resources
description: Data linkage

has identifier
type: DatatypeProperty
range: boolean
domain: Resources
description: Is there a unique identifier for a person in the data bank?

identifier description
type: DatatypeProperty
range: string
domain: Resources
description: Describe the variable that is used as a unique identifier for a person in the data bank. If the unique identifier is not at level of a person (for example hospital encounter), describe how this is translated to an individual level

prelinked
type: DatatypeProperty
range: boolean
domain: Resources
description: Is the data from this data source linked to other data sources?

linkage options
type: DatatypeProperty
range: string
domain: Resources
description: Linkage options with additional data resources that are available for this resource

linkage possibility
type: DatatypeProperty
range: boolean
domain: Resources
description: Can this data source be linked to other data sources?

linked resources
type: ObjectProperty
range: Linkages
domain: Resources
description: List of resources that are or can be linked to this main resource

access conditions
type: DatatypeProperty
range: string
domain: Resources
description: Access and validation information

informed consent type
type: ObjectProperty
range: InformedConsentTypes
domain: Resources
description: What type of informed consent was given for data resource?

informed consent required
type: ObjectProperty
range: InformedConsentRequired
domain: Resources
description: Is informed consent required for use of the data for research purposes?

informed consent other
type: DatatypeProperty
range: string
domain: Resources
description: If 'other', describe the conditions when informed consent is required

access rights
type: ObjectProperty
range: AccessRights
domain: Resources
description: Information that indicates whether the resource is publicly accessible, has access restrictions or is not public. A default is set for non-public access, because most health datasets contain sensitive information and rules and licenses apply to get access.

data access conditions
type: ObjectProperty
range: DataAccessConditions
domain: Resources
description: Codes defining data access terms and conditions

data use conditions
type: ObjectProperty
range: DataUseConditions
domain: Resources
description: Codes defining data use terms and conditions

data access conditions description
type: DatatypeProperty
range: string
domain: Resources
description: Description of data access terms and use conditions

data access fee
type: DatatypeProperty
range: boolean
domain: Resources
description: Does a fee apply to gain access to data of this resource?

access identifiable data
type: DatatypeProperty
range: string
domain: Resources
description: Can identifiable data be accessed in the data bank (including patient/practitioner name/practice name)?

access identifiable data route
type: DatatypeProperty
range: string
domain: Resources
description: If yes above, what is the route to access or process this information? What permission is required?

access subject details
type: DatatypeProperty
range: boolean
domain: Resources
description: Can individual patients/practitioners/practices be contacted in the data bank?

access subject details route
type: DatatypeProperty
range: string
domain: Resources
description: If yes to the above, what is the route to access or process this information? What permission is required?

access third party
type: DatatypeProperty
range: boolean
domain: Resources
description: Can (an extract of) the data bank be accessed with permission by a third party?

access third party conditions
type: DatatypeProperty
range: string
domain: Resources
description: If above is 'yes', describe the conditions under which third-party access may be granted

access non EU
type: DatatypeProperty
range: boolean
domain: Resources
description: Can (an extract of) the data bank be accessed with permission by a non-EU/EEA institution?

access non EU conditions
type: DatatypeProperty
range: string
domain: Resources
description: If yes to the above, describe the conditions under which non-EU/EEA access may be granted

biospecimen access
type: DatatypeProperty
range: boolean
domain: Resources
description: If the data bank contains biospecimens (e.g. tissue samples), can these be retrieved?

biospecimen access conditions
type: DatatypeProperty
range: string
domain: Resources
description: If yes to the above, describe the conditions under which permission to retrieve biospecimens may be granted

governance details
type: DatatypeProperty
range: string
domain: Resources
description: If available, provide a link to documents or webpages that describe the overall governance of the data source bank (governing data access or utilisation for research purposes by existing DAPs)

approval for publication
type: DatatypeProperty
range: boolean
domain: Resources
description: Is an approval needed to publish the results of a study using the data

updates
type: DatatypeProperty
range: string
domain: Resources
description: Information on the regularity of updates and time lags

release type
type: ObjectProperty
range: ReleaseTypes
domain: Resources
description: Select whether this resource is a closed dataset or whether new data is released continuously or at a termly basis

release description
type: DatatypeProperty
range: string
domain: Resources
description: Description of the release cycle of this resource

number of records
type: DatatypeProperty
range: int
domain: Resources
description: Total number of unique records captured in the data bank (most recent count)

release frequency
type: DatatypeProperty
range: int
domain: Resources
description: Refreshing rate (in months)

refresh time
type: DatatypeProperty
range: int
domain: Resources
description: Average number of days between refresh of data bank with new records

lag time
type: DatatypeProperty
range: int
domain: Resources
description: How many days is the lag time after refresh before a record can be extracted? (e.g. a lag time may occur if the originator conducts quality checks)

refresh period
type: ObjectProperty
range: RefreshPeriods
domain: Resources
description: If data are refreshed on fixed dates (e.g. every June and December), when are the refreshes scheduled? Select all that apply from the following:

date last refresh
type: DatatypeProperty
range: date
domain: Resources
description: Date of last update/refresh

preservation
type: DatatypeProperty
range: boolean
domain: Resources
description: Are records preserved in the data bank indefinitely?

preservation duration
type: DatatypeProperty
range: int
domain: Resources
description: If 'no' to the above, for how long (in years) are records preserved in the data bank?

quality
type: DatatypeProperty
range: string
domain: Resources
description: List of relevant studies conducted using the data bank

standard operating procedures
type: DatatypeProperty
range: boolean
domain: Resources
description: Is there a standard operating procedure document that defines the processes and procedures for data capture and management?

qualification
type: DatatypeProperty
range: boolean
domain: Resources
description: Has the data source successfully undergone a formal qualification process (e.g. from the EMA, ISO or other certifications)?

qualifications description
type: DatatypeProperty
range: string
domain: Resources
description: Has the data source successfully undergone a qualification process (e.g. from the EMA)? If yes, describe the qualification(s) granted

audit possible
type: DatatypeProperty
range: boolean
domain: Resources
description: Are external parties allowed to audit the data? For example, is it possible for an external party to audit the quality or validity of the data source?

completeness
type: DatatypeProperty
range: string
domain: Resources
description: Describe the completeness of the data bank (e.g. variables with more or fewer missing values)

completeness over time
type: DatatypeProperty
range: string
domain: Resources
description: Describe any changes in completeness of the data bank (e.g. variables with more or fewer missing values) that have occurred over time

completeness results
type: DatatypeProperty
range: string
domain: Resources
description: What methods or processes are applied to check completeness of the data bank?

quality description
type: DatatypeProperty
range: string
domain: Resources
description: Describe the quality of the data bank (e.g. variables with more or fewer missing values)

quality over time
type: DatatypeProperty
range: string
domain: Resources
description: Describe any changes in quality of the data bank that have occurred over time

access for validation
type: DatatypeProperty
range: boolean
domain: Resources
description: Can validity of the data in the data bank be verified, e.g. by review of origin medical charts?

quality validation frequency
type: DatatypeProperty
range: string
domain: Resources
description: How often are data quality checks and validation steps conducted on the data bank?

quality validation methods
type: DatatypeProperty
range: string
domain: Resources
description: What methods or processes are applied for data quality checks and validation steps conducted on the data bank?

correction methods
type: DatatypeProperty
range: string
domain: Resources
description: What methods or processes are applied to correct illogical values in the data bank?

quality validation results
type: DatatypeProperty
range: string
domain: Resources
description: If available, provide a link to a publication of the data quality check and validation results

standards
type: DatatypeProperty
range: string
domain: Resources
description: Use of standard data models and ontologies

mappings to common data models
type: ObjectProperty
range: Dataset mappings
domain: Resources
description: Overview of dataset mappings available

common data models other
type: DatatypeProperty
range: string
domain: Resources
description: If not in list above, give the name of cdm(s) used by this data source

ETL standard vocabularies
type: ObjectProperty
range: Vocabularies
domain: Resources
description: Are data mapped to standardised vocabularies during ETL to the CDM? If yes, what vocabularies are used for events, such as diagnoses?

ETL standard vocabularies other
type: DatatypeProperty
range: string
domain: Resources
description: If other, what other vocabularies are used?

information
type: DatatypeProperty
range: string
domain: Resources
description: Other information

publications
type: ObjectProperty
range: Publications
domain: Resources
description: Publication(s) about this resource

funding sources
type: ObjectProperty
range: FundingTypes
domain: Resources
description: Specify the main financial support sources for the data source in the last three years. Select all that apply

funding scheme
type: ObjectProperty
range: StudyFunding
domain: Resources
description: The source of funding for the study. Select all that apply

funding statement
type: DatatypeProperty
range: string
domain: Resources
description: Statement listing funding that was obtained for this resource

citation requirements
type: DatatypeProperty
range: string
domain: Resources
description: Citation regulation for this resource

acknowledgements
type: DatatypeProperty
range: string
domain: Resources
description: Acknowledgement statement and citation regulation for this resource

provenance statement
type: DatatypeProperty
range: string
domain: Resources
description: A statement of any changes in ownership and custody of a resource since its creation that are significant for its authenticity, integrity, and interpretation

documentation
type: ObjectProperty
range: Documentation
domain: Resources
description: Descriptive document(s) available for this resource, e.g. informed consent

supplementary information
type: DatatypeProperty
range: string
domain: Resources
description: Any other information that needs to be disclosed for this resource

theme
type: ObjectProperty
range: Themes
domain: Resources
description: A main category of the resource. A resource can have multiple themes, for health data theme must at least take the value 'Health', which is set as a default

applicable legislation
type: ObjectProperty
range: Legislations
domain: Resources
description: The legislation that mandates the creation or management of the resource. For health datasets, the value must include the data governance act, which is set as a default. URI's to other legislations may be included

study details
type: DatatypeProperty
range: string
domain: Resources
description: List of relevant collaborations

collection start planned
type: DatatypeProperty
range: date
domain: Resources
description: When was the data collection planned to start?

collection start actual
type: DatatypeProperty
range: date
domain: Resources
description: When was the data collection actually start?

analysis start planned
type: DatatypeProperty
range: date
domain: Resources
description: When was the data analysis planned to start?

analysis start actual
type: DatatypeProperty
range: date
domain: Resources
description: When did the data analysis actually start?

data sources
type: ObjectProperty
range: Resources
domain: Resources
description: Data sources that provided data into this study

data extraction date
type: DatatypeProperty
range: date
domain: Resources
description: Date on which the study data was extracted

study methods
type: DatatypeProperty
range: string
domain: Resources
description: Methodological aspects

analysis plan
type: DatatypeProperty
range: string
domain: Resources
description: A brief summary of the analysis method (e.g. risk estimation, measures of risk, internal/external validity)

objectives
type: DatatypeProperty
range: string
domain: Resources
description: A short description of the study objective

results
type: DatatypeProperty
range: string
domain: Resources
description: A brief summary of the results of the study on study completion (e.g. from abstract)

mg_draft
type: DatatypeProperty
range: boolean
domain: Samplesets

mg_insertedOn
type: DatatypeProperty
range: dateTime
domain: Samplesets

mg_updatedOn
type: DatatypeProperty
range: dateTime
domain: Samplesets

resource
type: ObjectProperty
range: Resources
domain: Samplesets
description: Resouce that these samples are part of

name
type: DatatypeProperty
range: string
domain: Samplesets
description: Sample set name

sample types
type: ObjectProperty
range: SampleTypes
domain: Samplesets
description: Defines the types of samples in the sample set

mg_draft
type: DatatypeProperty
range: boolean
domain: Subpopulations

mg_insertedOn
type: DatatypeProperty
range: dateTime
domain: Subpopulations

mg_updatedOn
type: DatatypeProperty
range: dateTime
domain: Subpopulations

resource
type: ObjectProperty
range: Resources
domain: Subpopulations
description: Resource this subpopulation is part of

name
type: DatatypeProperty
range: string
domain: Subpopulations
description: Subpopulation name, e.g. 'mothers in first trimester','newborns'

pid
type: DatatypeProperty
range: string
domain: Subpopulations
description: Persistent identifier for this subpopulation

description
type: DatatypeProperty
range: string
domain: Subpopulations
description: Subpopulation description

keywords
type: DatatypeProperty
range: string
domain: Subpopulations
description: Keywords to increase findability of this subpopulation. Try to use words that are not used in the description. Keywords are not displayed on the subpopulation page

number of participants
type: DatatypeProperty
range: nonNegativeInteger
domain: Subpopulations
description: Number of participants in this subpopulation

counts
type: ObjectProperty
range: Subpopulation counts
domain: Subpopulations
description: Total number of unique individuals per age(group), gender and year

inclusion start
type: DatatypeProperty
range: int
domain: Subpopulations
description: Year of first included participant

inclusion end
type: DatatypeProperty
range: int
domain: Subpopulations
description: Year of last included participant. Leave empty if data collection is ongoing

age groups
type: ObjectProperty
range: AgeGroups
domain: Subpopulations
description: Age groups within this subpopulation

age min
type: DatatypeProperty
range: nonNegativeInteger
domain: Subpopulations
description: Minimum age of participants within this subpopulation

age max
type: DatatypeProperty
range: nonNegativeInteger
domain: Subpopulations
description: Maximum age of participants within this subpopulation

main medical condition
type: ObjectProperty
range: Diseases
domain: Subpopulations
description: Disease groups within this subpopulation, based on ICD-10 and ORPHA code classifications

comorbidity
type: ObjectProperty
range: Diseases
domain: Subpopulations
description: Comorbidity within this subpopulation, based on ICD-10 classification

countries
type: ObjectProperty
range: Countries
domain: Subpopulations
description: Countries where data from this subpopulation largely originate from

regions
type: ObjectProperty
range: Regions
domain: Subpopulations
description: Geographical regions where data from this subpopulation largely originate from

inclusion criteria
type: ObjectProperty
range: InclusionExclusionCriteria
domain: Subpopulations
description: Inclusion criteria applied to this subpopulation

other inclusion criteria
type: DatatypeProperty
range: string
domain: Subpopulations
description: Other inclusion criteria applied to this subpopulation

exclusion criteria
type: ObjectProperty
range: InclusionExclusionCriteria
domain: Subpopulations
description: Exclusion criteria applied to this subpopulation

other exclusion criteria
type: DatatypeProperty
range: string
domain: Subpopulations
description: Other exclusion criteria applied to this subpopulation

contact point
type: ObjectProperty
range: Contacts
domain: Subpopulations
description: Contact point for this subpopulation. Value copied from Resources table

publisher
type: ObjectProperty
range: Organisations
domain: Subpopulations
description: Organisation that published this subpopulation. Value copied from Resources table

creator
type: ObjectProperty
range: Organisations
domain: Subpopulations
description: Organisation(s) that created this subpopulation. Value copied from Resources table

issued
type: DatatypeProperty
range: dateTime
domain: Subpopulations
description: When the data for this subpopulation was first published

modified
type: DatatypeProperty
range: dateTime
domain: Subpopulations
description: When the data for this subpopulation was last modified

theme
type: ObjectProperty
range: Themes
domain: Subpopulations
description: A main category of the subpopulation. A subpopulation can have multiple themes, for health data theme must at least take the value 'Health', which is set as a default

access rights
type: ObjectProperty
range: AccessRights
domain: Subpopulations
description: Information that indicates whether the resource is publicly accessible, has access restrictions or is not public. A default is set for non-public access, because most health datasets contain sensitive information and rules and licenses apply to get access

applicable legislation
type: ObjectProperty
range: Legislations
domain: Subpopulations
description: The legislation that mandates the creation or management of the subpopulation. For health datasets, the value must include the data governance act, which is set as a default. URI's to other legislations may be included

provenance statement
type: DatatypeProperty
range: string
domain: Subpopulations
description: A statement of any changes in ownership and custody of a resource since its creation that are significant for its authenticity, integrity, and interpretation

mg_draft
type: DatatypeProperty
range: boolean
domain: Version

mg_insertedOn
type: DatatypeProperty
range: dateTime
domain: Version

mg_updatedOn
type: DatatypeProperty
range: dateTime
domain: Version

mg_draft
type: DatatypeProperty
range: boolean
domain: Agents

mg_insertedOn
type: DatatypeProperty
range: dateTime
domain: Agents

mg_updatedOn
type: DatatypeProperty
range: dateTime
domain: Agents

resource
type: ObjectProperty
range: Resources
domain: Agents
description: Resource this Agent is associated with

id
type: DatatypeProperty
range: string
domain: Agents
description: Internal identifier. Ideally fill out acronym for an organisation (e.g. UMCG) and full name for a person (e.g. Ada Lovelace)"

type
type: ObjectProperty
range: AgentTypes
domain: Agents
description: Type of agent: person or organisation

name
type: DatatypeProperty
range: string
domain: Agents
description: Name of the individual

organisation
type: ObjectProperty
range: Organisations
domain: Agents
description: Organisation name from Research Organization Registry (ROR).

other organisation
type: DatatypeProperty
range: string
domain: Agents
description: If your organisation is not listed, please look up in ROR: https://ror.org/ and preferably provide ROR id, otherwise fill out your organisation name.

department
type: DatatypeProperty
range: string
domain: Agents
description: Name of department within the organisation

website
type: ObjectProperty
domain: Agents
description: A website representing this Agent

email
type: DatatypeProperty
range: anyURI
domain: Agents
description: E-mail address to contact this organisation or individual

logo
type: DatatypeProperty
range: anyURI
domain: Agents
description: Logo of the organisation

role
type: ObjectProperty
range: OrganisationRoles
domain: Agents
description: Type(s) of contribution or role in the resource

organisation name
type: DatatypeProperty
range: string
domain: Agents
description: Organisation name, copied value from ROR ontology for DCAT conform RDF generation

organisation pid
type: DatatypeProperty
range: string
domain: Agents
description: ROR id, copied value from ROR ontology for DCAT conform RDF generation

organisation website
type: ObjectProperty
domain: Agents
description: Organisation website, copied value from ROR ontology for DCAT conform RDF generation

mg_tableclass
type: DatatypeProperty
range: string
domain: Agents

mg_draft
type: DatatypeProperty
range: boolean
domain: Contacts

mg_insertedOn
type: DatatypeProperty
range: dateTime
domain: Contacts

mg_updatedOn
type: DatatypeProperty
range: dateTime
domain: Contacts

resource
type: ObjectProperty
range: Resources
domain: Contacts
description: Resource the contact is affiliated with

role
type: ObjectProperty
range: ContributionTypes
domain: Contacts
description: Type(s) of contribution or role in the resource

role description
type: DatatypeProperty
range: string
domain: Contacts
description: Description of the role

first name
type: DatatypeProperty
range: string
domain: Contacts
description: First name of the contact person

last name
type: DatatypeProperty
range: string
domain: Contacts
description: Last name of the contact person

display name
type: DatatypeProperty
range: string
domain: Contacts
description: Display name of the contact person

prefix
type: DatatypeProperty
range: string
domain: Contacts
description: Surname prefix, if applicable

initials
type: DatatypeProperty
range: string
domain: Contacts
description: Initials of the contact person

title
type: ObjectProperty
range: Titles
domain: Contacts
description: Title of the contact person

organisation
type: ObjectProperty
range: Organisations
domain: Contacts
description: Affiliated organisation of the contact person

email
type: DatatypeProperty
range: anyURI
domain: Contacts
description: Contact's email address

orcid
type: DatatypeProperty
range: string
domain: Contacts
description: Orcid of the contact person

homepage
type: ObjectProperty
domain: Contacts
description: Link to contact's homepage

photo
type: DatatypeProperty
range: anyURI
domain: Contacts
description: Contact's photograph

expertise
type: DatatypeProperty
range: string
domain: Contacts
description: Description of contact's expertise

mg_draft
type: DatatypeProperty
range: boolean
domain: Datasets

mg_insertedOn
type: DatatypeProperty
range: dateTime
domain: Datasets

mg_updatedOn
type: DatatypeProperty
range: dateTime
domain: Datasets

resource
type: ObjectProperty
range: Resources
domain: Datasets
description: Resource of which the dataset is part

name
type: DatatypeProperty
range: string
domain: Datasets
description: Unique dataset name in the model

label
type: DatatypeProperty
range: string
domain: Datasets
description: Short human readable description

dataset type
type: ObjectProperty
range: DatasetTypes
domain: Datasets
description: Defines the type of dataset, e.g. genomic

unit of observation
type: ObjectProperty
range: ObservationTargets
domain: Datasets
description: Defines what each record in this table describes

keywords
type: ObjectProperty
range: Keywords
domain: Datasets
description: Enables grouping of table list by topic and to display tables in a tree

description
type: DatatypeProperty
range: string
domain: Datasets
description: Description of the role/function of this table

number of rows
type: DatatypeProperty
range: int
domain: Datasets
description: Count of the number of records in this table

mapped to
type: ObjectProperty
range: Dataset mappings
domain: Datasets
description: Common dataset models this dataset has been mapped into

mapped from
type: ObjectProperty
range: Dataset mappings
domain: Datasets
description: Source datasets that have been mapped to this harmonised dataset

since version
type: DatatypeProperty
range: string
domain: Datasets
description: When this dataset was introduced, if applicable

until version
type: DatatypeProperty
range: string
domain: Datasets
description: When this dataset was removed, if applicable

mg_draft
type: DatatypeProperty
range: boolean
domain: External identifiers

mg_insertedOn
type: DatatypeProperty
range: dateTime
domain: External identifiers

mg_updatedOn
type: DatatypeProperty
range: dateTime
domain: External identifiers

resource
type: ObjectProperty
range: Resources
domain: External identifiers
description: Resource that this external identifier belongs to

identifier
type: DatatypeProperty
range: string
domain: External identifiers
description: External identifier

external identifier type
type: ObjectProperty
range: ExternalIdentifierTypes
domain: External identifiers
description: External identifier type

external identifier type other
type: DatatypeProperty
range: string
domain: External identifiers
description: If 'other', enter external identifier type

mg_draft
type: DatatypeProperty
range: boolean
domain: Linkages

mg_insertedOn
type: DatatypeProperty
range: dateTime
domain: Linkages

mg_updatedOn
type: DatatypeProperty
range: dateTime
domain: Linkages

resource
type: ObjectProperty
range: Resources
domain: Linkages
description: Main resource for this linkage

linked resource
type: ObjectProperty
range: Resources
domain: Linkages
description: Linked resource

linkage strategy
type: ObjectProperty
range: LinkageStrategies
domain: Linkages
description: The linkage method that was used to link resources

linkage variable
type: DatatypeProperty
range: string
domain: Linkages
description: If a single variable (or linkage key) is used to link resources, provide a name and description of the variable

linkage variable unique
type: DatatypeProperty
range: boolean
domain: Linkages
description: If a single variable is used to link resources, is the variable a unique identifier?

linkage completeness
type: DatatypeProperty
range: string
domain: Linkages
description: Provide a high-level description of the completeness of linkages that are currently available between resources (max 100 words)

pre linked
type: DatatypeProperty
range: boolean
domain: Linkages
description: Does the data source constitute of linked data sources?

mg_draft
type: DatatypeProperty
range: boolean
domain: Publications

mg_insertedOn
type: DatatypeProperty
range: dateTime
domain: Publications

mg_updatedOn
type: DatatypeProperty
range: dateTime
domain: Publications

resource
type: ObjectProperty
range: Resources
domain: Publications
description: Resource that this publication is part of

doi
type: ObjectProperty
domain: Publications
description: Digital object identifier

title
type: DatatypeProperty
range: string
domain: Publications
description: Publication title

is design publication
type: DatatypeProperty
range: boolean
domain: Publications
description: Whether this publication is a marker or design publication

reference
type: DatatypeProperty
range: string
domain: Publications
description: Formatted reference string (we aim to have this autogenerated)

mg_draft
type: DatatypeProperty
range: boolean
domain: Resource mappings

mg_insertedOn
type: DatatypeProperty
range: dateTime
domain: Resource mappings

mg_updatedOn
type: DatatypeProperty
range: dateTime
domain: Resource mappings

source
type: ObjectProperty
range: Resources
domain: Resource mappings
description: Data resource that is being mapped to a (common) data model

source version
type: DatatypeProperty
range: string
domain: Resource mappings
description: Version of the resource that is being mapped

target
type: ObjectProperty
range: Resources
domain: Resource mappings
description: Model being mapped to

target version
type: DatatypeProperty
range: string
domain: Resource mappings
description: Version of the model being mapped to

cdms other
type: DatatypeProperty
range: string
domain: Resource mappings
description: If cdm is not under targets, which cdm was mapped to? (default = not applicable)

mapping status
type: ObjectProperty
range: MappingStatus
domain: Resource mappings
description: Mapping status

ETL frequency
type: DatatypeProperty
range: int
domain: Resource mappings
description: The frequency of the ETL process, in months

ETL specification url
type: ObjectProperty
domain: Resource mappings
description: Link to ETL specification documentation

ETL specification document
type: DatatypeProperty
range: anyURI
domain: Resource mappings
description: Documentation concerning ETL details

mg_draft
type: DatatypeProperty
range: boolean
domain: Subpopulation counts

mg_insertedOn
type: DatatypeProperty
range: dateTime
domain: Subpopulation counts

mg_updatedOn
type: DatatypeProperty
range: dateTime
domain: Subpopulation counts

resource
type: ObjectProperty
range: Resources
domain: Subpopulation counts
description: Resource id

subpopulation
type: ObjectProperty
range: Subpopulations
domain: Subpopulation counts
description: Subpopulations for these counts

age group
type: ObjectProperty
range: AgeGroups
domain: Subpopulation counts
description: Select the age group for these counts

N total
type: DatatypeProperty
range: int
domain: Subpopulation counts
description: Total number

N female
type: DatatypeProperty
range: int
domain: Subpopulation counts
description: Number of females

N male
type: DatatypeProperty
range: int
domain: Subpopulation counts
description: Number of males

mg_draft
type: DatatypeProperty
range: boolean
domain: Variables

mg_insertedOn
type: DatatypeProperty
range: dateTime
domain: Variables

mg_updatedOn
type: DatatypeProperty
range: dateTime
domain: Variables

resource
type: ObjectProperty
range: Resources
domain: Variables
description: Resource that this variable is part of

dataset
type: ObjectProperty
range: Datasets
domain: Variables
description: Dataset that this variable is part of

name
type: DatatypeProperty
range: string
domain: Variables
description: Name of the variable, unique within a dataset

useExternalDefinition
type: ObjectProperty
range: Variables
domain: Variables
description: Refer to variable definition in other datasets

label
type: DatatypeProperty
range: string
domain: Variables
description: Human readable name, if applicable

description
type: DatatypeProperty
range: string
domain: Variables
description: Description of the variable

collection event
type: ObjectProperty
range: Collection events
domain: Variables
description: In case of protocolised data collection this defines the moment(s) in time this variable is collected on

format
type: ObjectProperty
range: Formats
domain: Variables
description: Data type, e.g. string, integer, decimal, date, datetime, etc.

unit
type: ObjectProperty
range: Units
domain: Variables
description: In case of a continuous variable, the unit that the variable values are expressed in

since version
type: DatatypeProperty
range: string
domain: Variables
description: When this variable was introduced

until version
type: DatatypeProperty
range: string
domain: Variables
description: When this variable was removed, if applicable

reused in resources
type: ObjectProperty
range: Reused variables
domain: Variables
description: Listing of variables from other resources that are reused by this resource

repeat unit
type: ObjectProperty
range: VariableRepeatUnits
domain: Variables
description: The repeat unit, in case the variable was repeatedly collected over time, e.g. month or week

repeat min
type: DatatypeProperty
range: int
domain: Variables
description: The first repeat unit

repeat max
type: DatatypeProperty
range: int
domain: Variables
description: The last repeat unit

example values
type: DatatypeProperty
range: string
domain: Variables
description: Example values for this variable

permitted values
type: ObjectProperty
range: Variable values
domain: Variables
description: Listing of variable values, filled out in Variable values table

keywords
type: ObjectProperty
range: Keywords
domain: Variables
description: Keywords that will make the variable easier to find

generated_keywords
type: ObjectProperty
range: Keywords
domain: Variables
description: LLM generated keywords, generated based on variable name, label and description

vocabularies
type: ObjectProperty
range: Vocabularies
domain: Variables
description: Vocabularies used to express the values of this variable

notes
type: DatatypeProperty
range: string
domain: Variables
description: Any other information on this variable

mappings
type: ObjectProperty
range: Variable mappings
domain: Variables
description: Listing of harmonised variables this variable was mapped to, filled out in Variable mappings table

mg_draft
type: DatatypeProperty
range: boolean
domain: Collection events

mg_insertedOn
type: DatatypeProperty
range: dateTime
domain: Collection events

mg_updatedOn
type: DatatypeProperty
range: dateTime
domain: Collection events

resource
type: ObjectProperty
range: Resources
domain: Collection events
description: Resource this collection event is part of

name
type: DatatypeProperty
range: string
domain: Collection events
description: Name of the collection event

pid
type: DatatypeProperty
range: string
domain: Collection events
description: Persistent identifier for this collection event

description
type: DatatypeProperty
range: string
domain: Collection events
description: Description of the collection event

subpopulations
type: ObjectProperty
range: Subpopulations
domain: Collection events
description: Subpopulations that are targetted by this collection event

keywords
type: DatatypeProperty
range: string
domain: Collection events
description: Keywords to increase findability of this collection event. Try to use words that are not used in the description. Keywords are not displayed on the collection event page

start date
type: DatatypeProperty
range: date
domain: Collection events
description: Start date of data collection

end date
type: DatatypeProperty
range: date
domain: Collection events
description: End date of data collection. Leave empty if collection is ongoing

age groups
type: ObjectProperty
range: AgeGroups
domain: Collection events
description: Age groups included in this data collection event

number of participants
type: DatatypeProperty
range: int
domain: Collection events
description: Number of participants sampled in this data collection event

areas of information
type: ObjectProperty
range: AreasOfInformationCohorts
domain: Collection events
description: Areas of information that were extracted in this data collection event

data categories
type: ObjectProperty
range: DataCategories
domain: Collection events
description: Methods of data collection used in this collection event

sample categories
type: ObjectProperty
range: SampleCategories
domain: Collection events
description: Samples that were collected in this collection event

standardized tools
type: ObjectProperty
range: StandardizedTools
domain: Collection events
description: Standardized tools, e.g. surveys, questionnaires, instruments used to collect data for this collection event

standardized tools other
type: DatatypeProperty
range: string
domain: Collection events
description: If 'other', please specify

core variables
type: DatatypeProperty
range: string
domain: Collection events
description: Name 10-20 relevant variables that were collected in this collection event

contact point
type: ObjectProperty
range: Contacts
domain: Collection events
description: Contact point for this collection event. Value copied from Resources table

publisher
type: ObjectProperty
range: Organisations
domain: Collection events
description: Organisation that published this collection event. Value copied from Resources table

creator
type: ObjectProperty
range: Organisations
domain: Collection events
description: Organisation(s) that created this collection event. Value copied from Resources table

issued
type: DatatypeProperty
range: dateTime
domain: Collection events
description: When the data for this collection event was first published

modified
type: DatatypeProperty
range: dateTime
domain: Collection events
description: When the data for this collection event was last modified

theme
type: ObjectProperty
range: Themes
domain: Collection events
description: A main category of the collection event. A collection event can have multiple themes, for health data theme must at least take the value 'Health', which is set as a default

access rights
type: ObjectProperty
range: AccessRights
domain: Collection events
description: Information that indicates whether the resource is publicly accessible, has access restrictions or is not public. A default is set for non-public access, because most health datasets contain sensitive information and rules and licenses apply to get access

applicable legislation
type: ObjectProperty
range: Legislations
domain: Collection events
description: The legislation that mandates the creation or management of the collection event. For health datasets, the value must include the data governance act, which is set as a default. URI's to other legislations may be included

provenance statement
type: DatatypeProperty
range: string
domain: Collection events
description: A statement of any changes in ownership and custody of a resource since its creation that are significant for its authenticity, integrity, and interpretation

mg_draft
type: DatatypeProperty
range: boolean
domain: Documentation

mg_insertedOn
type: DatatypeProperty
range: dateTime
domain: Documentation

mg_updatedOn
type: DatatypeProperty
range: dateTime
domain: Documentation

resource
type: ObjectProperty
range: Resources
domain: Documentation
description: The resource this documentation is for

name
type: DatatypeProperty
range: string
domain: Documentation
description: Document name

type
type: ObjectProperty
range: DocumentTypes
domain: Documentation
description: Type of documentation

description
type: DatatypeProperty
range: string
domain: Documentation
description: Description of the document

url
type: ObjectProperty
domain: Documentation
description: Hyperlink to the source of the documentation

file
type: DatatypeProperty
range: anyURI
domain: Documentation
description: Optional file attachment containing the documentation

is lead organisation
type: DatatypeProperty
range: boolean
domain: Organisations
description: Whether the organisation is the lead organisation of this resource

mg_draft
type: DatatypeProperty
range: boolean
domain: Reused variables

mg_insertedOn
type: DatatypeProperty
range: dateTime
domain: Reused variables

mg_updatedOn
type: DatatypeProperty
range: dateTime
domain: Reused variables

resource
type: ObjectProperty
range: Resources
domain: Reused variables
description: Resource reusing the variable

variable
type: ObjectProperty
range: Variables
domain: Reused variables
description: Variable from another resource that is reused

mg_draft
type: DatatypeProperty
range: boolean
domain: Variable values

mg_insertedOn
type: DatatypeProperty
range: dateTime
domain: Variable values

mg_updatedOn
type: DatatypeProperty
range: dateTime
domain: Variable values

resource
type: ObjectProperty
range: Resources
domain: Variable values
description: Resource the variable belongs to

dataset
type: ObjectProperty
range: Datasets
domain: Variable values
description: Dataset the variable belongs to

variable
type: ObjectProperty
range: Variables
domain: Variable values
description: Variable name

value
type: DatatypeProperty
range: string
domain: Variable values
description: Variable value, e.g. '1'

label
type: DatatypeProperty
range: string
domain: Variable values
description: Variable label, e.g. 'Yes'

order
type: DatatypeProperty
range: int
domain: Variable values
description: Order that the variable values should be displayed in

is missing
type: DatatypeProperty
range: boolean
domain: Variable values
description: Whether this variable value indicates that data is missing, e.g. '-1' for 'NA'

ontology term URI
type: DatatypeProperty
range: string
domain: Variable values
description: Reference to ontology term that defines this categorical value

since version
type: DatatypeProperty
range: string
domain: Variable values
description: When this variable value was introduced, if applicable

until version
type: DatatypeProperty
range: string
domain: Variable values
description: When this variable value was removed, if applicable

mg_draft
type: DatatypeProperty
range: boolean
domain: Dataset mappings

mg_insertedOn
type: DatatypeProperty
range: dateTime
domain: Dataset mappings

mg_updatedOn
type: DatatypeProperty
range: dateTime
domain: Dataset mappings

source
type: ObjectProperty
range: Resources
domain: Dataset mappings
description: Id of the resource being mapped from

source dataset
type: ObjectProperty
range: Datasets
domain: Dataset mappings
description: Name of the dataset being mapped from

target
type: ObjectProperty
range: Resources
domain: Dataset mappings
description: Network being mapped to

target dataset
type: ObjectProperty
range: Datasets
domain: Dataset mappings
description: Name of the dataset being mapped to, or harmonised with

order
type: DatatypeProperty
range: int
domain: Dataset mappings
description: Order in which table ETLs should be executed for this source-target combination

description
type: DatatypeProperty
range: string
domain: Dataset mappings
description: Human readible description of the mapping

syntax
type: DatatypeProperty
range: string
domain: Dataset mappings
description: Formal definition of the mapping, ideally in executable code

mg_draft
type: DatatypeProperty
range: boolean
domain: Resource counts

mg_insertedOn
type: DatatypeProperty
range: dateTime
domain: Resource counts

mg_updatedOn
type: DatatypeProperty
range: dateTime
domain: Resource counts

resource
type: ObjectProperty
range: Resources
domain: Resource counts
description: Resource id

age group
type: ObjectProperty
range: AgeGroups
domain: Resource counts
description: Select the relevant age group for this quantitative information

population size
type: DatatypeProperty
range: int
domain: Resource counts
description: Total number of unique individuals with records captured in the data source (most recent count). In the catalogue, this will accommodate counts per year

active size
type: DatatypeProperty
range: int
domain: Resource counts
description: Number of unique, active, or currently registered individuals with records captured in the data source (most recent count). In the catalogue, this will accommodate counts per year

no individuals with samples
type: DatatypeProperty
range: int
domain: Resource counts
description: Number of unique individuals with records of biological samples (e.g., blood, urine) (most recent count). In the catalogue, this will accommodate counts per year

mean observation years
type: DatatypeProperty
range: int
domain: Resource counts
description: Median years for which unique individuals with records captured in the data source are observable (most recent count)

mean years active
type: DatatypeProperty
range: int
domain: Resource counts
description: Median time for which unique individuals with records captured in the data source are observable (most recent count)

median age
type: DatatypeProperty
range: int
domain: Resource counts
description: Median age of individuals within data source

proportion female
type: DatatypeProperty
range: int
domain: Resource counts
description: Proportion of females in the data source

mg_draft
type: DatatypeProperty
range: boolean
domain: Internal identifiers

mg_insertedOn
type: DatatypeProperty
range: dateTime
domain: Internal identifiers

mg_updatedOn
type: DatatypeProperty
range: dateTime
domain: Internal identifiers

resource
type: ObjectProperty
range: Resources
domain: Internal identifiers
description: Resource that this internal identifier belongs to

identifier
type: DatatypeProperty
range: string
domain: Internal identifiers
description: Internal identifier

internal identifier type
type: ObjectProperty
range: InternalIdentifierTypes
domain: Internal identifiers
description: Internal identifier type

internal identifier type other
type: DatatypeProperty
range: string
domain: Internal identifiers
description: If 'other', enter internal identifier type

mg_draft
type: DatatypeProperty
range: boolean
domain: Variable mappings

mg_insertedOn
type: DatatypeProperty
range: dateTime
domain: Variable mappings

mg_updatedOn
type: DatatypeProperty
range: dateTime
domain: Variable mappings

source
type: ObjectProperty
range: Resources
domain: Variable mappings
description: Id of the resource that contains the source variable(s)

source dataset
type: ObjectProperty
range: Datasets
domain: Variable mappings
description: Name of the dataset that contains the source variable(s)

source variables
type: ObjectProperty
range: Variables
domain: Variable mappings
description: Optional, source variable that was mapped from. You may also indicate that a mapping to a target variable was not done and leave this field empty (match = not available)

source variables other datasets
type: ObjectProperty
range: Variables
domain: Variable mappings
description: Optional, variables from other source datasets. Initially one may only define mapping between releases

target
type: ObjectProperty
range: Resources
domain: Variable mappings
description: Id of the resource that contains the target variable

target dataset
type: ObjectProperty
range: Datasets
domain: Variable mappings
description: Name of the dataset that contains the target variable

target variable
type: ObjectProperty
range: Variables
domain: Variable mappings
description: Target variable that was mapped to

repeats
type: DatatypeProperty
range: string
domain: Variable mappings
description: In case of mapping to a repeated variable, specify which repeats were mapped to

match
type: ObjectProperty
range: StatusDetails
domain: Variable mappings
description: Harmonisation match, i.e., complete, partial, na

description
type: DatatypeProperty
range: string
domain: Variable mappings
description: Human readible description of the mapping

syntax
type: DatatypeProperty
range: string
domain: Variable mappings
description: Formal definition of the mapping, ideally in executable code

comments
type: DatatypeProperty
range: string
domain: Variable mappings
description: Additional notes or comments

main_fdp
type: Endpoint
type: Observation
type: Service
endpoint URL: catalogue-rdf
data set: Endpoint
id: main_fdp
type: FAIRDataPoint
type: MetadataService
type: DataService
type: Resource
title: Example MOLGENIS EMX2 FAIR Data Point
name: Example MOLGENIS EMX2 FAIR Data Point
has version: v1.2
version: v1.2
description: This example MOLGENIS EMX2 multi-interoperable FAIR Data Point is based on the FAIR Data Point 1.2 specification but includes extension points to support additional DCAT flavours including EJP RD Virtual Platform level 1 metadata, HealthRI core plateau 1 metadata, and so on.
publisher: HDSU UMCU
language: https://www.loc.gov/standards/iso639-2/php/langcodes_name.php
license: license-text
conforms to: fdp-specs-v1.2.html
conformsTo: fdp-specs-v1.2.html
rights: www.linktosomerightsstatement.org
access rights: www.linktosomeaccessrightsstatement.org
accessRights: www.linktosomeaccessrightsstatement.org
contact point: HDSU Jutta de Jong
contact: HDSU Jutta de Jong
keyword: fdp
keyword: emx2
keyword: example
keyword: molgenis
theme: Q2352616
endpoint description: fdp-specs-v1.2.html
endPointDescription: fdp-specs-v1.2.html
metadata catalog: HDSU
metadataCatalog: HDSU
conforms to fdp spec: fdp-specs-v1.2.html
conformsToFdpSpec: fdp-specs-v1.2.html
personal data: false
EJP_RD_personalData: false
vp connection: VPDiscoverable
EJP_RD_vpConnection: VPDiscoverable
mg_draft: false
mg_insertedOn: 2026-03-11T17:09:09
mg_updatedOn: 2026-03-11T17:09:09

ALL10
type: Resources
type: Observation
type: DirectContainer
endpoint URL: catalogue-rdf
data set: Resources
type: Dataset
rdf type: Dataset
membership resource: main_fdp
fdp endpoint: main_fdp
has member relation: metadataCatalog
ldp membership relation: metadataCatalog
hricore: true
id: ALL10
pid: https://doi.org/10.71739/jr71-6h42
title: Protocol ALL 10, protocol voor diagnostiek en behandeling van kinderen en adolescenten (1-19 jaar) met Acute Lymfatische Leukemie (ALL)
name: Protocol ALL 10, protocol voor diagnostiek en behandeling van kinderen en adolescenten (1-19 jaar) met Acute Lymfatische Leukemie (ALL)
alternative: ALL10
acronym: ALL10
type: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/ResourceTypes/name=Clinical%20trial
description: The aim of Protocol ALL-10 is to improve the overall treatment results in terms of EFS and to decrease treatment intensity in patients with a pEFS of >95%. Therapy will be tailored according to the risk of relapse as determined by the MRD levels at 2 time points during the first months of therapy. This tailored therapy should lead to less intensive therapy for patients with low risk of relapse and to intensification of therapy for patients with medium and high risk of relapse.
keyword: Acute Lymfatische Leukemie
keywords: Acute Lymfatische Leukemie
external identifiers: ALL10 MEC-2004-203
start date: 2004
start year: 2004
end date: 2012
end year: 2012
design: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/CohortDesigns/name=Longitudinal
provenance: The aim of Protocol ALL-10 is to improve the overall treatment results in terms of EFS and to decrease treatment intensity in patients with a pEFS of >95%. Therapy will be tailored according to the risk of relapse as determined by the MRD levels at 2 time points during the first months of therapy. This tailored therapy should lead to less intensive therapy for patients with low risk of relapse and to intensification of therapy for patients with medium and high risk of relapse.
design description: The aim of Protocol ALL-10 is to improve the overall treatment results in terms of EFS and to decrease treatment intensity in patients with a pEFS of >95%. Therapy will be tailored according to the risk of relapse as determined by the MRD levels at 2 time points during the first months of therapy. This tailored therapy should lead to less intensive therapy for patients with low risk of relapse and to intensification of therapy for patients with medium and high risk of relapse.
data collection type: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/CohortCollectionTypes/name=Prospective
subpopulations: ALL10 ALL10
collection events: ALL10 ALL10
part of networks: HDSU
number of unique individuals: 778
number of participants: 778
countries: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Countries/name=Netherlands%20%28the%29
spatial: NLD
population age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Adolescent%20%2813-17%20years%29
population age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Young%20adult%20%2818-24%20years%29
population age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Infants%20and%20toddlers%20%282-23%20months%29
population age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Child%20%282-12%20years%29
inclusion criteria: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/InclusionExclusionCriteria/name=Age%20group%20inclusion%20criterion
inclusion criteria: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/InclusionExclusionCriteria/name=Health%20status%20inclusion%20criterion
other inclusion criteria: Child (1-19 years)
organisations involved: ALL10 pmc
publisher: ALL10 pmc
creator: ALL10 pmc
people involved: ALL10 Hester de Groot-Kruseman
contact point: ALL10 Hester de Groot-Kruseman
prelinked: false
linkage possibility: true
informed consent type: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/InformedConsentTypes/name=Broad%20consent
access rights: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AccessRights/name=Non%20public
access rights: NON PUBLIC
data access conditions: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/DataAccessConditions/name=health%20or%20medical%20or%20biomedical%20research
data access conditions: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/DataAccessConditions/name=disease%20specific%20research
data access fee: false
release type: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/ReleaseTypes/name=Closed%20dataset
accrual periodicity: NEVER
publications: ALL10 https://ascopubs.org/doi/10.1200/JCO.2015.64.6364
theme: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Themes/name=Health
theme: HEAL
applicable legislation: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Legislations/name=Data%20Governance%20Act
applicable legislation: oj
mg_draft: false
mg_insertedOn: 2026-03-11T17:09:09
mg_updatedOn: 2026-03-11T17:09:09

Julius Huisartsen Netwerk
type: Resources
type: Observation
type: DirectContainer
endpoint URL: catalogue-rdf
data set: Resources
type: Dataset
rdf type: Dataset
membership resource: main_fdp
fdp endpoint: main_fdp
has member relation: metadataCatalog
ldp membership relation: metadataCatalog
hricore: true
id: Julius Huisartsen Netwerk
pid: https://doi.org/10.71739/r5zx-8143
name: Julius Huisartsen Netwerk
alternative: JHN
acronym: JHN
type: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/ResourceTypes/name=Health%20records
landing page: https://www.juliushuisartsennetwerk.nl
website: www.juliushuisartsennetwerk.nl
description: The Julius General Practitioners Network (JHN) is a database of primary care routine data. It is a network of approximately seventy general practices with two hundred general practitioners and over 450,000 active patients in the Utrecht area. The database contains data on more than 1.5 million patients from 1995 to the present.
keyword: General Practitioner
keywords: General Practitioner
keyword: Electronic Health Record
keywords: Electronic Health Record
keyword: Primary Care
keywords: Primary Care
start date: 1996
start year: 1996
design: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/CohortDesigns/name=Longitudinal
provenance: Electronic Health Recors of Patients in Primary Care
design description: Electronic Health Recors of Patients in Primary Care
data collection type: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/CohortCollectionTypes/name=Retrospective
subpopulations: Julius Huisartsen Netwerk all persons in GP
number of unique individuals: 1500000
number of participants: 1500000
countries: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Countries/name=Netherlands%20%28the%29
spatial: NLD
regions: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Regions/name=Utrecht
spatial: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Regions/name=Utrecht
population age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Infant%20%280-23%20months%29
population age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Aged%20%2865-79%20years%29
population age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Newborn%20%280-1%20months%29
population age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Child%20%282-12%20years%29
population age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Aged%20%2865%2B%20years%29
population age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Adolescent%20%2813-17%20years%29
population age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Adult%20%2825-44%20years%29
population age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Infants%20and%20toddlers%20%282-23%20months%29
population age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Middle-aged%20%2845-64%20years%29
population age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Adult%20%2818%2B%20years%29
population age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Aged%20%2880%2B%20years%29
population age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=All%20ages
population age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Young%20adult%20%2818-24%20years%29
organisations involved: Julius Huisartsen Netwerk UMCU
publisher: Julius Huisartsen Netwerk UMCU
creator: Julius Huisartsen Netwerk UMCU
people involved: Julius Huisartsen Netwerk Secretariaat JHN
contact point: Julius Huisartsen Netwerk Secretariaat JHN
prelinked: false
linkage possibility: true
informed consent type: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/InformedConsentTypes/name=No%20consent
access rights: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AccessRights/name=Non%20public
access rights: NON PUBLIC
data access conditions: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/DataAccessConditions/name=health%20or%20medical%20or%20biomedical%20research
data access conditions: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/DataAccessConditions/name=disease%20specific%20research
data use conditions: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/DataUseConditions/name=return%20to%20database%20or%20resource
data use conditions: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/DataUseConditions/name=user%20specific%20restriction
data use conditions: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/DataUseConditions/name=project%20specific%20restriction
data use conditions: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/DataUseConditions/name=geographical%20restriction
data use conditions: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/DataUseConditions/name=research%20specific%20restrictions
data use conditions: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/DataUseConditions/name=institution%20specific%20restriction
data use conditions: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/DataUseConditions/name=time%20limit%20on%20use
data use conditions: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/DataUseConditions/name=publication%20moratorium
data use conditions: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/DataUseConditions/name=publication%20required
data use conditions: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/DataUseConditions/name=clinical%20care%20use
data use conditions: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/DataUseConditions/name=not%20for%20profit%2C%20non%20commercial%20use%20only
data access conditions description: data can be requested as specified on website
data access fee: true
release type: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/ReleaseTypes/name=Continuous

BioDay
type: Resources
type: Observation
type: DirectContainer
endpoint URL: catalogue-rdf
data set: Resources
type: Dataset
rdf type: Dataset
membership resource: main_fdp
fdp endpoint: main_fdp
has member relation: metadataCatalog
ldp membership relation: metadataCatalog
hricore: true
id: BioDay
pid: https://doi.org/10.71739/feb4-qv18
title: BioDay Registry
name: BioDay Registry
alternative: BioDay
acronym: BioDay
type: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/ResourceTypes/name=Registry
landing page: http://bioday.nl
website: bioday.nl
description: The BioDay registry is a disease or condition registry for atopic dermatitis (AD)/prurigo nodularis (PN). All patients treated with advanced systemic therapy (biologics and JAK inhibitors [JAKi]) for AD are eligible for inclusion in the prospective, multicenter, observational BioDay registry. Patients are treated in a daily practice setting and the choice of treatment is determined by shared decision making and according to the Dutch AD guidelines. During all visits both clinical outcomes (e.g. EASI, IGA) and patient reported outcomes (e.g. NRS itch, DLQI,ADCT/RECAP) are collected.
keyword: lebrikizumab
keywords: lebrikizumab
keyword: biologicals
keywords: biologicals
keyword: JAK inhibitors
keywords: JAK inhibitors
keyword: abrocitinib
keywords: abrocitinib
keyword: atopic dermatitis
keywords: atopic dermatitis
keyword: baricitinib
keywords: baricitinib
keyword: atopic comorbidities
keywords: atopic comorbidities
keyword: prurigo nodularis
keywords: prurigo nodularis
keyword: registry
keywords: registry
keyword: multicenter
keywords: multicenter
keyword: daily practice
keywords: daily practice
keyword: tralokinumab
keywords: tralokinumab
keyword: real-world evidence
keywords: real-world evidence
keyword: upadacitinib
keywords: upadacitinib
keyword: dupilumab
keywords: dupilumab
start date: 2017
start year: 2017
design: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/CohortDesigns/name=Longitudinal
provenance: Multicenter prospective observational atopic dermatitis registry
design description: Multicenter prospective observational atopic dermatitis registry
data collection type: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/CohortCollectionTypes/name=Prospective
subpopulations: BioDay BioDay Prurigo nodularis
subpopulations: BioDay BioDay Hand eczema
subpopulations: BioDay BioDay Atopic dermatitis
collection events: BioDay BioDay Inclusion
collection events: BioDay BioDay Follow-up: 4 weeks
collection events: BioDay BioDay Follow-up: every 3 months
part of networks: HDSU
number of unique individuals: 2295
number of participants: 2295
countries: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Countries/name=Netherlands%20%28the%29
spatial: NLD
regions: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Regions/name=Flevoland
regions: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Regions/name=Zeeland
regions: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Regions/name=Noord-Brabant
regions: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Regions/name=Groningen
regions: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Regions/name=Utrecht
regions: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Regions/name=Noord-Holland
regions: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Regions/name=Gelderland
regions: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Regions/name=Zuid-Holland
regions: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Regions/name=Overijssel
regions: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Regions/name=Limburg

HEM-PRO
type: Resources
type: Observation
type: DirectContainer
endpoint URL: catalogue-rdf
data set: Resources
type: Dataset
rdf type: Dataset
membership resource: main_fdp
fdp endpoint: main_fdp
has member relation: metadataCatalog
ldp membership relation: metadataCatalog
hricore: true
id: HEM-PRO
pid: https://doi.org/10.71739/gp7d-fx35
title: Long-term prosthesis survival of total hip and total knee arthroplasty in people with inherited bleeding disorders
name: Long-term prosthesis survival of total hip and total knee arthroplasty in people with inherited bleeding disorders
alternative: HEM-PRO
acronym: HEM-PRO
type: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/ResourceTypes/name=Health%20records
description: In this single center retrospective cohort study, regular care data of total knee arthroplasty and total hip arthroplasty was extracted from medical records of people with bleeding disorders who attended the Van Creveldkliniek, University Medical Center Utrecht, between 1989 and 2025. Patients with moderate or severe haemophilia A or B (FVIII/FIX <5%) or Von Willebrand’s disease (VWD) with a FVIII activity <5% were included. All types of primary THA or TKA were included. All patients were followed according to standard care. The primary outcome was time to prosthesis failure, defined as revision or indication for revision (but patients are inoperable or refuse), measured in years.
keyword: joint arthroplasty
keywords: joint arthroplasty
keyword: total hip
keywords: total hip
keyword: total knee
keywords: total knee
keyword: survival
keywords: survival
keyword: haemophilia
keywords: haemophilia
start date: 1989
start year: 1989
end date: 2026
end year: 2026
design: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/CohortDesigns/name=Longitudinal
provenance: Single center retrospective cohort study,
design description: Single center retrospective cohort study,
data collection type: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/CohortCollectionTypes/name=Retrospective
subpopulations: HEM-PRO Total knee arthroplasty
subpopulations: HEM-PRO Total hip arthroplasty
collection events: HEM-PRO Data collection
number of unique individuals: 192
number of participants: 192
countries: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Countries/name=Netherlands%20%28the%29
spatial: NLD
population age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Adult%20%2818%2B%20years%29
population age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Aged%20%2865%2B%20years%29
population age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Young%20adult%20%2818-24%20years%29
population age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Adult%20%2825-44%20years%29
population age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Aged%20%2880%2B%20years%29
population age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Middle-aged%20%2845-64%20years%29
population age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Aged%20%2865-79%20years%29
minimum typical age: 27
age min: 27
maximum typical age: 77
age max: 77
other inclusion criteria: Patients with moderate or severe haemophilia A or B (FVIII/FIX <5%) or Von Willebrand’s disease (VWD) with a FVIII activity <5% were included, as arthropathy in patients with these factor levels is assumed to be bleeding related [29]. All types of primary THA or TKA were included. All patients were followed according to standard care. Patients could be included multiple times with distinct joints.
organisations involved: HEM-PRO UMCU - Ort
organisations involved: HEM-PRO UMCU - VCK
organisations involved: HEM-PRO UMCU - Rad
publisher: HEM-PRO UMCU - VCK
creator: HEM-PRO UMCU - VCK
people involved: HEM-PRO Huub de Visser
people involved: HEM-PRO Lize van Vulpen
prelinked: false
linkage possibility: false
informed consent type: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/InformedConsentTypes/name=No%20consent
access rights: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AccessRights/name=Non%20public
access rights: NON PUBLIC
data access conditions: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/DataAccessConditions/name=health%20or%20medical%20or%20biomedical%20research
data access fee: false
release type: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/ReleaseTypes/name=Closed%20dataset
accrual periodicity: NEVER
funding statement: This research received no specific funding from any public, commercial, or not-for-profit organization.
theme: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Themes/name=Health
theme: HEAL
applicable legislation: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Legislations/name=Data%20Governance%20Act
applicable legislation: oj
mg_draft: false

VIOOL
type: Resources
type: Observation
type: DirectContainer
endpoint URL: catalogue-rdf
data set: Resources
type: Dataset
rdf type: Dataset
membership resource: main_fdp
fdp endpoint: main_fdp
has member relation: metadataCatalog
ldp membership relation: metadataCatalog
hricore: true
id: VIOOL
pid: https://doi.org/10.71739/bbh4-yk15
title: Virus Interactions in the Respiratory Tract; a Cohort Study With Children (VIOOL)
name: Virus Interactions in the Respiratory Tract; a Cohort Study With Children (VIOOL)
alternative: VIOOL
acronym: VIOOL
type: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/ResourceTypes/name=Cohort%20study
cohort type: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/CohortStudyTypes/name=Population%20cohort
description: The VIOOL study is a prospective observational cohort conducted across three winter seasons (2021–2024; October–April/May) in the Netherlands. Children under 4 years of age were recruited from the community and followed for 16 weeks. Parents recorded daily symptom diaries and collected weekly nasal swabs, regardless of symptoms. Swabs were analyzed by PCR for a broad panel of common respiratory viruses. Its primary objective is to examine interactions between respiratory virus infections in young children. The study was approved by the Medical Ethics Committee of the University Medical Centre Utrecht (UMCU) and registered in the Clinical Trials Register (NL78424.041.21).
keyword: viral interactions
keywords: viral interactions
keyword: respiratory viruses
keywords: respiratory viruses
keyword: healthy children
keywords: healthy children
keyword: population cohort
keywords: population cohort
keyword: coinfections
keywords: coinfections
keyword: acute respiratory illness
keywords: acute respiratory illness
start date: 2021
start year: 2021
end date: 2024
end year: 2024
design: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/CohortDesigns/name=Longitudinal
data collection type: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/CohortCollectionTypes/name=Prospective
subpopulations: VIOOL VIOOL
collection events: VIOOL Symptom diaries
collection events: VIOOL Baseline characteristics
collection events: VIOOL Saliva swab
collection events: VIOOL Midturbinate swabs
part of networks: HDSU
number of unique individuals: 228
number of participants: 228
countries: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Countries/name=Netherlands%20%28the%29
spatial: NLD
regions: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Regions/name=Utrecht
spatial: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Regions/name=Utrecht
population age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Infants%20and%20toddlers%20%282-23%20months%29
population age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Newborn%20%280-1%20months%29
population age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Child%20%282-12%20years%29
population age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Infant%20%280-23%20months%29
minimum typical age: 0
age min: 0
maximum typical age: 4
age max: 4
inclusion criteria: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/InclusionExclusionCriteria/name=Age%20group%20inclusion%20criterion
inclusion criteria: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/InclusionExclusionCriteria/name=Country%20of%20residence%20inclusion%20criteria
other inclusion criteria: Attending childcare for at least two half-days per week and/or having an older sibling
other exclusion criteria: Known immunodeficiency Chronic lung disease associated with increased infection susceptibility Use of antibiotic prophylaxis for recurrent respiratory tract infections Congenital anomalies of the airways
organisations involved: VIOOL UMCU
publisher: VIOOL UMCU
creator: VIOOL UMCU
people involved: VIOOL Patricia Bruijning-Verhagen
contact point: VIOOL Patricia Bruijning-Verhagen
prelinked: false
linkage possibility: false
informed consent type: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/InformedConsentTypes/name=Study%20specific%20consent
access rights: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AccessRights/name=Non%20public
access rights: NON PUBLIC
data access conditions: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/DataAccessConditions/name=general%20research%20use
data access conditions: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/DataAccessConditions/name=health%20or%20medical%20or%20biomedical%20research
data access fee: true
release type: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/ReleaseTypes/name=Closed%20dataset
accrual periodicity: NEVER
publications: VIOOL https://doi.org/10.1016/j.ijid.2025.108317

ALL11
type: Resources
type: Observation
type: DirectContainer
endpoint URL: catalogue-rdf
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type: Dataset
rdf type: Dataset
membership resource: main_fdp
fdp endpoint: main_fdp
has member relation: metadataCatalog
ldp membership relation: metadataCatalog
hricore: true
id: ALL11
pid: https://doi.org/10.71739/qmkv-2895
title: PROTOCOL ALL 11: Treatment study protocol of the Dutch Childhood Oncology Group for Children and adolescents (1-19 year) with newly diagnosed acute lymphoblastic leukemia
name: PROTOCOL ALL 11: Treatment study protocol of the Dutch Childhood Oncology Group for Children and adolescents (1-19 year) with newly diagnosed acute lymphoblastic leukemia
alternative: ALL11
acronym: ALL11
type: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/ResourceTypes/name=Clinical%20trial
description: 1. To improve the overall outcome as compared to the previous protocols of the DCOG, especially ALL-9 and ALL-10. This is aimed for by decreasing therapy for part of the patients (TEL/AML1, Down syndrome, PPR only), increasing therapy for IKZF1 mutated cases, decreasing the cumulative dose of anthracyclines, omitting cranial irradiation and total body irradiation and individualizing asparaginase therapy for all patients. 2. Does a continuous schedule of Asparaginase lead to less allergic reaction/inactivation of Asparaginase than the standard non continuous schedule of Asparaginase? Patients are randomized to receive noncontinuous PEGasparaginase in IA (induction) and intensification of the Medium Risk group (standard arm A) or to receive continuous PEGasparaginase in IA, IB, M and intensification (continuous arm B) with the same cumulative number of doses of PEGasparaginase. 3. Does prophylactic administration of intravenous immunoglobulins reduce the number of infections during the intensive treatment phases? Patients are randomized in the induction and MR treatment group to receive or not receive prophylactic immunoglobulins. 4. Individualize the dose schedule of asparaginase by therapeutic drug monitoring in order to detect silent inactivation of asparaginase, to prevent allergic/anaphylactic reactions, to switch Asparaginase preparation in time and to prevent too high levels with possible toxicity.
keyword: Acute Lymfatische Leukemie
keywords: Acute Lymfatische Leukemie
external identifiers: ALL11 2012-287
start date: 2012
start year: 2012
end date: 2020
end year: 2020
design: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/CohortDesigns/name=Longitudinal
provenance: 1. To improve the overall outcome as compared to the previous protocols of the DCOG, especially ALL-9 and ALL-10. This is aimed for by decreasing therapy for part of the patients (TEL/AML1, Down syndrome, PPR only), increasing therapy for IKZF1 mutated cases, decreasing the cumulative dose of anthracyclines, omitting cranial irradiation and total body irradiation and individualizing asparaginase therapy for all patients. 2. Does a continuous schedule of Asparaginase lead to less allergic reaction/inactivation of Asparaginase than the standard non continuous schedule of Asparaginase? Patients are randomized to receive noncontinuous PEGasparaginase in IA (induction) and intensification of the Medium Risk group (standard arm A) or to receive continuous PEGasparaginase in IA, IB, M and intensification (continuous arm B) with the same cumulative number of doses of PEGasparaginase. 3. Does prophylactic administration of intravenous immunoglobulins reduce the number of infections during the intensive treatment phases? Patients are randomized in the induction and MR treatment group to receive or not receive prophylactic immunoglobulins. 4. Individualize the dose schedule of asparaginase by therapeutic drug monitoring in order to detect silent inactivation of asparaginase, to prevent allergic/anaphylactic reactions, to switch Asparaginase preparation in time and to prevent too high levels with possible toxicity.
design description: 1. To improve the overall outcome as compared to the previous protocols of the DCOG, especially ALL-9 and ALL-10. This is aimed for by decreasing therapy for part of the patients (TEL/AML1, Down syndrome, PPR only), increasing therapy for IKZF1 mutated cases, decreasing the cumulative dose of anthracyclines, omitting cranial irradiation and total body irradiation and individualizing asparaginase therapy for all patients. 2. Does a continuous schedule of Asparaginase lead to less allergic reaction/inactivation of Asparaginase than the standard non continuous schedule of Asparaginase? Patients are randomized to receive noncontinuous PEGasparaginase in IA (induction) and intensification of the Medium Risk group (standard arm A) or to receive continuous PEGasparaginase in IA, IB, M and intensification (continuous arm B) with the same cumulative number of doses of PEGasparaginase. 3. Does prophylactic administration of intravenous immunoglobulins reduce the number of infections during the intensive treatment phases? Patients are randomized in the induction and MR treatment group to receive or not receive prophylactic immunoglobulins. 4. Individualize the dose schedule of asparaginase by therapeutic drug monitoring in order to detect silent inactivation of asparaginase, to prevent allergic/anaphylactic reactions, to switch Asparaginase preparation in time and to prevent too high levels with possible toxicity.
data collection type: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/CohortCollectionTypes/name=Prospective
subpopulations: ALL11 ALL11
collection events: ALL11 ALL11
part of networks: HDSU
number of unique individuals: 887
number of participants: 887
countries: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Countries/name=Netherlands%20%28the%29
spatial: NLD
population age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Infants%20and%20toddlers%20%282-23%20months%29
population age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Adolescent%20%2813-17%20years%29
population age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Young%20adult%20%2818-24%20years%29
inclusion criteria: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/InclusionExclusionCriteria/name=Age%20group%20inclusion%20criterion
inclusion criteria: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/InclusionExclusionCriteria/name=Health%20status%20inclusion%20criterion
other inclusion criteria: Child (1-19 years)
organisations involved: ALL11 PMC
publisher: ALL11 PMC
creator: ALL11 PMC
people involved: ALL11 Hester de Groot-Kruseman
contact point: ALL11 Hester de Groot-Kruseman
prelinked: false
linkage possibility: true
informed consent type: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/InformedConsentTypes/name=Broad%20consent
access rights: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AccessRights/name=Non%20public
access rights: NON PUBLIC
data access conditions: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/DataAccessConditions/name=health%20or%20medical%20or%20biomedical%20research
data access conditions: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/DataAccessConditions/name=disease%20specific%20research
data access fee: false
publications: ALL11 https://ascopubs.org/doi/full/10.1200/JCO.23.01797
publications: ALL11 https://ascopubs.org/doi/full/10.1200/JCO.22.02705
publications: ALL11 https://doi.org/10.3324/haematol.2024.285428
theme: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Themes/name=Health
theme: HEAL
applicable legislation: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Legislations/name=Data%20Governance%20Act
applicable legislation: oj
mg_draft: false
mg_insertedOn: 2026-03-11T17:09:09
mg_updatedOn: 2026-03-11T17:09:09

The TWIN-study
type: Resources
type: Observation
type: DirectContainer
endpoint URL: catalogue-rdf
data set: Resources
type: Dataset
rdf type: Dataset
membership resource: main_fdp
fdp endpoint: main_fdp
has member relation: metadataCatalog
ldp membership relation: metadataCatalog
hricore: true
id: The TWIN-study
pid: https://doi.org/10.71739/1fg4-jf23
title: Twin cohort for the study of (pre)clinical Inflammatory Bowel Disease in the Netherlands: The TWIN-study
name: Twin cohort for the study of (pre)clinical Inflammatory Bowel Disease in the Netherlands: The TWIN-study
alternative: TWIN-IBD
acronym: TWIN-IBD
type: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/ResourceTypes/name=Biobank
type: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/ResourceTypes/name=Cohort%20study
cohort type: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/CohortStudyTypes/name=Clinical%20cohort
cohort type: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/CohortStudyTypes/name=Other%20type
landing page: https://www.umcutrecht.nl/nl/wetenschappelijk-onderzoek/de-twin-studie-onderzoek-met-tweelingen-naar-chronische-ontstekingsziekten-van-de-darm-ibd
website: de-twin-studie-onderzoek-met-tweelingen-naar-chronische-ontstekingsziekten-van-de-darm-ibd
description: Inflammatory Bowel Diseases (IBD), i.e. Crohn’s Disease (CD) and Ulcerative Colitis (UC), are thought to arise in genetically susceptible individuals in the context of environmental triggers, with a potential dominant role for the interplay between the gut microbiota, and the mucosal immune system. However, the relative importance and the exact role of these factors in the pathogenesis of IBD is presently unknown. Interpretation of published research in this field is often hampered by reverse causation, and data generated in animal models cannot be directly extrapolated to the human condition. The disease is probably triggered years before the occurrence of symptoms, but currently patients are only identified when clinical disease is established. The preclinical phase of IBD might hold the key to understanding the pathogenesis of IBD and could provide a huge window of opportunity of halting or even preventing disease development. At this time, data on this phase of the disease are limited. Identifying and validating biomarkers and pathophysiological mechanisms is one of the necessary steps toward prediction, prevention and optimalization of therapy in IBD care. Unaffected twin-siblings of IBD affected individuals are at increased risk of developing IBD. Therefore, studying IBD-discordant, IBD-concordant and non-IBD-concordant twins or multiples gives the unique opportunity to 1) define mechanisms that underlie (the early development of) IBD and 2) identify and validate markers of (pre)clinical IBD.
keyword: concordance
keywords: concordance
keyword: twin
keywords: twin
keyword: ibd
keywords: ibd
keyword: twins
keywords: twins
keyword: cohort
keywords: cohort
keyword: ulcerative colitis
keywords: ulcerative colitis
keyword: Crohn's disease
keywords: Crohn's disease
start date: 2017
start year: 2017
design: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/CohortDesigns/name=Longitudinal
provenance: Observational study with both a cross-sectional and longitudinal design
design description: Observational study with both a cross-sectional and longitudinal design
data collection type: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/CohortCollectionTypes/name=Prospective
subpopulations: The TWIN-study Twins
collection events: The TWIN-study Follow-up
collection events: The TWIN-study Baseline
part of networks: HDSU
number of unique individuals: 138
number of participants: 138
countries: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Countries/name=Netherlands%20%28the%29
countries: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Countries/name=Belgium
spatial: NLD
spatial: BEL
population age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Young%20adult%20%2818-24%20years%29
population age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Aged%20%2865%2B%20years%29
population age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Adult%20%2818%2B%20years%29
population age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Adolescent%20%2813-17%20years%29
population age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Adult%20%2825-44%20years%29
population age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Aged%20%2865-79%20years%29
population age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Aged%20%2880%2B%20years%29
population age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Middle-aged%20%2845-64%20years%29
minimum typical age: 16
age min: 16
inclusion criteria: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/InclusionExclusionCriteria/name=Age%20group%20inclusion%20criterion
inclusion criteria: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/InclusionExclusionCriteria/name=Health%20status%20inclusion%20criterion
other inclusion criteria: IBD concordant twins or multiples, IBD disconcordant twins or multiples, IBD unaffected controls, preferably twins or multiples
other exclusion criteria: Not being able to understand the Dutch language
organisations involved: The TWIN-study UMC Utrecht
publisher: The TWIN-study UMC Utrecht
creator: The TWIN-study UMC Utrecht
people involved: The TWIN-study Femke van Wijk
people involved: The TWIN-study Bas Oldenburg
people involved: The TWIN-study Sarah Luna Dijkstra
contact point: The TWIN-study Sarah Luna Dijkstra
prelinked: false
linkage possibility: false
informed consent type: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/InformedConsentTypes/name=Broad%20consent

EPIC-NL
type: Resources
type: Observation
type: DirectContainer
endpoint URL: catalogue-rdf
data set: Resources
type: Dataset
rdf type: Dataset
membership resource: main_fdp
fdp endpoint: main_fdp
has member relation: metadataCatalog
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hricore: true
id: EPIC-NL
pid: https://doi.org/10.71739/wfnj-cj15
title: European Prospective Investigation Into Cancer and Nutrition in the Netherlands (EPIC-NL)
name: European Prospective Investigation Into Cancer and Nutrition in the Netherlands (EPIC-NL)
alternative: EPIC-NL
acronym: EPIC-NL
type: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/ResourceTypes/name=Cohort%20study
cohort type: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/CohortStudyTypes/name=Population%20cohort
landing page: https://epic.iarc.fr/centres/the-netherlands/
website: the-netherlands
description: EPIC is the European Prospective Investigation Into Cancer and Nutrition. EPIC-NL is the Dutch contribution to EPIC and comprises about 40,000 individuals prospectively followed since the early 90's. Biological samples have been stored in liquid nitrogen and repeated follow-up of the cohort has occured to obtain detailed information on lifestyle and behavioural factors and morbidity and mortality.
keyword: lifestyle
keywords: lifestyle
keyword: cancer
keywords: cancer
keyword: mortality
keywords: mortality
keyword: bloodsamples
keywords: bloodsamples
keyword: morbidity
keywords: morbidity
keyword: diabetes
keywords: diabetes
keyword: nutrition
keywords: nutrition
keyword: chronic disease
keywords: chronic disease
keyword: cardiovascular disease
keywords: cardiovascular disease
keyword: environmental exposure
keywords: environmental exposure
keyword: cause of death
keywords: cause of death
start date: 1993
start year: 1993
design: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/CohortDesigns/name=Longitudinal
provenance: At baseline, the prevalence of risk factors for chronic diseases was determined using self-administered questionnaires and a physical examination. Participants are followed up over time for changes in exposure and for the occurrence of cancer, diabetes, cardiovascular diseases, and other medical conditions. Subgroups of participants were invited for several follow-up rounds.
design description: At baseline, the prevalence of risk factors for chronic diseases was determined using self-administered questionnaires and a physical examination. Participants are followed up over time for changes in exposure and for the occurrence of cancer, diabetes, cardiovascular diseases, and other medical conditions. Subgroups of participants were invited for several follow-up rounds.
data collection type: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/CohortCollectionTypes/name=Prospective
subpopulations: EPIC-NL EPIC-NL Prospect-EPIC
subpopulations: EPIC-NL EPIC-NL MORGEN-EPIC
collection events: EPIC-NL EPIC-NL Follow-Up 2015
collection events: EPIC-NL EPIC-NL Follow-Up 1999
collection events: EPIC-NL EPIC-NL Follow-Up MORGEN-EPIC 2005
collection events: EPIC-NL EPIC-NL Follow-Up 2003 for Prospect-EPIC
collection events: EPIC-NL EPIC-NL baseline
collection events: EPIC-NL EPIC-NL Follow-Up 2011
part of networks: HDSU
number of unique individuals: 40010
number of participants: 40010
countries: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Countries/name=Netherlands%20%28the%29
spatial: NLD
regions: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Regions/name=Noord-Holland
regions: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Regions/name=Utrecht
regions: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Regions/name=Gelderland
regions: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Regions/name=Limburg
spatial: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Regions/name=Noord-Holland
spatial: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Regions/name=Utrecht
spatial: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Regions/name=Gelderland
spatial: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Regions/name=Limburg
population age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Adult%20%2818%2B%20years%29
population age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Aged%20%2865%2B%20years%29
population age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Young%20adult%20%2818-24%20years%29
population age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Adult%20%2825-44%20years%29
population age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Aged%20%2880%2B%20years%29
population age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Middle-aged%20%2845-64%20years%29
population age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Aged%20%2865-79%20years%29

MARS - Molecular Diagnosis and Risk Stratification of Sepsis
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type: Observation
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endpoint URL: catalogue-rdf
data set: Resources
type: Dataset
rdf type: Dataset
membership resource: main_fdp
fdp endpoint: main_fdp
has member relation: metadataCatalog
ldp membership relation: metadataCatalog
hricore: true
id: MARS - Molecular Diagnosis and Risk Stratification of Sepsis
pid: https://doi.org/10.71739/y3wf-hw15
name: MARS - Molecular Diagnosis and Risk Stratification of Sepsis
alternative: MARS
acronym: MARS
type: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/ResourceTypes/name=Biobank
type: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/ResourceTypes/name=Cohort%20study
cohort type: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/CohortStudyTypes/name=Clinical%20cohort
description: MARS is a multicenter prospective cohort of ICU patients aimed at developing new molecular technologies for early diagnosis and risk stratification of sepsis. MARS contains comprehensive clinical data (including admission diagnoses, comorbidities, daily treatments, medications, vital-signs, labs, and microbiology results). In addition, daily prospective adjudication of infection plausibility was performed, according to standardized definitions.
keyword: Heparin
keywords: Heparin
keyword: Pathogen detection
keywords: Pathogen detection
keyword: EDTA
keywords: EDTA
keyword: Prospective
keywords: Prospective
keyword: Citrate
keywords: Citrate
keyword: Biomarkers
keywords: Biomarkers
keyword: Clinical
keywords: Clinical
keyword: Intensive Care
keywords: Intensive Care
keyword: Cohort
keywords: Cohort
keyword: Pneumonia
keywords: Pneumonia
keyword: ICU
keywords: ICU
keyword: Infections
keywords: Infections
keyword: Plasma
keywords: Plasma
keyword: Blood samples
keywords: Blood samples
keyword: Vital signs
keywords: Vital signs
keyword: Biobank
keywords: Biobank
start date: 2011
start year: 2011
design: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/CohortDesigns/name=Longitudinal
provenance: Ongoing prospective cohort and biobank of ICU patients admitted to the UMC Utrecht since 2011. The AMC was a participating center between 2011 and 2013.
design description: Ongoing prospective cohort and biobank of ICU patients admitted to the UMC Utrecht since 2011. The AMC was a participating center between 2011 and 2013.
data collection type: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/CohortCollectionTypes/name=Prospective
subpopulations: MARS - Molecular Diagnosis and Risk Stratification of Sepsis MARS - Molecular Diagnosis and Risk Stratification of Sepsis MARS-1
subpopulations: MARS - Molecular Diagnosis and Risk Stratification of Sepsis MARS - Molecular Diagnosis and Risk Stratification of Sepsis MARS-2A
subpopulations: MARS - Molecular Diagnosis and Risk Stratification of Sepsis MARS - Molecular Diagnosis and Risk Stratification of Sepsis MARS-2B
subpopulations: MARS - Molecular Diagnosis and Risk Stratification of Sepsis MARS - Molecular Diagnosis and Risk Stratification of Sepsis MARS-3
collection events: MARS - Molecular Diagnosis and Risk Stratification of Sepsis MARS - Molecular Diagnosis and Risk Stratification of Sepsis PAX-gene collection AMC
collection events: MARS - Molecular Diagnosis and Risk Stratification of Sepsis MARS - Molecular Diagnosis and Risk Stratification of Sepsis Daily plasma collection UMCU
collection events: MARS - Molecular Diagnosis and Risk Stratification of Sepsis MARS - Molecular Diagnosis and Risk Stratification of Sepsis Daily plasma collection
collection events: MARS - Molecular Diagnosis and Risk Stratification of Sepsis MARS - Molecular Diagnosis and Risk Stratification of Sepsis Daily plasma collection UMCU-3
part of networks: HDSU
number of unique individuals: 17000
number of participants: 17000
countries: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Countries/name=Netherlands%20%28the%29
spatial: NLD
regions: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Regions/name=Utrecht
regions: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Regions/name=Noord-Holland
spatial: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Regions/name=Utrecht
spatial: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Regions/name=Noord-Holland
population age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Adult%20%2818%2B%20years%29
population age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Aged%20%2865%2B%20years%29
population age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Young%20adult%20%2818-24%20years%29

UMBRELLA
type: Resources
type: Observation
type: DirectContainer
endpoint URL: catalogue-rdf
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type: Dataset
rdf type: Dataset
membership resource: main_fdp
fdp endpoint: main_fdp
has member relation: metadataCatalog
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hricore: true
id: UMBRELLA
pid: https://doi.org/10.71739/wd5m-j766
title: 'Utrecht cohort for Multiple BReast cancer intErvention studies and Long-term evaluation' cohort
name: 'Utrecht cohort for Multiple BReast cancer intErvention studies and Long-term evaluation' cohort
alternative: UMBRELLA
acronym: UMBRELLA
type: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/ResourceTypes/name=Cohort%20study
cohort type: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/CohortStudyTypes/name=Clinical%20cohort
landing page: https://www.umcutrecht.nl/nl/wetenschappelijk-onderzoek/umbrella
website: umbrella
description: The prospective, multicenter ‘Utrecht cohort for Multiple BREast cancer intervention studies and Long-term evaluAtion’ (UMBRELLA) cohort, established in 2013, serves as an infrastructure for conducting randomized controlled trials to evaluate effectiveness of (innovative) cancer treatments and survivorship care for breast cancer patients and survivors. UMBRELLA includes patients with histologically proven invasive breast cancer or ductal carcinoma in situ (DCIS) referred for breast cancer treatment in multiple hospitals in the Netherlands. All UMBRELLA cohort participants consent for the collection and use of their clinical data. In addition, cohort participants can also provide consent for the longitudinal collection and use of patient-reported outcomes up to 10 years after enrolment. Last, cohort participants are also asked to provide consent to be randomized into future cohort-based trials following the Trial within Cohorts design. When conducting a cohort-based trial, all UMBRELLA cohort participants are screened for eligibility. Cohort participants assigned to the intervention arm, are offered the intervention, whereas cohort participants assigned to the control arm are not informed about the intervention and remain unaware of the trial. By combining clinical data with (long-term) patient-reported outcomes from a large prospective cohort of breast cancer patients and survivors, it is possible to effectively study a diversity of clinically relevant questions to gain further insights in the effects of breast cancer treatment and its impact on quality of life as well as to evaluate effectiveness of interventions within the breast cancer field.
keyword: Breast cancer, prospective cohort, multicenter, quality of life
keywords: Breast cancer, prospective cohort, multicenter, quality of life
start date: 2013
start year: 2013
design: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/CohortDesigns/name=Longitudinal
provenance: All UMBRELLA cohort participants consent for the collection and use of their clinical data. In addition, cohort participants can also provide consent for the longitudinal collection and use of patient-reported outcomes up to 10 years after enrolment. Last, cohort participants are also asked to provide consent to be randomized into future cohort-based trials following the Trial within Cohorts design. When conducting a cohort-based trial, all UMBRELLA cohort participants are screened for eligibility. Cohort participants assigned to the intervention arm, are offered the intervention, whereas cohort participants assigned to the control arm are not informed about the intervention and remain unaware of the trial.
design description: All UMBRELLA cohort participants consent for the collection and use of their clinical data. In addition, cohort participants can also provide consent for the longitudinal collection and use of patient-reported outcomes up to 10 years after enrolment. Last, cohort participants are also asked to provide consent to be randomized into future cohort-based trials following the Trial within Cohorts design. When conducting a cohort-based trial, all UMBRELLA cohort participants are screened for eligibility. Cohort participants assigned to the intervention arm, are offered the intervention, whereas cohort participants assigned to the control arm are not informed about the intervention and remain unaware of the trial.
data collection type: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/CohortCollectionTypes/name=Prospective
subpopulations: UMBRELLA UMBRELLA participants
collection events: UMBRELLA UMBRELLA Breast cancer
part of networks: HDSU
number of unique individuals: 7700
number of participants: 7700
countries: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Countries/name=Netherlands%20%28the%29
spatial: NLD
regions: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Regions/name=Utrecht
regions: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Regions/name=Overijssel
regions: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Regions/name=Zuid-Holland
spatial: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Regions/name=Utrecht
spatial: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Regions/name=Overijssel
spatial: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Regions/name=Zuid-Holland
minimum typical age: 18
age min: 18
other inclusion criteria: Invasive breast cancer or ductal carcinoma in situ
other exclusion criteria: Patients with limited understanding of the Dutch language and patients under the age of 18 years are ineligible.
organisations involved: UMBRELLA Alrijne Ziekenhuis Leiderdorp
organisations involved: UMBRELLA Ziekenhuis Groep Twente
organisations involved: UMBRELLA UMC Utrecht
publisher: UMBRELLA UMC Utrecht
creator: UMBRELLA Alrijne Ziekenhuis Leiderdorp
creator: UMBRELLA Ziekenhuis Groep Twente
creator: UMBRELLA UMC Utrecht
prelinked: true
linkage options: Netherlands Cancer Registry (NCR) Pathologisch Anatomisch Landelijk Geautomatiseerd Archief (PALGA)
linkage possibility: true
informed consent type: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/InformedConsentTypes/name=Broad%20consent
access rights: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AccessRights/name=Non%20public
access rights: NON PUBLIC
data access conditions: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/DataAccessConditions/name=health%20or%20medical%20or%20biomedical%20research
data use conditions: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/DataUseConditions/name=research%20specific%20restrictions
release type: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/ReleaseTypes/name=Periodically
accrual periodicity: AS NEEDED
publications: UMBRELLA https://doi.org/10.1007/s10549-017-4242-4
theme: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Themes/name=Health
theme: HEAL
applicable legislation: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Legislations/name=Data%20Governance%20Act
applicable legislation: oj
mg_draft: false
mg_insertedOn: 2026-03-11T17:09:09
mg_updatedOn: 2026-03-11T17:09:09

LogoUMBRELLA.jpg
type: SIO_000396
format: http://www.iana.org/assignments/media-types/image/jpeg

Athero-Express
type: Resources
type: Observation
type: DirectContainer
endpoint URL: catalogue-rdf
data set: Resources
type: Dataset
rdf type: Dataset
membership resource: main_fdp
fdp endpoint: main_fdp
has member relation: metadataCatalog
ldp membership relation: metadataCatalog
hricore: true
id: Athero-Express
pid: https://doi.org/10.71739/371b-mg77
title: Athero- and Aneurysm-Express Biobank Studies
name: Athero- and Aneurysm-Express Biobank Studies
alternative: Athero- and AAA-Express
acronym: Athero- and AAA-Express
type: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/ResourceTypes/name=Cohort%20study
type: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/ResourceTypes/name=Registry
type: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/ResourceTypes/name=Biobank
cohort type: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/CohortStudyTypes/name=Clinical%20cohort
cohort type: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/CohortStudyTypes/name=Case%20only
landing page: http://www.atheroexpress.nl
website: www.atheroexpress.nl
description: The Athero-Express Biobank Study (AE) and the Abdominal Aortic Aneurysm-Express Biobank Study (AAA) are two ongoing, prospective biobank studies initiated in 2002 and 2003, respectively. Together, they comprise detailed histological and clinical data from over 4,500 patients who underwent arterial surgery at two Dutch tertiary referral centers. The AE Biobank includes over 3,500 patients who underwent endarterectomy to remove atherosclerotic plaques, predominantly from the carotid and femoral arteries. The AAA Biobank includes over 1,000 patients who underwent open surgical repair of arterial aneurysms, primarily abdominal aortic aneurysms. For both studies, blood and vascular tissue (plaque or aneurysm wall) were collected during surgery and stored at −80℃. Tissue material is routinely processed for standardised (immuno)histochemical analysis, with histological observations performed by the same dedicated technician, ensuring consistency; interobserver analyses have been previously reported. In AE, the following plaque characteristics were quantified or scored: • Macrophages (CD68) and smooth muscle cells (α-actin) as the percentage of field area using computerised analysis. • Intraplaque vessel density (CD34) as the average count per 3 hotspots. • Intraplaque haemorrhage (IPH) was scored as absent/present using hematoxylin and eosin (HE). • Intraplaque fat was defined as < or ≥40% of total plaque area (HE). • Calcification (HE) and collagen content (picrosirius red) were scored as no/minor vs. moderate/heavy staining. • Overall plaque vulnerability was assessed following the method by Verhoeven et al. In AAA, tissue sections were stained using: • HE, EVG (elastin), picrosirius red (collagen), SMA (smooth muscle cells), CD68 (macrophages), CD3 (T cells), CD20 (B cells), CD138 (plasma cells), and von Willebrand factor (vasa vasorum). • Each marker was semiquantitatively scored from 0 to 3 (0: none, 1: minor, 2: moderate, 3: heavy), separately for the intima, media, …
keyword: atherosclerosis
keywords: atherosclerosis
keyword: plaque
keywords: plaque
keyword: aneurysm
keywords: aneurysm
keyword: arterial endarterectomy
keywords: arterial endarterectomy
start date: 2002
start year: 2002
design: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/CohortDesigns/name=Longitudinal
provenance: The Athero-Express Biobank Study (AE) is a longitudinal cross-sectional biobank study collecting blood and atherosclerotic plaque samples from patients undergoing endarterectomy. Clinical data is collected through standardised questionnaires and supplemented by querying electronic health records when needed. Patients are followed up to 3 years after surgery.
design description: The Athero-Express Biobank Study (AE) is a longitudinal cross-sectional biobank study collecting blood and atherosclerotic plaque samples from patients undergoing endarterectomy. Clinical data is collected through standardised questionnaires and supplemented by querying electronic health records when needed. Patients are followed up to 3 years after surgery.
data collection type: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/CohortCollectionTypes/name=Prospective
data collection type: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/CohortCollectionTypes/name=Retrospective
subpopulations: Athero-Express Athero-Express AAA-Express
subpopulations: Athero-Express Athero-Express
collection events: Athero-Express Athero-Express Follow-up
collection events: Athero-Express Athero-Express Baseline
part of networks: HDSU
number of unique individuals: 3500
number of participants: 3500
countries: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Countries/name=Netherlands%20%28the%29
spatial: NLD
population age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Adult%20%2818%2B%20years%29
population age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Aged%20%2865%2B%20years%29
population age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Young%20adult%20%2818-24%20years%29
population age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Adult%20%2825-44%20years%29
population age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Aged%20%2880%2B%20years%29
population age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Middle-aged%20%2845-64%20years%29
population age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Aged%20%2865-79%20years%29
inclusion criteria: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/InclusionExclusionCriteria/name=Health%20status%20inclusion%20criterion
inclusion criteria: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/InclusionExclusionCriteria/name=Hospital%20patient%20inclusion%20criterion
organisations involved: Athero-Express UMC Utrecht
publisher: Athero-Express UMC Utrecht
creator: Athero-Express UMC Utrecht
people involved: Athero-Express Sander van der Laan
contact point: Athero-Express Sander van der Laan
prelinked: false
linkage options: Possibility to link with data from RIVM and CBS.
linkage possibility: true
informed consent type: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/InformedConsentTypes/name=Study%20specific%20consent
access rights: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AccessRights/name=Non%20public
access rights: NON PUBLIC
data access conditions: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/DataAccessConditions/name=health%20or%20medical%20or%20biomedical%20research
data access conditions: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/DataAccessConditions/name=disease%20specific%20research
data use conditions: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/DataUseConditions/name=research%20specific%20restrictions
data use conditions: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/DataUseConditions/name=not%20for%20profit%2C%20non%20commercial%20use%20only
data use conditions: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/DataUseConditions/name=collaboration%20required
data use conditions: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/DataUseConditions/name=geographical%20restriction
data use conditions: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/DataUseConditions/name=return%20to%20database%20or%20resource
data access fee: false
release type: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/ReleaseTypes/name=Closed%20dataset

HDSU
type: Resources
type: Observation
type: DirectContainer
endpoint URL: catalogue-rdf
data set: Resources
type: Catalog
rdf type: Catalog
membership resource: main_fdp
fdp endpoint: main_fdp
has member relation: metadataCatalog
ldp membership relation: metadataCatalog
hricore: true
id: HDSU
title: Health data space Utrecht
name: Health data space Utrecht
type: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/ResourceTypes/name=Catalogue
description: Welkom bij Health Data Space Utrecht, het portaal dat de regio Utrecht verbindt door onderzoekers en professionals samen te brengen om kennis en data te delen.
dataset: ALL11
data resources: ALL11
dataset: UMBRELLA
data resources: UMBRELLA
dataset: MARS - Molecular Diagnosis and Risk Stratification of Sepsis
data resources: MARS - Molecular Diagnosis and Risk Stratification of Sepsis
dataset: VIOOL
data resources: VIOOL
dataset: EPIC-NL
data resources: EPIC-NL
dataset: The TWIN-study
data resources: The TWIN-study
dataset: BioDay
data resources: BioDay
dataset: Athero-Express
data resources: Athero-Express
dataset: ALL10
data resources: ALL10
organisations involved: HDSU UMC Utrecht
organisations involved: HDSU MOLGENIS
publisher: HDSU MOLGENIS
creator: HDSU UMC Utrecht
people involved: HDSU Jutta de Jong
contact point: HDSU Jutta de Jong
access rights: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AccessRights/name=Non%20public
access rights: NON PUBLIC
theme: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Themes/name=Health
theme: HEAL
applicable legislation: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Legislations/name=Data%20Governance%20Act
applicable legislation: oj
mg_draft: false
mg_insertedOn: 2026-03-11T17:09:09
mg_updatedOn: 2026-04-30T14:59:14

VIOOL VIOOL
type: Subpopulations
type: Observation
endpoint URL: catalogue-rdf
data set: Subpopulations
source: VIOOL
resource: VIOOL
title: VIOOL
name: VIOOL
description: The VIOOL study is a prospective observational cohort conducted across three winter seasons (2021–2024; October–April/May) in the Netherlands. Children under 4 years of age were recruited from the community and followed for 16 weeks. Parents recorded daily symptom diaries and collected weekly nasal swabs, regardless of symptoms. Swabs were analyzed by PCR for a broad panel of common respiratory viruses. Its primary objective is to examine interactions between respiratory virus infections in young children. The study was approved by the Medical Ethics Committee of the University Medical Centre Utrecht (UMCU) and registered in the Clinical Trials Register (NL78424.041.21).
keyword: viral interactions
keywords: viral interactions
keyword: respiratory viruses
keywords: respiratory viruses
keyword: healthy children
keywords: healthy children
keyword: population cohort
keywords: population cohort
keyword: coinfections
keywords: coinfections
keyword: acute respiratory illness
keywords: acute respiratory illness
number of unique individuals: 228
number of participants: 228
contact point: VIOOL Patricia Bruijning-Verhagen
publisher: VIOOL UMCU
creator: VIOOL UMCU
theme: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Themes/name=Health
theme: HEAL
access rights: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AccessRights/name=Non%20public
access rights: NON PUBLIC
applicable legislation: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Legislations/name=Data%20Governance%20Act
applicable legislation: oj
mg_draft: false
mg_insertedOn: 2026-03-11T17:09:09
mg_updatedOn: 2026-03-11T17:09:09

MARS - Molecular Diagnosis and Risk Stratification of Sepsis MARS - Molecular Diagnosis and Risk Stratification of Sepsis MARS-1
type: Subpopulations
type: Observation
endpoint URL: catalogue-rdf
data set: Subpopulations
source: MARS - Molecular Diagnosis and Risk Stratification of Sepsis
resource: MARS - Molecular Diagnosis and Risk Stratification of Sepsis
title: MARS - Molecular Diagnosis and Risk Stratification of Sepsis MARS-1
name: MARS - Molecular Diagnosis and Risk Stratification of Sepsis MARS-1
pid: https://catalogue.hdsu.nl/HDSU/collections/MARS%20-%20Molecular%20Diagnosis%20and%20Risk%20Stratification%20of%20Sepsis/subpopulations/MARS%20-%20Molecular%20Diagnosis%20and%20Risk%20Stratification%20…
description: Multi-center phase of the MARS cohort between 2011-2013 in the UMCU and AMC hospitals.
keyword: Heparin
keywords: Heparin
keyword: Pathogen detection
keywords: Pathogen detection
keyword: EDTA
keywords: EDTA
keyword: Prospective
keywords: Prospective
keyword: Citrate
keywords: Citrate
keyword: Biomarkers
keywords: Biomarkers
keyword: Clinical
keywords: Clinical
keyword: Intensive Care
keywords: Intensive Care
keyword: Cohort
keywords: Cohort
keyword: Pneumonia
keywords: Pneumonia
keyword: ICU
keywords: ICU
keyword: Infections
keywords: Infections
keyword: Plasma
keywords: Plasma
keyword: Blood samples
keywords: Blood samples
keyword: Vital signs
keywords: Vital signs
keyword: Biobank
keywords: Biobank
counts: http://catalogue.hdsu.nl/catalogue-rdf/api/rdf/SubpopulationCounts/ageGroup=Adult%20%2818%2B%20years%29&resource=MARS%20-%20Molecular%20Diagnosis%20and%20Risk%20Stratification%20of%20Sepsis&subpopulat…
start date: 2011
inclusion start: 2011
end date: 2013
inclusion end: 2013
age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Adult%20%2818%2B%20years%29
age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Aged%20%2865%2B%20years%29
age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Young%20adult%20%2818-24%20years%29
age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Adult%20%2825-44%20years%29
age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Aged%20%2880%2B%20years%29
age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Middle-aged%20%2845-64%20years%29
age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Aged%20%2865-79%20years%29
main medical condition: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Diseases/name=A41.9%20Sepsis%2C%20unspecified
countries: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Countries/name=Netherlands%20%28the%29
spatial: NLD
regions: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Regions/name=Utrecht
regions: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Regions/name=Noord-Holland
coverage: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Regions/name=Utrecht
coverage: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Regions/name=Noord-Holland
other inclusion criteria: Consecutive adult intensive care patients.
other exclusion criteria: Elective cardiothoracic surgery patients.
contact point: MARS - Molecular Diagnosis and Risk Stratification of Sepsis Olaf Cremer
publisher: MARS - Molecular Diagnosis and Risk Stratification of Sepsis UMCU
creator: MARS - Molecular Diagnosis and Risk Stratification of Sepsis AMC
creator: MARS - Molecular Diagnosis and Risk Stratification of Sepsis UMCU
theme: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Themes/name=Health
theme: HEAL
access rights: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AccessRights/name=Non%20public
access rights: NON PUBLIC
applicable legislation: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Legislations/name=Data%20Governance%20Act
applicable legislation: oj
mg_draft: false
mg_insertedOn: 2026-03-11T17:09:09
mg_updatedOn: 2026-03-11T17:09:09

ALL10 ALL10
type: Subpopulations
type: Observation
endpoint URL: catalogue-rdf
data set: Subpopulations
source: ALL10
resource: ALL10
title: ALL10
name: ALL10
pid: https://catalogue.hdsu.nl/HDSU/collections/ALL10/subpopulations/ALL10
description: Protocol ALL 10, protocol voor diagnostiek en behandeling van kinderen en adolescenten (1-19 jaar) met Acute Lymfatische Leukemie (ALL)
keyword: Acute Lymfatische Leukemie
keywords: Acute Lymfatische Leukemie
number of unique individuals: 778
number of participants: 778
start date: 2004
inclusion start: 2004
end date: 2012
inclusion end: 2012
age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Adolescent%20%2813-17%20years%29
age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Young%20adult%20%2818-24%20years%29
age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Infants%20and%20toddlers%20%282-23%20months%29
age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Child%20%282-12%20years%29
main medical condition: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Diseases/name=C91.6%20Prolymphocytic%20leukaemia%20of%20T-cell%20type
main medical condition: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Diseases/name=C91.0%20Acute%20lymphoblastic%20leukaemia%20%5BALL%5D
countries: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Countries/name=Netherlands%20%28the%29
spatial: NLD
inclusion criteria: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/InclusionExclusionCriteria/name=Age%20group%20inclusion%20criterion
inclusion criteria: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/InclusionExclusionCriteria/name=Health%20status%20inclusion%20criterion
exclusion criteria: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/InclusionExclusionCriteria/name=Age%20group%20inclusion%20criterion
contact point: ALL10 Hester de Groot-Kruseman
publisher: ALL10 pmc
creator: ALL10 pmc
theme: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Themes/name=Health
theme: HEAL
access rights: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AccessRights/name=Non%20public
access rights: NON PUBLIC
applicable legislation: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Legislations/name=Data%20Governance%20Act
applicable legislation: oj
mg_draft: false
mg_insertedOn: 2026-03-11T17:09:09
mg_updatedOn: 2026-03-11T17:09:09

BioDay BioDay Hand eczema
type: Subpopulations
type: Observation
endpoint URL: catalogue-rdf
data set: Subpopulations
source: BioDay
resource: BioDay
title: BioDay Hand eczema
name: BioDay Hand eczema
pid: https://catalogue.hdsu.nl/HDSU/collections/BioDay/subpopulations/BioDay%20Hand%20eczema
description: Hand eczema
keyword: upadacitinib
keywords: upadacitinib
keyword: tralokinumab
keywords: tralokinumab
keyword: lebrikizumab
keywords: lebrikizumab
keyword: daily practice
keywords: daily practice
keyword: registry
keywords: registry
keyword: real-world evidence
keywords: real-world evidence
keyword: biologicals
keywords: biologicals
keyword: multicenter
keywords: multicenter
keyword: JAK inhibitors
keywords: JAK inhibitors
keyword: abrocitinib
keywords: abrocitinib
keyword: baricitinib
keywords: baricitinib
keyword: atopic comorbidities
keywords: atopic comorbidities
keyword: dupilumab
keywords: dupilumab
number of unique individuals: 26
number of participants: 26
start date: 2017
inclusion start: 2017
age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Infant%20%280-23%20months%29
age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Aged%20%2865-79%20years%29
age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Newborn%20%280-1%20months%29
age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Child%20%282-12%20years%29
age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Aged%20%2865%2B%20years%29
age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Adolescent%20%2813-17%20years%29
age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Adult%20%2825-44%20years%29
age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Infants%20and%20toddlers%20%282-23%20months%29
age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Middle-aged%20%2845-64%20years%29
age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Adult%20%2818%2B%20years%29
age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Aged%20%2880%2B%20years%29
age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=All%20ages
age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Young%20adult%20%2818-24%20years%29
main medical condition: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Diseases/name=L20.9%20Atopic%20dermatitis%2C%20unspecified
main medical condition: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Diseases/name=L30.1%20Other%20dermatitis%20-%20Dyshidrosis%20%5Bpompholyx%5D
main medical condition: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Diseases/name=L20.8%20Other%20atopic%20dermatitis
main medical condition: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Diseases/name=L20%20Atopic%20dermatitis
main medical condition: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Diseases/name=L30.9%20Dermatitis%2C%20unspecified
publisher: BioDay UMCU
creator: BioDay Isala Ziekenhuis
creator: BioDay Catharina Ziekenhuis
creator: BioDay Radboudumc
creator: BioDay ZorgSaam
creator: BioDay WKZ
creator: BioDay Bravis
creator: BioDay Diakonessenhuis
creator: BioDay UMCU
creator: BioDay Tergooi
creator: BioDay UMCG
creator: BioDay IJsselland Ziekenhuis
creator: BioDay Nij Smellinghe
creator: BioDay HagaZiekenhuis
creator: BioDay Medisch Centrum Leeuwarden
creator: BioDay Antonius
creator: BioDay St. Antonius Ziekenhuis
creator: BioDay Meander
creator: BioDay Tjongerschans
creator: BioDay MUMC
creator: BioDay Spaarne Gasthuis

ALL11 ALL11
type: Subpopulations
type: Observation
endpoint URL: catalogue-rdf
data set: Subpopulations
source: ALL11
resource: ALL11
title: ALL11
name: ALL11
pid: https://catalogue.hdsu.nl/HDSU/collections/ALL11/subpopulations/ALL11
description: PROTOCOL ALL 11: Treatment study protocol of the Dutch Childhood Oncology Group for Children and adolescents (1-19 year) with newly diagnosed acute lymphoblastic leukemia
keyword: Acute Lymfatische Leukemie
keywords: Acute Lymfatische Leukemie
number of unique individuals: 887
number of participants: 887
start date: 2012
inclusion start: 2012
end date: 2020
inclusion end: 2020
age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Adolescent%20%2813-17%20years%29
age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Young%20adult%20%2818-24%20years%29
age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Infants%20and%20toddlers%20%282-23%20months%29
age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Child%20%282-12%20years%29
main medical condition: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Diseases/name=C91.6%20Prolymphocytic%20leukaemia%20of%20T-cell%20type
main medical condition: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Diseases/name=C91.0%20Acute%20lymphoblastic%20leukaemia%20%5BALL%5D
countries: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Countries/name=Netherlands%20%28the%29
spatial: NLD
exclusion criteria: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/InclusionExclusionCriteria/name=Age%20group%20inclusion%20criterion
contact point: ALL11 Hester de Groot-Kruseman
publisher: ALL11 PMC
creator: ALL11 PMC
theme: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Themes/name=Health
theme: HEAL
access rights: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AccessRights/name=Non%20public
access rights: NON PUBLIC
applicable legislation: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Legislations/name=Data%20Governance%20Act
applicable legislation: oj
mg_draft: false
mg_insertedOn: 2026-03-11T17:09:09
mg_updatedOn: 2026-03-11T17:09:09

MARS - Molecular Diagnosis and Risk Stratification of Sepsis MARS - Molecular Diagnosis and Risk Stratification of Sepsis MARS-2B
type: Subpopulations
type: Observation
endpoint URL: catalogue-rdf
data set: Subpopulations
source: MARS - Molecular Diagnosis and Risk Stratification of Sepsis
resource: MARS - Molecular Diagnosis and Risk Stratification of Sepsis
title: MARS - Molecular Diagnosis and Risk Stratification of Sepsis MARS-2B
name: MARS - Molecular Diagnosis and Risk Stratification of Sepsis MARS-2B
pid: https://catalogue.hdsu.nl/HDSU/collections/MARS%20-%20Molecular%20Diagnosis%20and%20Risk%20Stratification%20of%20Sepsis/subpopulations/MARS%20-%20Molecular%20Diagnosis%20and%20Risk%20Stratification%20…
description: Mono-center phase of the MARS cohort between 2020-2022 in the UMCU hospital.
keyword: Heparin
keywords: Heparin
keyword: Pathogen detection
keywords: Pathogen detection
keyword: EDTA
keywords: EDTA
keyword: Prospective
keywords: Prospective
keyword: Citrate
keywords: Citrate
keyword: Biomarkers
keywords: Biomarkers
keyword: Clinical
keywords: Clinical
keyword: Intensive Care
keywords: Intensive Care
keyword: Cohort
keywords: Cohort
keyword: Pneumonia
keywords: Pneumonia
keyword: ICU
keywords: ICU
keyword: Infections
keywords: Infections
keyword: Plasma
keywords: Plasma
keyword: Blood samples
keywords: Blood samples
keyword: Vital signs
keywords: Vital signs
keyword: Biobank
keywords: Biobank
start date: 2020
inclusion start: 2020
end date: 2022
inclusion end: 2022
age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Adult%20%2818%2B%20years%29
age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Aged%20%2865%2B%20years%29
age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Young%20adult%20%2818-24%20years%29
age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Adult%20%2825-44%20years%29
age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Aged%20%2880%2B%20years%29
age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Middle-aged%20%2845-64%20years%29
age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Aged%20%2865-79%20years%29
main medical condition: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Diseases/name=A41.9%20Sepsis%2C%20unspecified
countries: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Countries/name=Netherlands%20%28the%29
spatial: NLD
regions: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Regions/name=Utrecht
coverage: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Regions/name=Utrecht
other inclusion criteria: Consecutive adult intensive care patients with an expected ICU length of stay of more than 48 hours.
other exclusion criteria: Elective cardiothoracic surgery patients.
contact point: MARS - Molecular Diagnosis and Risk Stratification of Sepsis Olaf Cremer
publisher: MARS - Molecular Diagnosis and Risk Stratification of Sepsis UMCU
creator: MARS - Molecular Diagnosis and Risk Stratification of Sepsis AMC
creator: MARS - Molecular Diagnosis and Risk Stratification of Sepsis UMCU
theme: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Themes/name=Health
theme: HEAL
access rights: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AccessRights/name=Non%20public
access rights: NON PUBLIC
applicable legislation: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Legislations/name=Data%20Governance%20Act
applicable legislation: oj
mg_draft: false
mg_insertedOn: 2026-03-11T17:09:09
mg_updatedOn: 2026-03-11T17:09:09

MARS - Molecular Diagnosis and Risk Stratification of Sepsis MARS - Molecular Diagnosis and Risk Stratification of Sepsis MARS-3
type: Subpopulations
type: Observation
endpoint URL: catalogue-rdf
data set: Subpopulations
source: MARS - Molecular Diagnosis and Risk Stratification of Sepsis
resource: MARS - Molecular Diagnosis and Risk Stratification of Sepsis
title: MARS - Molecular Diagnosis and Risk Stratification of Sepsis MARS-3
name: MARS - Molecular Diagnosis and Risk Stratification of Sepsis MARS-3
pid: https://catalogue.hdsu.nl/HDSU/collections/MARS%20-%20Molecular%20Diagnosis%20and%20Risk%20Stratification%20of%20Sepsis/subpopulations/MARS%20-%20Molecular%20Diagnosis%20and%20Risk%20Stratification%20…
description: Mono-center phase of the MARS cohort between 2023 and present in the UMCU hospital.
keyword: Heparin
keywords: Heparin
keyword: Pathogen detection
keywords: Pathogen detection
keyword: EDTA
keywords: EDTA
keyword: Prospective
keywords: Prospective
keyword: Citrate
keywords: Citrate
keyword: Biomarkers
keywords: Biomarkers
keyword: Clinical
keywords: Clinical
keyword: Intensive Care
keywords: Intensive Care
keyword: Cohort
keywords: Cohort
keyword: Pneumonia
keywords: Pneumonia
keyword: ICU
keywords: ICU
keyword: Infections
keywords: Infections
keyword: Plasma
keywords: Plasma
keyword: Blood samples
keywords: Blood samples
keyword: Vital signs
keywords: Vital signs
keyword: Biobank
keywords: Biobank
start date: 2023
inclusion start: 2023
age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Adult%20%2818%2B%20years%29
age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Aged%20%2865%2B%20years%29
age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Young%20adult%20%2818-24%20years%29
age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Adult%20%2825-44%20years%29
age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Aged%20%2880%2B%20years%29
age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Middle-aged%20%2845-64%20years%29
age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Aged%20%2865-79%20years%29
main medical condition: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Diseases/name=A41.9%20Sepsis%2C%20unspecified
countries: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Countries/name=Netherlands%20%28the%29
spatial: NLD
regions: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Regions/name=Utrecht
coverage: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Regions/name=Utrecht
other inclusion criteria: Consecutive adult intensive care patients with an expected ICU length of stay of more than 48 hours.
other exclusion criteria: Elective cardiothoracic surgery patients.
contact point: MARS - Molecular Diagnosis and Risk Stratification of Sepsis Olaf Cremer
publisher: MARS - Molecular Diagnosis and Risk Stratification of Sepsis UMCU
creator: MARS - Molecular Diagnosis and Risk Stratification of Sepsis AMC
creator: MARS - Molecular Diagnosis and Risk Stratification of Sepsis UMCU
theme: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Themes/name=Health
theme: HEAL
access rights: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AccessRights/name=Non%20public
access rights: NON PUBLIC
applicable legislation: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Legislations/name=Data%20Governance%20Act
applicable legislation: oj
mg_draft: false
mg_insertedOn: 2026-03-11T17:09:09
mg_updatedOn: 2026-03-11T17:09:09

BioDay BioDay Prurigo nodularis
type: Subpopulations
type: Observation
endpoint URL: catalogue-rdf
data set: Subpopulations
source: BioDay
resource: BioDay
title: BioDay Prurigo nodularis
name: BioDay Prurigo nodularis
pid: https://catalogue.hdsu.nl/HDSU/collections/BioDay/subpopulations/BioDay%20Prurigo%20nodularis
description: Prurigo nodularis
keyword: atopic comorbidities
keywords: atopic comorbidities
keyword: lebrikizumab
keywords: lebrikizumab
keyword: abrocitinib
keywords: abrocitinib
keyword: prurigo nodularis
keywords: prurigo nodularis
keyword: biologicals
keywords: biologicals
keyword: JAK inhibitors
keywords: JAK inhibitors
keyword: baricitinib
keywords: baricitinib
keyword: daily practice
keywords: daily practice
keyword: registry
keywords: registry
keyword: dupilumab
keywords: dupilumab
keyword: tralokinumab
keywords: tralokinumab
keyword: upadacitinib
keywords: upadacitinib
keyword: multicenter
keywords: multicenter
keyword: real-world evidence
keywords: real-world evidence
number of unique individuals: 73
number of participants: 73
start date: 2023
inclusion start: 2023
age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Adult%20%2818%2B%20years%29
age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Aged%20%2865%2B%20years%29
age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Young%20adult%20%2818-24%20years%29
age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Adult%20%2825-44%20years%29
age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Aged%20%2880%2B%20years%29
age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Middle-aged%20%2845-64%20years%29
age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Aged%20%2865-79%20years%29
main medical condition: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Diseases/name=L28.1%20Prurigo%20nodularis
main medical condition: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Diseases/name=L20.0%20Atopic%20dermatitis%20-%20Besnier%20prurigo
publisher: BioDay UMCU
creator: BioDay Isala Ziekenhuis
creator: BioDay Catharina Ziekenhuis
creator: BioDay Radboudumc
creator: BioDay ZorgSaam
creator: BioDay WKZ
creator: BioDay Bravis
creator: BioDay Diakonessenhuis
creator: BioDay UMCU
creator: BioDay Tergooi
creator: BioDay UMCG
creator: BioDay IJsselland Ziekenhuis
creator: BioDay Nij Smellinghe
creator: BioDay HagaZiekenhuis
creator: BioDay Medisch Centrum Leeuwarden
creator: BioDay Antonius
creator: BioDay St. Antonius Ziekenhuis
creator: BioDay Meander
creator: BioDay Tjongerschans
creator: BioDay MUMC
creator: BioDay Spaarne Gasthuis
theme: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Themes/name=Health
theme: HEAL
access rights: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AccessRights/name=Non%20public
access rights: NON PUBLIC
applicable legislation: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Legislations/name=Data%20Governance%20Act
applicable legislation: oj
mg_draft: false

EPIC-NL EPIC-NL Prospect-EPIC
type: Subpopulations
type: Observation
endpoint URL: catalogue-rdf
data set: Subpopulations
source: EPIC-NL
resource: EPIC-NL
title: EPIC-NL Prospect-EPIC
name: EPIC-NL Prospect-EPIC
pid: https://catalogue.hdsu.nl/HDSU/collections/EPIC-NL/subpopulations/EPIC-NL%20Prospect-EPIC
description: women aged 49–70 years from the breast cancer screening programme in Utrecht and its surroundings
keyword: lifestyle
keywords: lifestyle
keyword: cancer
keywords: cancer
keyword: mortality
keywords: mortality
keyword: bloodsamples
keywords: bloodsamples
keyword: morbidity
keywords: morbidity
keyword: diabetes
keywords: diabetes
keyword: nutrition
keywords: nutrition
keyword: chronic disease
keywords: chronic disease
keyword: cardiovascular disease
keywords: cardiovascular disease
keyword: environmental exposure
keywords: environmental exposure
keyword: cause of death
keywords: cause of death
number of unique individuals: 17357
number of participants: 17357
start date: 1993
inclusion start: 1993
end date: 1997
inclusion end: 1997
age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Aged%20%2865-79%20years%29
age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Middle-aged%20%2845-64%20years%29
countries: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Countries/name=Netherlands%20%28the%29
spatial: NLD
regions: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Regions/name=Utrecht
coverage: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Regions/name=Utrecht
other inclusion criteria: women aged 49-70
contact point: EPIC-NL EPIC-NL Study team
publisher: EPIC-NL UMCU
creator: EPIC-NL RIVM
creator: EPIC-NL UMCU
theme: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Themes/name=Health
theme: HEAL
access rights: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AccessRights/name=Non%20public
access rights: NON PUBLIC
applicable legislation: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Legislations/name=Data%20Governance%20Act
applicable legislation: oj
mg_draft: false
mg_insertedOn: 2026-03-11T17:09:09
mg_updatedOn: 2026-03-11T17:09:09

The TWIN-study Twins
type: Subpopulations
type: Observation
endpoint URL: catalogue-rdf
data set: Subpopulations
source: The TWIN-study
resource: The TWIN-study
title: Twins
name: Twins
pid: https://catalogue.hdsu.nl/HDSU/collections/The%20TWIN-study/subpopulations/Twins
description: IBD concordant twins or multiples, IBD disconcordant twins or multiples, IBD unaffected controls, preferably twins or multiples
keyword: Crohn's disease
keywords: Crohn's disease
keyword: multiples
keywords: multiples
keyword: twins
keywords: twins
keyword: IBD
keywords: IBD
keyword: ulcerative colitis
keywords: ulcerative colitis
number of unique individuals: 450
number of participants: 450
start date: 2017
inclusion start: 2017
age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Young%20adult%20%2818-24%20years%29
age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Aged%20%2865%2B%20years%29
age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Adult%20%2818%2B%20years%29
age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Adolescent%20%2813-17%20years%29
age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Adult%20%2825-44%20years%29
age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Aged%20%2865-79%20years%29
age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Aged%20%2880%2B%20years%29
age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Middle-aged%20%2845-64%20years%29
minimum typical age: 16
age min: 16
main medical condition: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Diseases/name=K90.9%20Intestinal%20malabsorption%2C%20unspecified
main medical condition: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Diseases/name=K60.3%20Anal%20fistula
main medical condition: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Diseases/name=K62.1%20Other%20diseases%20of%20anus%20and%20rectum%20-%20Rectal%20polyp
main medical condition: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Diseases/name=K57.3%20Diverticular%20disease%20of%20large%20intestine%20without%20perforation%20or%20abscess
main medical condition: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Diseases/name=K52.9%20Noninfective%20gastroenteritis%20and%20colitis%2C%20unspecified
main medical condition: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Diseases/name=K56.7%20Ileus%2C%20unspecified
main medical condition: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Diseases/name=K61.1%20Rectal%20abscess
main medical condition: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Diseases/name=K51%20Ulcerative%20colitis
main medical condition: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Diseases/name=K92.2%20Other%20diseases%20of%20digestive%20system%20-%20Gastrointestinal%20haemorrhage%2C%20unspecified
main medical condition: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Diseases/name=K50.9%20Crohn%20disease%2C%20unspecified
main medical condition: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Diseases/name=K52.8%20Other%20specified%20noninfective%20gastroenteritis%20and%20colitis
main medical condition: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Diseases/name=K91.4%20Postprocedural%20disorders%20of%20digestive%20system%2C%20not%20elsewhere%20classified%20-%20Colostomy%20and%20enterostomy%20…
main medical condition: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Diseases/name=K55.9%20Vascular%20disorder%20of%20intestine%2C%20unspecified
main medical condition: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Diseases/name=K90.4%20Malabsorption%20due%20to%20intolerance%2C%20not%20elsewhere%20classified
main medical condition: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Diseases/name=K93%20Disorders%20of%20other%20digestive%20organs%20in%20diseases%20classified%20elsewhere
main medical condition: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Diseases/name=K59.9%20Functional%20intestinal%20disorder%2C%20unspecified
main medical condition: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Diseases/name=K59.8%20Other%20specified%20functional%20intestinal%20disorders
main medical condition: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Diseases/name=K64.2%20Third%20degree%20haemorrhoids
main medical condition: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Diseases/name=K56.0%20Paralytic%20ileus
main medical condition: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Diseases/name=K60.0%20Acute%20anal%20fissure
main medical condition: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Diseases/name=K92.8%20Other%20specified%20diseases%20of%20digestive%20system
main medical condition: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Diseases/name=K64.8%20Other%20specified%20haemorrhoids
main medical condition: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Diseases/name=K59%20Other%20functional%20intestinal%20disorders
main medical condition: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Diseases/name=K91.3%20Postprocedural%20disorders%20of%20digestive%20system%2C%20not%20elsewhere%20classified%20-%20Postoperative%20intestinal%20obs…
main medical condition: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Diseases/name=K57.8%20Diverticular%20disease%20of%20intestine%2C%20part%20unspecified%2C%20with%20perforation%20and%20abscess
main medical condition: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Diseases/name=K63.4%20Other%20diseases%20of%20intestine%20-%20Enteroptosis
main medical condition: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Diseases/name=K60.2%20Anal%20fissure%2C%20unspecified
main medical condition: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Diseases/name=K52.2%20Allergic%20and%20dietetic%20gastroenteritis%20and%20colitis
main medical condition: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Diseases/name=K63.5%20Polyp%20of%20colon
main medical condition: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Diseases/name=K90%20Intestinal%20malabsorption
main medical condition: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Diseases/name=K93.1%20Megacolon%20in%20Chagas%20disease
main medical condition: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Diseases/name=K93.8%20Disorders%20of%20other%20specified%20digestive%20organs%20in%20diseases%20classified%20elsewhere
main medical condition: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Diseases/name=K92%20Other%20diseases%20of%20digestive%20system
main medical condition: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Diseases/name=K61.4%20Intrasphincteric%20abscess
main medical condition: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Diseases/name=K59.4%20Other%20functional%20intestinal%20disorders%20-%20Anal%20spasm
main medical condition: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Diseases/name=K56.5%20Intestinal%20adhesions%20%5Bbands%5D%20with%20obstruction
main medical condition: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Diseases/name=K60%20Fissure%20and%20fistula%20of%20anal%20and%20rectal%20regions
main medical condition: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Diseases/name=K63.3%20Ulcer%20of%20intestine
main medical condition: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Diseases/name=K64.5%20Perianal%20venous%20thrombosis
main medical condition: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Diseases/name=K50.0%20Crohn%20disease%20of%20small%20intestine
main medical condition: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Diseases/name=K91.2%20Postsurgical%20malabsorption%2C%20not%20elsewhere%20classified
main medical condition: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Diseases/name=K90.0%20Intestinal%20malabsorption%20-%20Coeliac%20disease
main medical condition: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Diseases/name=K51.2%20Ulcerative%20%28chronic%29%20proctitis
main medical condition: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Diseases/name=K52.0%20Gastroenteritis%20and%20colitis%20due%20to%20radiation
main medical condition: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Diseases/name=K56.2%20Paralytic%20ileus%20and%20intestinal%20obstruction%20without%20hernia%20-%20Volvulus

UMBRELLA UMBRELLA participants
type: Subpopulations
type: Observation
endpoint URL: catalogue-rdf
data set: Subpopulations
source: UMBRELLA
resource: UMBRELLA
title: UMBRELLA participants
name: UMBRELLA participants
description: Patients with invasive breast cancer and ductal carcinoma in situ (DCIS).
keyword: Breast cancer, prospective cohort, multicenter, quality of life
keywords: Breast cancer, prospective cohort, multicenter, quality of life
number of unique individuals: 7700
number of participants: 7700
start date: 2013
inclusion start: 2013
main medical condition: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Diseases/name=C17.8%20Malignant%20neoplasm%20of%20small%20intestine%20-%20Overlapping%20lesion%20of%20small%20intestine
main medical condition: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Diseases/name=C79.7%20Secondary%20malignant%20neoplasm%20of%20adrenal%20gland
main medical condition: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Diseases/name=C76%20Malignant%20neoplasm%20of%20other%20and%20ill-defined%20sites
main medical condition: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Diseases/name=D02.4%20Respiratory%20system%2C%20unspecified
main medical condition: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Diseases/name=C69.2%20Malignant%20neoplasm%20of%20eye%20and%20adnexa%20-%20Retina
main medical condition: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Diseases/name=C11%20Malignant%20neoplasm%20of%20nasopharynx
main medical condition: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Diseases/name=C05.0%20Malignant%20neoplasm%20of%20palate%20-%20Hard%20palate
main medical condition: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Diseases/name=C77.0%20Secondary%20and%20unspecified%20malignant%20neoplasm%20of%20lymph%20nodes%20-%20Lymph%20nodes%20of%20head%2C%20face%20and%20n…
main medical condition: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Diseases/name=C34.1%20Malignant%20neoplasm%20of%20bronchus%20and%20lung%20-%20Upper%20lobe%2C%20bronchus%20or%20lung
main medical condition: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Diseases/name=D02.1%20Carcinoma%20in%20situ%20of%20middle%20ear%20and%20respiratory%20system%20-%20Trachea
main medical condition: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Diseases/name=C53.1%20Malignant%20neoplasm%20of%20cervix%20uteri%20-%20Exocervix
main medical condition: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Diseases/name=C00.3%20Malignant%20neoplasm%20of%20lip%20-%20Upper%20lip%2C%20inner%20aspect
main medical condition: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Diseases/name=D02.3%20Other%20parts%20of%20respiratory%20system
main medical condition: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Diseases/name=D00-D09%20In%20situ%20neoplasms
main medical condition: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Diseases/name=C92.7%20Other%20myeloid%20leukaemia
main medical condition: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Diseases/name=D01.9%20Digestive%20organ%2C%20unspecified
main medical condition: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Diseases/name=C81.1%20Nodular%20sclerosis%20%28classical%29%20Hodgkin%20lymphoma
main medical condition: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Diseases/name=C21.2%20Malignant%20neoplasm%20of%20anus%20and%20anal%20canal%20-%20Cloacogenic%20zone
main medical condition: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Diseases/name=C50.0%20Malignant%20neoplasm%20of%20breast%20-%20Nipple%20and%20areola
main medical condition: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Diseases/name=C30.1%20Malignant%20neoplasm%20of%20nasal%20cavity%20and%20middle%20ear%20-%20Middle%20ear
main medical condition: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Diseases/name=C48.2%20Malignant%20neoplasm%20of%20retroperitoneum%20and%20peritoneum%20-%20Peritoneum%2C%20unspecified
main medical condition: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Diseases/name=C62.1%20Malignant%20neoplasm%20of%20testis%20-%20Descended%20testis
main medical condition: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Diseases/name=D03.9%20Melanoma%20in%20situ%2C%20unspecified
main medical condition: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Diseases/name=C58%20Malignant%20neoplasm%20of%20placenta
main medical condition: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Diseases/name=C46.3%20Kaposi%20sarcoma%20of%20lymph%20nodes
main medical condition: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Diseases/name=C82.0%20Follicular%20lymphoma%20grade%20I
main medical condition: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Diseases/name=C93%20Monocytic%20leukaemia
main medical condition: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Diseases/name=C04.9%20Malignant%20neoplasm%20of%20floor%20of%20mouth%20-%20Floor%20of%20mouth%2C%20unspecified
main medical condition: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Diseases/name=C44.9%20Malignant%20neoplasm%20of%20skin%2C%20unspecified
main medical condition: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Diseases/name=C56%20Malignant%20neoplasm%20of%20ovary
main medical condition: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Diseases/name=C72.5%20Malignant%20neoplasm%20of%20spinal%20cord%2C%20cranial%20nerves%20and%20other%20parts%20of%20central%20nervous%20system%20-%2…
main medical condition: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Diseases/name=D07.1%20Carcinoma%20in%20situ%20of%20other%20and%20unspecified%20genital%20organs%20-%20Vulva
main medical condition: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Diseases/name=C60%20Malignant%20neoplasm%20of%20penis
main medical condition: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Diseases/name=C76.0%20Malignant%20neoplasm%20of%20other%20and%20ill-defined%20sites%20-%20Head%2C%20face%20and%20neck
main medical condition: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Diseases/name=D03.2%20Melanoma%20in%20situ%20of%20ear%20and%20external%20auricular%20canal
main medical condition: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Diseases/name=C85.1%20B-cell%20lymphoma%2C%20unspecified
main medical condition: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Diseases/name=C92.2%20Atypical%20chronic%20myeloid%20leukaemia%2C%20BCR%2FABL-%20negative
main medical condition: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Diseases/name=C67.5%20Malignant%20neoplasm%20of%20bladder%20-%20Bladder%20neck
main medical condition: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Diseases/name=C10.4%20Malignant%20neoplasm%20of%20oropharynx%20-%20Branchial%20cleft
main medical condition: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Diseases/name=D09.9%20Carcinoma%20in%20situ%2C%20unspecified
main medical condition: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Diseases/name=C79.2%20Secondary%20malignant%20neoplasm%20of%20skin
main medical condition: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Diseases/name=C49.9%20Malignant%20neoplasm%20of%20other%20connective%20and%20soft%20tissue%20-%20Connective%20and%20soft%20tissue%2C%20unspecified
main medical condition: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Diseases/name=C16.9%20Malignant%20neoplasm%20of%20stomach%20-%20Stomach%2C%20unspecified
main medical condition: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Diseases/name=C71.6%20Malignant%20neoplasm%20of%20brain%20-%20Cerebellum
main medical condition: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Diseases/name=D01.3%20Anus%20and%20anal%20canal
main medical condition: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Diseases/name=C10.0%20Malignant%20neoplasm%20of%20oropharynx%20-%20Vallecula
main medical condition: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Diseases/name=D09.3%20Thyroid%20and%20other%20endocrine%20glands
main medical condition: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Diseases/name=C70.1%20Malignant%20neoplasm%20of%20meninges%20-%20Spinal%20meninges
main medical condition: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Diseases/name=C72.0%20Malignant%20neoplasm%20of%20spinal%20cord%2C%20cranial%20nerves%20and%20other%20parts%20of%20central%20nervous%20system%20-%2…
main medical condition: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Diseases/name=C15-C26%20Malignant%20neoplasms%20of%20digestive%20organs
main medical condition: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Diseases/name=D01.7%20Other%20specified%20digestive%20organs
main medical condition: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Diseases/name=C76.8%20Malignant%20neoplasm%20of%20other%20and%20ill-defined%20sites%20-%20Overlapping%20lesion%20of%20other%20and%20ill-defined%20s…
main medical condition: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Diseases/name=C74.9%20Malignant%20neoplasm%20of%20adrenal%20gland%20-%20Adrenal%20gland%2C%20unspecified
main medical condition: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Diseases/name=C26%20Malignant%20neoplasm%20of%20other%20and%20ill-defined%20digestive%20organs
main medical condition: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Diseases/name=D03.0%20Melanoma%20in%20situ%20of%20lip
main medical condition: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Diseases/name=C91%20Lymphoid%20leukaemia
main medical condition: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Diseases/name=C44%20Other%20malignant%20neoplasms%20of%20skin
main medical condition: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Diseases/name=C82.3%20Follicular%20lymphoma%20grade%20IIIa
main medical condition: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Diseases/name=C46.2%20Kaposi%20sarcoma%20of%20palate
main medical condition: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Diseases/name=C41.2%20Malignant%20neoplasm%20of%20bone%20and%20articular%20cartilage%20of%20other%20and%20unspecified%20sites%20-%20Vertebral%20col…
main medical condition: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Diseases/name=C03%20Malignant%20neoplasm%20of%20gum
main medical condition: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Diseases/name=C47%20Malignant%20neoplasm%20of%20peripheral%20nerves%20and%20autonomic%20nervous%20system
main medical condition: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Diseases/name=C49.0%20Malignant%20neoplasm%20of%20other%20connective%20and%20soft%20tissue%20-%20Connective%20and%20soft%20tissue%20of%20head%2C%20…
main medical condition: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Diseases/name=C93.3%20Juvenile%20myelomonocytic%20leukaemia

EPIC-NL EPIC-NL MORGEN-EPIC
type: Subpopulations
type: Observation
endpoint URL: catalogue-rdf
data set: Subpopulations
source: EPIC-NL
resource: EPIC-NL
title: EPIC-NL MORGEN-EPIC
name: EPIC-NL MORGEN-EPIC
pid: https://catalogue.hdsu.nl/HDSU/collections/EPIC-NL/subpopulations/EPIC-NL%20MORGEN-EPIC
description: A randomly selected sample of men and women from the Dutch population aged 20–59 years in three cities in the Netherlands (Amsterdam, Doetinchem, and Maastricht).
keyword: lifestyle
keywords: lifestyle
keyword: cancer
keywords: cancer
keyword: mortality
keywords: mortality
keyword: bloodsamples
keywords: bloodsamples
keyword: morbidity
keywords: morbidity
keyword: diabetes
keywords: diabetes
keyword: nutrition
keywords: nutrition
keyword: chronic disease
keywords: chronic disease
keyword: cardiovascular disease
keywords: cardiovascular disease
keyword: environmental exposure
keywords: environmental exposure
keyword: cause of death
keywords: cause of death
number of unique individuals: 22654
number of participants: 22654
start date: 1993
inclusion start: 1993
end date: 1997
inclusion end: 1997
age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Middle-aged%20%2845-64%20years%29
age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Adult%20%2825-44%20years%29
age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Young%20adult%20%2818-24%20years%29
countries: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Countries/name=Netherlands%20%28the%29
spatial: NLD
regions: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Regions/name=Noord-Holland
regions: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Regions/name=Limburg
regions: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Regions/name=Gelderland
coverage: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Regions/name=Noord-Holland
coverage: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Regions/name=Limburg
coverage: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Regions/name=Gelderland
other inclusion criteria: age 20-59
contact point: EPIC-NL EPIC-NL Study team
publisher: EPIC-NL UMCU
creator: EPIC-NL RIVM
creator: EPIC-NL UMCU
theme: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Themes/name=Health
theme: HEAL
access rights: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AccessRights/name=Non%20public
access rights: NON PUBLIC
applicable legislation: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Legislations/name=Data%20Governance%20Act
applicable legislation: oj
mg_draft: false
mg_insertedOn: 2026-03-11T17:09:09
mg_updatedOn: 2026-03-11T17:09:09

BioDay BioDay Atopic dermatitis
type: Subpopulations
type: Observation
endpoint URL: catalogue-rdf
data set: Subpopulations
source: BioDay
resource: BioDay
title: BioDay Atopic dermatitis
name: BioDay Atopic dermatitis
pid: https://catalogue.hdsu.nl/HDSU/collections/BioDay/subpopulations/BioDay%20Atopic%20dermatitis
description: Atopic dermatitis
keyword: atopic comorbidities
keywords: atopic comorbidities
keyword: lebrikizumab
keywords: lebrikizumab
keyword: abrocitinib
keywords: abrocitinib
keyword: biologicals
keywords: biologicals
keyword: JAK inhibitors
keywords: JAK inhibitors
keyword: baricitinib
keywords: baricitinib
keyword: atopic dermatitis
keywords: atopic dermatitis
keyword: daily practice
keywords: daily practice
keyword: registry
keywords: registry
keyword: dupilumab
keywords: dupilumab
keyword: tralokinumab
keywords: tralokinumab
keyword: upadacitinib
keywords: upadacitinib
keyword: multicenter
keywords: multicenter
keyword: real-world evidence
keywords: real-world evidence
number of unique individuals: 2173
number of participants: 2173
start date: 2017
inclusion start: 2017
age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Infant%20%280-23%20months%29
age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Aged%20%2865-79%20years%29
age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Newborn%20%280-1%20months%29
age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Child%20%282-12%20years%29
age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Aged%20%2865%2B%20years%29
age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Adolescent%20%2813-17%20years%29
age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Adult%20%2825-44%20years%29
age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Infants%20and%20toddlers%20%282-23%20months%29
age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Middle-aged%20%2845-64%20years%29
age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Adult%20%2818%2B%20years%29
age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Aged%20%2880%2B%20years%29
age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=All%20ages
age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Young%20adult%20%2818-24%20years%29
main medical condition: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Diseases/name=L20.9%20Atopic%20dermatitis%2C%20unspecified
main medical condition: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Diseases/name=L20%20Atopic%20dermatitis
main medical condition: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Diseases/name=L20.8%20Other%20atopic%20dermatitis
publisher: BioDay UMCU
creator: BioDay Isala Ziekenhuis
creator: BioDay Catharina Ziekenhuis
creator: BioDay Radboudumc
creator: BioDay ZorgSaam
creator: BioDay WKZ
creator: BioDay Bravis
creator: BioDay Diakonessenhuis
creator: BioDay UMCU
creator: BioDay Tergooi
creator: BioDay UMCG
creator: BioDay IJsselland Ziekenhuis
creator: BioDay Nij Smellinghe
creator: BioDay HagaZiekenhuis
creator: BioDay Medisch Centrum Leeuwarden
creator: BioDay Antonius
creator: BioDay St. Antonius Ziekenhuis
creator: BioDay Meander
creator: BioDay Tjongerschans
creator: BioDay MUMC
creator: BioDay Spaarne Gasthuis

MARS - Molecular Diagnosis and Risk Stratification of Sepsis MARS - Molecular Diagnosis and Risk Stratification of Sepsis MARS-2A
type: Subpopulations
type: Observation
endpoint URL: catalogue-rdf
data set: Subpopulations
source: MARS - Molecular Diagnosis and Risk Stratification of Sepsis
resource: MARS - Molecular Diagnosis and Risk Stratification of Sepsis
title: MARS - Molecular Diagnosis and Risk Stratification of Sepsis MARS-2A
name: MARS - Molecular Diagnosis and Risk Stratification of Sepsis MARS-2A
pid: https://catalogue.hdsu.nl/HDSU/collections/MARS%20-%20Molecular%20Diagnosis%20and%20Risk%20Stratification%20of%20Sepsis/subpopulations/MARS%20-%20Molecular%20Diagnosis%20and%20Risk%20Stratification%20…
description: Mono-center phase of the MARS cohort between 2013-2022 in the UMCU hospital.
keyword: Heparin
keywords: Heparin
keyword: Pathogen detection
keywords: Pathogen detection
keyword: EDTA
keywords: EDTA
keyword: Prospective
keywords: Prospective
keyword: Citrate
keywords: Citrate
keyword: Biomarkers
keywords: Biomarkers
keyword: Clinical
keywords: Clinical
keyword: Intensive Care
keywords: Intensive Care
keyword: Cohort
keywords: Cohort
keyword: Pneumonia
keywords: Pneumonia
keyword: ICU
keywords: ICU
keyword: Infections
keywords: Infections
keyword: Plasma
keywords: Plasma
keyword: Blood samples
keywords: Blood samples
keyword: Vital signs
keywords: Vital signs
keyword: Biobank
keywords: Biobank
start date: 2013
inclusion start: 2013
end date: 2020
inclusion end: 2020
age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Adult%20%2818%2B%20years%29
age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Aged%20%2865%2B%20years%29
age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Young%20adult%20%2818-24%20years%29
age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Adult%20%2825-44%20years%29
age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Aged%20%2880%2B%20years%29
age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Middle-aged%20%2845-64%20years%29
age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Aged%20%2865-79%20years%29
main medical condition: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Diseases/name=A41.9%20Sepsis%2C%20unspecified
countries: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Countries/name=Netherlands%20%28the%29
spatial: NLD
regions: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Regions/name=Utrecht
coverage: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Regions/name=Utrecht
other inclusion criteria: Consecutive adult intensive care patients.
other exclusion criteria: Elective cardiothoracic surgery patients.
contact point: MARS - Molecular Diagnosis and Risk Stratification of Sepsis Olaf Cremer
publisher: MARS - Molecular Diagnosis and Risk Stratification of Sepsis UMCU
creator: MARS - Molecular Diagnosis and Risk Stratification of Sepsis AMC
creator: MARS - Molecular Diagnosis and Risk Stratification of Sepsis UMCU
theme: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Themes/name=Health
theme: HEAL
access rights: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AccessRights/name=Non%20public
access rights: NON PUBLIC
applicable legislation: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Legislations/name=Data%20Governance%20Act
applicable legislation: oj
mg_draft: false
mg_insertedOn: 2026-03-11T17:09:09
mg_updatedOn: 2026-03-11T17:09:09

Athero-Express Athero-Express AAA-Express
type: Subpopulations
type: Observation
endpoint URL: catalogue-rdf
data set: Subpopulations
source: Athero-Express
resource: Athero-Express
title: Athero-Express AAA-Express
name: Athero-Express AAA-Express
pid: https://catalogue.hdsu.nl/HDSU/collections/Athero-Express/subpopulations/Athero-Express%20AAA-Express
description: Patients who underwent open surgery for aneurysms. The majority is operated for abdominal aortic aneurysm (AAA) but some are from popliteal, carotid, femoral, etc. see also: https://doi.org/10.34894/AUUSS2
keyword: atherosclerosis
keywords: atherosclerosis
keyword: plaque
keywords: plaque
keyword: aneurysm
keywords: aneurysm
keyword: arterial endarterectomy
keywords: arterial endarterectomy
number of unique individuals: 700
number of participants: 700
start date: 2003
inclusion start: 2003
age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Adult%20%2818%2B%20years%29
age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Aged%20%2865%2B%20years%29
age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Young%20adult%20%2818-24%20years%29
age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Adult%20%2825-44%20years%29
age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Aged%20%2880%2B%20years%29
age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Middle-aged%20%2845-64%20years%29
age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Aged%20%2865-79%20years%29
main medical condition: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Diseases/name=I71.4%20Abdominal%20aortic%20aneurysm%2C%20without%20mention%20of%20rupture
main medical condition: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Diseases/name=I72.5%20Aneurysm%20and%20dissection%20of%20other%20precerebral%20arteries
main medical condition: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Diseases/name=I72.1%20Aneurysm%20and%20dissection%20of%20artery%20of%20upper%20extremity
main medical condition: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Diseases/name=I71%20Aortic%20aneurysm%20and%20dissection
main medical condition: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Diseases/name=I72.8%20Aneurysm%20and%20dissection%20of%20other%20specified%20arteries
main medical condition: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Diseases/name=I72.0%20Aneurysm%20and%20dissection%20of%20carotid%20artery
main medical condition: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Diseases/name=I71.8%20Aortic%20aneurysm%20of%20unspecified%20site%2C%20ruptured
main medical condition: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Diseases/name=I72.9%20Aneurysm%20and%20dissection%20of%20unspecified%20site
main medical condition: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Diseases/name=I71.9%20Aortic%20aneurysm%20of%20unspecified%20site%2C%20without%20mention%20of%20rupture
main medical condition: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Diseases/name=I72%20Other%20aneurysm%20and%20dissection
main medical condition: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Diseases/name=I72.6%20Aneurysm%20and%20dissection%20of%20vertebral%20artery
main medical condition: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Diseases/name=I71.3%20Abdominal%20aortic%20aneurysm%2C%20ruptured
main medical condition: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Diseases/name=I72.3%20Aneurysm%20and%20dissection%20of%20iliac%20artery
main medical condition: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Diseases/name=I72.2%20Aneurysm%20and%20dissection%20of%20renal%20artery
main medical condition: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Diseases/name=I71.0%20Dissection%20of%20aorta%20%5Bany%20part%5D
main medical condition: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Diseases/name=I72.4%20Aneurysm%20and%20dissection%20of%20artery%20of%20lower%20extremity
countries: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Countries/name=Netherlands%20%28the%29
spatial: NLD
inclusion criteria: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/InclusionExclusionCriteria/name=Health%20status%20inclusion%20criterion
inclusion criteria: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/InclusionExclusionCriteria/name=Hospital%20patient%20inclusion%20criterion
contact point: Athero-Express Sander van der Laan
publisher: Athero-Express UMC Utrecht
creator: Athero-Express UMC Utrecht
theme: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Themes/name=Health
theme: HEAL
access rights: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AccessRights/name=Non%20public
access rights: NON PUBLIC
applicable legislation: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Legislations/name=Data%20Governance%20Act
applicable legislation: oj
mg_draft: false
mg_insertedOn: 2026-04-24T10:58:44
mg_updatedOn: 2026-04-24T10:58:44

Athero-Express Athero-Express
type: Subpopulations
type: Observation
endpoint URL: catalogue-rdf
data set: Subpopulations
source: Athero-Express
resource: Athero-Express
title: Athero-Express
name: Athero-Express
pid: https://catalogue.hdsu.nl/HDSU/collections/Athero-Express/subpopulations/Athero-Express
description: see also: https://doi.org/10.34894/4IKE3T
keyword: plaque
keywords: plaque
keyword: atherosclerosis
keywords: atherosclerosis
keyword: arterial endarterectomy
keywords: arterial endarterectomy
number of unique individuals: 3500
number of participants: 3500
start date: 2002
inclusion start: 2002
age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Adult%20%2818%2B%20years%29
age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Aged%20%2865%2B%20years%29
age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Young%20adult%20%2818-24%20years%29
age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Adult%20%2825-44%20years%29
age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Aged%20%2880%2B%20years%29
age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Middle-aged%20%2845-64%20years%29
age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Aged%20%2865-79%20years%29
main medical condition: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Diseases/name=I70.8%20Atherosclerosis%20of%20other%20arteries
main medical condition: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Diseases/name=I70.2%20Atherosclerosis%20of%20arteries%20of%20extremities
main medical condition: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Diseases/name=I70.0%20Atherosclerosis%20of%20aorta
main medical condition: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Diseases/name=I70.1%20Atherosclerosis%20of%20renal%20artery
main medical condition: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Diseases/name=I70%20Atherosclerosis
countries: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Countries/name=Netherlands%20%28the%29
spatial: NLD
inclusion criteria: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/InclusionExclusionCriteria/name=Health%20status%20inclusion%20criterion
inclusion criteria: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/InclusionExclusionCriteria/name=Hospital%20patient%20inclusion%20criterion
contact point: Athero-Express Sander van der Laan
publisher: Athero-Express UMC Utrecht
creator: Athero-Express UMC Utrecht
theme: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Themes/name=Health
theme: HEAL
access rights: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AccessRights/name=Non%20public
access rights: NON PUBLIC
applicable legislation: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Legislations/name=Data%20Governance%20Act
applicable legislation: oj
mg_draft: false
mg_insertedOn: 2026-04-24T10:58:44
mg_updatedOn: 2026-04-24T10:58:44

HEM-PRO Total hip arthroplasty
type: Subpopulations
type: Observation
endpoint URL: catalogue-rdf
data set: Subpopulations
source: HEM-PRO
resource: HEM-PRO
title: Total hip arthroplasty
name: Total hip arthroplasty
pid: https://catalogue.hdsu.nl/HDSU/collections/HEM-PRO/subpopulations/Total%20hip%20arthroplasty
number of unique individuals: 64
number of participants: 64
start date: 1989
inclusion start: 1989
end date: 2025
inclusion end: 2025
age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Adult%20%2818%2B%20years%29
age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Aged%20%2865%2B%20years%29
age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Young%20adult%20%2818-24%20years%29
age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Adult%20%2825-44%20years%29
age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Aged%20%2880%2B%20years%29
age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Middle-aged%20%2845-64%20years%29
age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Aged%20%2865-79%20years%29
minimum typical age: 27
age min: 27
maximum typical age: 77
age max: 77
main medical condition: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Diseases/name=M15.0%20Polyarthrosis%20-%20Primary%20generalized%20%28osteo%29arthrosis
comorbidity: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Diseases/name=Severe%20hemophilia%20A
comorbidity: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Diseases/name=Severe%20hemophilia%20B
countries: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Countries/name=Netherlands%20%28the%29
spatial: NLD
other inclusion criteria: Patients with moderate or severe haemophilia A or B (FVIII/FIX <5%) or Von Willebrand’s disease (VWD) with a FVIII activity <5% were included, as arthropathy in patients with these factor levels is assumed to be bleeding related [29]. All types of primary THA or TKA were included. All patients were followed according to standard care. Patients could be included multiple times with distinct joints.
publisher: HEM-PRO UMCU - VCK
creator: HEM-PRO UMCU - VCK
theme: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Themes/name=Health
theme: HEAL
access rights: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AccessRights/name=Non%20public
access rights: NON PUBLIC
applicable legislation: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Legislations/name=Data%20Governance%20Act
applicable legislation: oj
mg_draft: false
mg_insertedOn: 2026-04-24T11:09:49
mg_updatedOn: 2026-04-24T11:09:49

HEM-PRO Total knee arthroplasty
type: Subpopulations
type: Observation
endpoint URL: catalogue-rdf
data set: Subpopulations
source: HEM-PRO
resource: HEM-PRO
title: Total knee arthroplasty
name: Total knee arthroplasty
pid: https://catalogue.hdsu.nl/HDSU/collections/HEM-PRO/subpopulations/Total%20knee%20arthroplasty
number of unique individuals: 128
number of participants: 128
start date: 1989
inclusion start: 1989
end date: 2025
inclusion end: 2025
age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Adult%20%2818%2B%20years%29
age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Aged%20%2865%2B%20years%29
age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Young%20adult%20%2818-24%20years%29
age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Adult%20%2825-44%20years%29
age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Aged%20%2880%2B%20years%29
age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Middle-aged%20%2845-64%20years%29
age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Aged%20%2865-79%20years%29
minimum typical age: 26
age min: 26
maximum typical age: 77
age max: 77
main medical condition: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Diseases/name=M15.0%20Polyarthrosis%20-%20Primary%20generalized%20%28osteo%29arthrosis
comorbidity: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Diseases/name=Severe%20hemophilia%20A
comorbidity: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Diseases/name=Severe%20hemophilia%20B
countries: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Countries/name=Netherlands%20%28the%29
spatial: NLD
other inclusion criteria: Patients with moderate or severe haemophilia A or B (FVIII/FIX <5%) or Von Willebrand’s disease (VWD) with a FVIII activity <5% were included, as arthropathy in patients with these factor levels is assumed to be bleeding related [29]. All types of primary THA or TKA were included. All patients were followed according to standard care. Patients could be included multiple times with distinct joints.
publisher: HEM-PRO UMCU - VCK
creator: HEM-PRO UMCU - VCK
theme: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Themes/name=Health
theme: HEAL
access rights: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AccessRights/name=Non%20public
access rights: NON PUBLIC
applicable legislation: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Legislations/name=Data%20Governance%20Act
applicable legislation: oj
mg_draft: false
mg_insertedOn: 2026-04-24T11:09:49
mg_updatedOn: 2026-04-24T11:09:49

Julius Huisartsen Netwerk all persons in GP
type: Subpopulations
type: Observation
endpoint URL: catalogue-rdf
data set: Subpopulations
source: Julius Huisartsen Netwerk
resource: Julius Huisartsen Netwerk
title: all persons in GP
name: all persons in GP
pid: https://catalogue.hdsu.nl/HDSU/collections/Julius%20Huisartsen%20Netwerk/subpopulations/all%20persons%20in%20GP
description: all persons except objectors in participating GP practices
keyword: health records
keywords: health records
keyword: open population
keywords: open population
number of unique individuals: 1500000
number of participants: 1500000
age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Infant%20%280-23%20months%29
age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Aged%20%2865-79%20years%29
age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Newborn%20%280-1%20months%29
age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Child%20%282-12%20years%29
age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Aged%20%2865%2B%20years%29
age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Adolescent%20%2813-17%20years%29
age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Adult%20%2825-44%20years%29
age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Infants%20and%20toddlers%20%282-23%20months%29
age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Middle-aged%20%2845-64%20years%29
age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Adult%20%2818%2B%20years%29
age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Aged%20%2880%2B%20years%29
age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=All%20ages
age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Young%20adult%20%2818-24%20years%29
countries: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Countries/name=Netherlands%20%28the%29
spatial: NLD
regions: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Regions/name=Utrecht
coverage: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Regions/name=Utrecht
contact point: Julius Huisartsen Netwerk Secretariaat JHN
publisher: Julius Huisartsen Netwerk UMCU
creator: Julius Huisartsen Netwerk UMCU
theme: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Themes/name=Health
theme: HEAL
access rights: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AccessRights/name=Non%20public
access rights: NON PUBLIC
applicable legislation: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Legislations/name=Data%20Governance%20Act
applicable legislation: oj
mg_draft: false
mg_insertedOn: 2026-04-24T16:08:37
mg_updatedOn: 2026-04-24T16:08:37

HDSU UMCU
type: Agents
type: Observation
type: Agent
type: Organization
endpoint URL: catalogue-rdf
data set: Agents
resource: HDSU
id: UMCU
type: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgentTypes/name=Organisation
organisation: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Organisations/name=University%20Medical%20Center%20Utrecht
name: University Medical Center Utrecht
organisation name: University Medical Center Utrecht
organisation pid: https://ror.org/0575yy874
organisation website: www.umcutrecht.nl
mg_draft: false
mg_insertedOn: 2026-03-11T17:09:09
mg_updatedOn: 2026-03-11T17:09:09
mg_tableclass: catalogue-rdf.Agents

ALL10 Rob Pieters
type: Contacts
type: Observation
type: Kind
type: Individual
endpoint URL: catalogue-rdf
data set: Contacts
resource: ALL10
role: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/ContributionTypes/name=Principal%20Investigator
has role: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/ContributionTypes/name=Principal%20Investigator
first name: Rob
family name: Pieters
last name: Pieters
name: Rob Pieters
has name: Rob Pieters
fn: Rob Pieters
display name: Rob Pieters
orcid: https://orcid.org/0000-0003-2997-3570
mg_draft: false
mg_insertedOn: 2026-04-08T17:02:29
mg_updatedOn: 2026-04-08T17:02:29

ALL10 Hester de Groot-Kruseman
type: Contacts
type: Observation
type: Kind
type: Individual
endpoint URL: catalogue-rdf
data set: Contacts
resource: ALL10
role: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/ContributionTypes/name=Primary%20contact
has role: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/ContributionTypes/name=Primary%20contact
first name: Hester
family name: de Groot-Kruseman
last name: de Groot-Kruseman
name: Hester de Groot-Kruseman
has name: Hester de Groot-Kruseman
fn: Hester de Groot-Kruseman
display name: Hester de Groot-Kruseman
orcid: https://orcid.org/0000-0001-7038-188X
mg_draft: false
mg_insertedOn: 2026-04-08T17:02:29
mg_updatedOn: 2026-04-08T17:02:29

HDSU Jutta de Jong
type: Contacts
type: Observation
type: Kind
type: Individual
endpoint URL: catalogue-rdf
data set: Contacts
resource: HDSU
first name: Jutta
family name: de Jong
last name: de Jong
name: Jutta de Jong
has name: Jutta de Jong
fn: Jutta de Jong
display name: Jutta de Jong
mg_draft: false
mg_insertedOn: 2026-04-08T17:02:29
mg_updatedOn: 2026-04-08T17:02:29

ALL11 Hester de Groot-Kruseman
type: Contacts
type: Observation
type: Kind
type: Individual
endpoint URL: catalogue-rdf
data set: Contacts
resource: ALL11
role: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/ContributionTypes/name=Primary%20contact
has role: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/ContributionTypes/name=Primary%20contact
first name: Hester
family name: de Groot-Kruseman
last name: de Groot-Kruseman
name: Hester de Groot-Kruseman
has name: Hester de Groot-Kruseman
fn: Hester de Groot-Kruseman
display name: Hester de Groot-Kruseman
orcid: https://orcid.org/0000-0001-7038-188X
mg_draft: false
mg_insertedOn: 2026-04-08T17:02:29
mg_updatedOn: 2026-04-08T17:02:29

ALL11 Rob Pieters
type: Contacts
type: Observation
type: Kind
type: Individual
endpoint URL: catalogue-rdf
data set: Contacts
resource: ALL11
role: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/ContributionTypes/name=Principal%20Investigator
has role: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/ContributionTypes/name=Principal%20Investigator
first name: Rob
family name: Pieters
last name: Pieters
name: Rob Pieters
has name: Rob Pieters
fn: Rob Pieters
display name: Rob Pieters
orcid: https://orcid.org/0000-0003-2997-3570
mg_draft: false
mg_insertedOn: 2026-04-08T17:02:29
mg_updatedOn: 2026-04-08T17:02:29

BioDay Marjolein de Bruin-Weller
type: Contacts
type: Observation
type: Kind
type: Individual
endpoint URL: catalogue-rdf
data set: Contacts
resource: BioDay
role: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/ContributionTypes/name=Principal%20Investigator
has role: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/ContributionTypes/name=Principal%20Investigator
first name: Marjolein
family name: de Bruin-Weller
last name: de Bruin-Weller
name: Marjolein de Bruin-Weller
has name: Marjolein de Bruin-Weller
fn: Marjolein de Bruin-Weller
display name: Marjolein de Bruin-Weller
title: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Titles/name=prof.%20dr.
organization: BioDay UMCU
organisation: BioDay UMCU
mg_draft: false
mg_insertedOn: 2026-04-08T17:02:29
mg_updatedOn: 2026-04-08T17:02:29

BioDay Marlies de Graaf
type: Contacts
type: Observation
type: Kind
type: Individual
endpoint URL: catalogue-rdf
data set: Contacts
resource: BioDay
role: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/ContributionTypes/name=Primary%20contact
has role: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/ContributionTypes/name=Primary%20contact
first name: Marlies
family name: de Graaf
last name: de Graaf
name: Marlies de Graaf
has name: Marlies de Graaf
fn: Marlies de Graaf
display name: Marlies de Graaf
title: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Titles/name=dr.
organization: BioDay UMCU
organisation: BioDay UMCU
mg_draft: false
mg_insertedOn: 2026-04-08T17:02:29
mg_updatedOn: 2026-04-08T17:02:29

BioDay BioDay ContactEmail
type: Contacts
type: Observation
type: Kind
type: Individual
endpoint URL: catalogue-rdf
data set: Contacts
resource: BioDay
role: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/ContributionTypes/name=Primary%20contact
has role: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/ContributionTypes/name=Primary%20contact
first name: BioDay
family name: ContactEmail
last name: ContactEmail
name: BioDay ContactEmail
has name: BioDay ContactEmail
fn: BioDay ContactEmail
display name: BioDay ContactEmail
mg_draft: false
mg_insertedOn: 2026-04-08T17:02:29
mg_updatedOn: 2026-04-08T17:02:29

BioDay Lian van der Gang
type: Contacts
type: Observation
type: Kind
type: Individual
endpoint URL: catalogue-rdf
data set: Contacts
resource: BioDay
role: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/ContributionTypes/name=Primary%20contact
has role: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/ContributionTypes/name=Primary%20contact
first name: Lian
family name: van der Gang
last name: van der Gang
name: Lian van der Gang
has name: Lian van der Gang
fn: Lian van der Gang
display name: Lian van der Gang
organization: BioDay UMCU
organisation: BioDay UMCU
mg_draft: false
mg_insertedOn: 2026-04-08T17:02:29
mg_updatedOn: 2026-04-08T17:02:29

EPIC-NL EPIC-NL Study team
type: Contacts
type: Observation
type: Kind
type: Individual
endpoint URL: catalogue-rdf
data set: Contacts
resource: EPIC-NL
role: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/ContributionTypes/name=Primary%20contact
has role: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/ContributionTypes/name=Primary%20contact
first name: EPIC-NL
family name: Study team
last name: Study team
name: EPIC-NL Study team
has name: EPIC-NL Study team
fn: EPIC-NL Study team
display name: EPIC-NL Study team
mg_draft: false
mg_insertedOn: 2026-04-08T17:02:29
mg_updatedOn: 2026-04-08T17:02:29

EPIC-NL Monique Verschuren
type: Contacts
type: Observation
type: Kind
type: Individual
endpoint URL: catalogue-rdf
data set: Contacts
resource: EPIC-NL
role: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/ContributionTypes/name=Principal%20Investigator
has role: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/ContributionTypes/name=Principal%20Investigator
first name: Monique
family name: Verschuren
last name: Verschuren
name: Monique Verschuren
has name: Monique Verschuren
fn: Monique Verschuren
display name: Monique Verschuren
initials: W.M.M.
title: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Titles/name=prof.%20dr.%20ir.
organization: EPIC-NL RIVM
organisation: EPIC-NL RIVM
orcid: 0000-0003-2134-4227
mg_draft: false
mg_insertedOn: 2026-04-08T17:02:29
mg_updatedOn: 2026-04-08T17:02:29

EPIC-NL Charlotte Onland-Moret
type: Contacts
type: Observation
type: Kind
type: Individual
endpoint URL: catalogue-rdf
data set: Contacts
resource: EPIC-NL
role: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/ContributionTypes/name=Principal%20Investigator
has role: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/ContributionTypes/name=Principal%20Investigator
first name: Charlotte
family name: Onland-Moret
last name: Onland-Moret
name: Charlotte Onland-Moret
has name: Charlotte Onland-Moret
fn: Charlotte Onland-Moret
display name: Charlotte Onland-Moret
initials: N.C.
title: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Titles/name=dr.
organization: EPIC-NL UMCU
organisation: EPIC-NL UMCU
orcid: 0000-0002-2360-913X
mg_draft: false
mg_insertedOn: 2026-04-08T17:02:29
mg_updatedOn: 2026-04-08T17:02:29

MARS - Molecular Diagnosis and Risk Stratification of Sepsis Udo Roorda
type: Contacts
type: Observation
type: Kind
type: Individual
endpoint URL: catalogue-rdf
data set: Contacts
resource: MARS - Molecular Diagnosis and Risk Stratification of Sepsis
role: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/ContributionTypes/name=Data%20manager
has role: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/ContributionTypes/name=Data%20manager
role description: Datamanagement
first name: Udo
family name: Roorda
last name: Roorda
name: Udo Roorda
has name: Udo Roorda
fn: Udo Roorda
display name: Udo Roorda
organization: MARS - Molecular Diagnosis and Risk Stratification of Sepsis UMCU
organisation: MARS - Molecular Diagnosis and Risk Stratification of Sepsis UMCU
mg_insertedOn: 2026-04-08T17:02:29
mg_updatedOn: 2026-04-08T17:02:29

MARS - Molecular Diagnosis and Risk Stratification of Sepsis Marc Bonten
type: Contacts
type: Observation
type: Kind
type: Individual
endpoint URL: catalogue-rdf
data set: Contacts
resource: MARS - Molecular Diagnosis and Risk Stratification of Sepsis
role: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/ContributionTypes/name=Principal%20Investigator
has role: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/ContributionTypes/name=Principal%20Investigator
role description: Initial PI of the MARS cohort
first name: Marc
family name: Bonten
last name: Bonten
name: Marc Bonten
has name: Marc Bonten
fn: Marc Bonten
display name: Marc Bonten
initials: M.J.M.
title: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Titles/name=prof.%20dr.
organization: MARS - Molecular Diagnosis and Risk Stratification of Sepsis UMCU
organisation: MARS - Molecular Diagnosis and Risk Stratification of Sepsis UMCU
orcid: 0000-0002-9095-9201
mg_insertedOn: 2026-04-08T17:02:29
mg_updatedOn: 2026-04-08T17:02:29

The TWIN-study Bas Oldenburg
type: Contacts
type: Observation
type: Kind
type: Individual
endpoint URL: catalogue-rdf
data set: Contacts
resource: The TWIN-study
role: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/ContributionTypes/name=Principal%20Investigator
has role: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/ContributionTypes/name=Principal%20Investigator
role description: Principal investigator
first name: Bas
family name: Oldenburg
last name: Oldenburg
name: Bas Oldenburg
has name: Bas Oldenburg
fn: Bas Oldenburg
display name: Bas Oldenburg
initials: B.O.
title: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Titles/name=prof.%20dr.
organization: The TWIN-study UMC Utrecht
organisation: The TWIN-study UMC Utrecht
mg_draft: false
mg_insertedOn: 2026-04-08T17:02:29
mg_updatedOn: 2026-04-08T17:02:29

MARS - Molecular Diagnosis and Risk Stratification of Sepsis Olaf Cremer
type: Contacts
type: Observation
type: Kind
type: Individual
endpoint URL: catalogue-rdf
data set: Contacts
resource: MARS - Molecular Diagnosis and Risk Stratification of Sepsis
role: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/ContributionTypes/name=Primary%20contact
role: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/ContributionTypes/name=Project%20leader
role: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/ContributionTypes/name=Project%20manager
role: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/ContributionTypes/name=Principal%20Investigator
has role: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/ContributionTypes/name=Primary%20contact
has role: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/ContributionTypes/name=Project%20leader
has role: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/ContributionTypes/name=Project%20manager
has role: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/ContributionTypes/name=Principal%20Investigator
role description: Current PI of the MARS cohort
first name: Olaf
family name: Cremer
last name: Cremer
name: Olaf Cremer
has name: Olaf Cremer
fn: Olaf Cremer
display name: Olaf Cremer
initials: O.L.
title: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Titles/name=prof.%20dr.
organization: MARS - Molecular Diagnosis and Risk Stratification of Sepsis UMCU
organisation: MARS - Molecular Diagnosis and Risk Stratification of Sepsis UMCU
orcid: https://orcid.org/0000-0003-4264-1108
mg_draft: false
mg_insertedOn: 2026-04-08T17:02:29
mg_updatedOn: 2026-04-09T09:04:51

Athero-Express Sander van der Laan
type: Contacts
type: Observation
type: Kind
type: Individual
endpoint URL: catalogue-rdf
data set: Contacts
resource: Athero-Express
role: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/ContributionTypes/name=Principal%20Investigator
role: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/ContributionTypes/name=Data%20manager
has role: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/ContributionTypes/name=Principal%20Investigator
has role: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/ContributionTypes/name=Data%20manager
first name: Sander
family name: van der Laan
last name: van der Laan
name: Sander van der Laan
has name: Sander van der Laan
fn: Sander van der Laan
display name: Sander van der Laan
initials: SW
title: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Titles/name=dr.
organization: Athero-Express UMC Utrecht
organisation: Athero-Express UMC Utrecht
orcid: 0000-0001-6888-1404
url: https://vanderlaanscience.nl
workplace homepage: https://vanderlaanscience.nl
has URL: https://vanderlaanscience.nl
homepage: https://vanderlaanscience.nl
mg_draft: false
mg_insertedOn: 2026-04-24T10:58:45
mg_updatedOn: 2026-04-24T10:58:45

The TWIN-study Femke van Wijk
type: Contacts
type: Observation
type: Kind
type: Individual
endpoint URL: catalogue-rdf
data set: Contacts
resource: The TWIN-study
role: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/ContributionTypes/name=Principal%20Investigator
has role: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/ContributionTypes/name=Principal%20Investigator
role description: Principal investigator
first name: Femke
family name: van Wijk
last name: van Wijk
name: Femke van Wijk
has name: Femke van Wijk
fn: Femke van Wijk
display name: Femke van Wijk
initials: F.
title: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Titles/name=prof.%20dr.
organization: The TWIN-study UMC Utrecht
organisation: The TWIN-study UMC Utrecht
mg_draft: false
mg_insertedOn: 2026-04-08T17:02:29
mg_updatedOn: 2026-04-08T17:02:29

The TWIN-study Sarah Luna Dijkstra
type: Contacts
type: Observation
type: Kind
type: Individual
endpoint URL: catalogue-rdf
data set: Contacts
resource: The TWIN-study
role: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/ContributionTypes/name=Primary%20contact
role: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/ContributionTypes/name=Project%20manager
has role: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/ContributionTypes/name=Primary%20contact
has role: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/ContributionTypes/name=Project%20manager
role description: Coordinating researcher
first name: Sarah Luna
family name: Dijkstra
last name: Dijkstra
name: Sarah Luna Dijkstra
has name: Sarah Luna Dijkstra
fn: Sarah Luna Dijkstra
display name: Sarah Luna Dijkstra
initials: S.L.
title: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Titles/name=drs.
organization: The TWIN-study UMC Utrecht
organisation: The TWIN-study UMC Utrecht
mg_draft: false
mg_insertedOn: 2026-04-08T17:02:29
mg_updatedOn: 2026-04-08T17:02:29

UMBRELLA Sofie Gernaat
type: Contacts
type: Observation
type: Kind
type: Individual
endpoint URL: catalogue-rdf
data set: Contacts
resource: UMBRELLA
role: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/ContributionTypes/name=Project%20leader
role: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/ContributionTypes/name=Primary%20contact
role: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/ContributionTypes/name=Project%20manager
has role: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/ContributionTypes/name=Project%20leader
has role: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/ContributionTypes/name=Primary%20contact
has role: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/ContributionTypes/name=Project%20manager
first name: Sofie
family name: Gernaat
last name: Gernaat
name: Sofie Gernaat
has name: Sofie Gernaat
fn: Sofie Gernaat
display name: Sofie Gernaat
initials: S.A.M.
title: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Titles/name=dr.
organization: UMBRELLA UMC Utrecht
organisation: UMBRELLA UMC Utrecht
orcid: 0000-0001-7828-1138
mg_draft: false
mg_insertedOn: 2026-04-08T17:02:29
mg_updatedOn: 2026-04-08T17:02:29

UMBRELLA Helena Verkooijen
type: Contacts
type: Observation
type: Kind
type: Individual
endpoint URL: catalogue-rdf
data set: Contacts
resource: UMBRELLA
role: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/ContributionTypes/name=Principal%20Investigator
has role: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/ContributionTypes/name=Principal%20Investigator
first name: Helena
family name: Verkooijen
last name: Verkooijen
name: Helena Verkooijen
has name: Helena Verkooijen
fn: Helena Verkooijen
display name: Helena Verkooijen
initials: H.M.
title: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Titles/name=prof.%20dr.
organization: UMBRELLA UMC Utrecht
organisation: UMBRELLA UMC Utrecht
orcid: 0000-0001-9480-1623
mg_draft: false
mg_insertedOn: 2026-04-08T17:02:29
mg_updatedOn: 2026-04-08T17:02:29

VIOOL Patricia Bruijning-Verhagen
type: Contacts
type: Observation
type: Kind
type: Individual
endpoint URL: catalogue-rdf
data set: Contacts
resource: VIOOL
role: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/ContributionTypes/name=Principal%20Investigator
has role: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/ContributionTypes/name=Principal%20Investigator
first name: Patricia
family name: Bruijning-Verhagen
last name: Bruijning-Verhagen
name: Patricia Bruijning-Verhagen
has name: Patricia Bruijning-Verhagen
fn: Patricia Bruijning-Verhagen
display name: Patricia Bruijning-Verhagen
title: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Titles/name=prof.%20dr.
organization: VIOOL UMCU
organisation: VIOOL UMCU
mg_draft: false
mg_insertedOn: 2026-04-08T17:02:29
mg_updatedOn: 2026-04-08T17:02:29

HEM-PRO Lize van Vulpen
type: Contacts
type: Observation
type: Kind
type: Individual
endpoint URL: catalogue-rdf
data set: Contacts
resource: HEM-PRO
role: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/ContributionTypes/name=Principal%20Investigator
has role: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/ContributionTypes/name=Principal%20Investigator
first name: Lize
family name: van Vulpen
last name: van Vulpen
name: Lize van Vulpen
has name: Lize van Vulpen
fn: Lize van Vulpen
display name: Lize van Vulpen
title: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Titles/name=dr.
organization: HEM-PRO UMCU - VCK
organisation: HEM-PRO UMCU - VCK
orcid: https://orcid.org/0000-0003-3242-5524
mg_draft: false
mg_insertedOn: 2026-04-24T11:09:49
mg_updatedOn: 2026-04-24T11:09:49

HEM-PRO Merel Timmer
type: Contacts
type: Observation
type: Kind
type: Individual
endpoint URL: catalogue-rdf
data set: Contacts
resource: HEM-PRO
role: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/ContributionTypes/name=Principal%20Investigator
has role: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/ContributionTypes/name=Principal%20Investigator
first name: Merel
family name: Timmer
last name: Timmer
name: Merel Timmer
has name: Merel Timmer
fn: Merel Timmer
display name: Merel Timmer
title: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Titles/name=dr.
organization: HEM-PRO UMCU - VCK
organisation: HEM-PRO UMCU - VCK
orcid: https://orcid.org/0000-0003-1910-999X
mg_draft: false
mg_insertedOn: 2026-04-24T11:09:49
mg_updatedOn: 2026-04-24T11:09:49

HEM-PRO Gijs Aertssen
type: Contacts
type: Observation
type: Kind
type: Individual
endpoint URL: catalogue-rdf
data set: Contacts
resource: HEM-PRO
role: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/ContributionTypes/name=Primary%20contact
role: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/ContributionTypes/name=Project%20leader
has role: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/ContributionTypes/name=Primary%20contact
has role: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/ContributionTypes/name=Project%20leader
first name: Gijs
family name: Aertssen
last name: Aertssen
name: Gijs Aertssen
has name: Gijs Aertssen
fn: Gijs Aertssen
display name: Gijs Aertssen
title: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Titles/name=drs.
organization: HEM-PRO UMCU - VCK
organisation: HEM-PRO UMCU - VCK
orcid: https://orcid.org/0009-0006-3313-0671
mg_draft: false
mg_insertedOn: 2026-04-24T11:09:49
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HEM-PRO Huub de Visser
type: Contacts
type: Observation
type: Kind
type: Individual
endpoint URL: catalogue-rdf
data set: Contacts
resource: HEM-PRO
first name: Huub
family name: de Visser
last name: de Visser
name: Huub de Visser
has name: Huub de Visser
fn: Huub de Visser
display name: Huub de Visser
title: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Titles/name=dr.
organization: HEM-PRO UMCU - Ort
organisation: HEM-PRO UMCU - Ort
orcid: https://orcid.org/0000-0002-9409-7290
mg_draft: false
mg_insertedOn: 2026-04-24T11:09:49
mg_updatedOn: 2026-04-24T11:09:49

HEM-PRO Wouter Foppen
type: Contacts
type: Observation
type: Kind
type: Individual
endpoint URL: catalogue-rdf
data set: Contacts
resource: HEM-PRO
first name: Wouter
family name: Foppen
last name: Foppen
name: Wouter Foppen
has name: Wouter Foppen
fn: Wouter Foppen
display name: Wouter Foppen
title: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Titles/name=dr.
organization: HEM-PRO UMCU - Rad
organisation: HEM-PRO UMCU - Rad
orcid: https://orcid.org/0000-0003-4970-8555
mg_draft: false
mg_insertedOn: 2026-04-24T11:09:49
mg_updatedOn: 2026-04-24T11:09:49

Julius Huisartsen Netwerk Secretariaat JHN
type: Contacts
type: Observation
type: Kind
type: Individual
endpoint URL: catalogue-rdf
data set: Contacts
resource: Julius Huisartsen Netwerk
role: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/ContributionTypes/name=Primary%20contact
has role: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/ContributionTypes/name=Primary%20contact
first name: Secretariaat
family name: JHN
last name: JHN
name: Secretariaat JHN
has name: Secretariaat JHN
fn: Secretariaat JHN
display name: Secretariaat JHN
mg_draft: false
mg_insertedOn: 2026-04-24T16:08:37
mg_updatedOn: 2026-04-24T16:08:37

ALL10 MEC-2004-203
type: External identifiers
type: Observation
endpoint URL: catalogue-rdf
data set: External identifiers
resource: ALL10
identifier: MEC-2004-203
external identifier type: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/ExternalIdentifierTypes/name=METc%20number
external identifier type other: ErasmusMC METC
mg_draft: false
mg_insertedOn: 2026-03-11T17:09:09
mg_updatedOn: 2026-03-11T17:09:09

ALL11 2012-287
type: External identifiers
type: Observation
endpoint URL: catalogue-rdf
data set: External identifiers
resource: ALL11
identifier: 2012-287
external identifier type: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/ExternalIdentifierTypes/name=METc%20number
external identifier type other: METc number
mg_draft: false
mg_insertedOn: 2026-03-11T17:09:09
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BioDay https://www.sciencedirect.com/science/article/pii/S258975002300198X?via%3Dihub
type: Publications
type: Observation
endpoint URL: catalogue-rdf
data set: Publications
is part of: BioDay
resource: BioDay
doi: https://www.sciencedirect.com/science/article/pii/S258975002300198X
title: Early qualitative and quantitative amplitude-integrated electroencephalogram and raw electroencephalogram for predicting long-term neurodevelopmental outcomes in extremely preterm infants in the Netherlands: a 10-year cohort study
is design publication: false
mg_insertedOn: 2026-03-11T17:09:09
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BioDay https://doi.org/10.1111/pai.13887
type: Publications
type: Observation
endpoint URL: catalogue-rdf
data set: Publications
is part of: BioDay
resource: BioDay
doi: pai.13887
title: Dupilumab in daily practice for the treatment of pediatric atopic dermatitis: 28-week clinical and biomarker results from the BioDay registry
is design publication: false
mg_insertedOn: 2026-03-11T17:09:09
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ALL10 https://ascopubs.org/doi/10.1200/JCO.2015.64.6364
type: Publications
type: Observation
endpoint URL: catalogue-rdf
data set: Publications
is part of: ALL10
resource: ALL10
doi: JCO.2015.64.6364
title: Successful Therapy Reduction and Intensification for Childhood Acute Lymphoblastic Leukemia Based on Minimal Residual Disease Monitoring: Study ALL10 From the Dutch Childhood Oncology Group
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mg_draft: false
mg_insertedOn: 2026-03-11T17:09:09
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ALL11 https://ascopubs.org/doi/full/10.1200/JCO.22.02705
type: Publications
type: Observation
endpoint URL: catalogue-rdf
data set: Publications
is part of: ALL11
resource: ALL11
doi: JCO.22.02705
title: Improved Outcome for ALL by Prolonging Therapy for IKZF1 Deletion and Decreasing Therapy for Other Risk Groups
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mg_draft: false
mg_insertedOn: 2026-03-11T17:09:09
mg_updatedOn: 2026-03-11T17:09:09

ALL11 https://doi.org/10.3324/haematol.2024.285428
type: Publications
type: Observation
endpoint URL: catalogue-rdf
data set: Publications
is part of: ALL11
resource: ALL11
doi: haematol.2024.285428
title: Immunoglobulin prophylaxis prevents hospital admissions for fever in pediatric acute lymphoblastic leukemia: results of a multicenter randomized trial
is design publication: true
mg_draft: false
mg_insertedOn: 2026-03-11T17:09:09
mg_updatedOn: 2026-03-11T17:09:09

ALL11 https://ascopubs.org/doi/full/10.1200/JCO.23.01797
type: Publications
type: Observation
endpoint URL: catalogue-rdf
data set: Publications
is part of: ALL11
resource: ALL11
doi: JCO.23.01797
title: Continuous PEGasparaginase Dosing Reduces Hypersensitivity Reactions in Pediatric ALL: A Dutch Childhood Oncology Group ALL11 Randomized Trial
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mg_draft: false
mg_insertedOn: 2026-03-11T17:09:09
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BioDay https://doi.org/10.1001/jamadermatol.2023.3849
type: Publications
type: Observation
endpoint URL: catalogue-rdf
data set: Publications
is part of: BioDay
resource: BioDay
doi: jamadermatol.2023.3849
title: Dupilumab-Associated Lymphoid Reactions in Patients With Atopic Dermatitis
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mg_insertedOn: 2026-03-11T17:09:09
mg_updatedOn: 2026-03-11T17:09:09

BioDay https://doi.org/10.1093/bjd/ljad159
type: Publications
type: Observation
endpoint URL: catalogue-rdf
data set: Publications
is part of: BioDay
resource: BioDay
doi: ljad159
title: Successful tapering of dupilumab in patients with atopic dermatitis with low disease activity: a large pragmatic daily practice study from the BioDay registry
is design publication: false
mg_insertedOn: 2026-03-11T17:09:09
mg_updatedOn: 2026-03-11T17:09:09

BioDay https://doi.org/10.1111/cea.14296
type: Publications
type: Observation
endpoint URL: catalogue-rdf
data set: Publications
is part of: BioDay
resource: BioDay
doi: cea.14296
title: Muscle and joint pain during dupilumab treatment for atopic dermatitis: Lack of association with antinuclear antibodies
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mg_insertedOn: 2026-03-11T17:09:09
mg_updatedOn: 2026-03-11T17:09:09

BioDay https://doi.org/10.2340/actadv.v104.19454
type: Publications
type: Observation
endpoint URL: catalogue-rdf
data set: Publications
is part of: BioDay
resource: BioDay
doi: actadv.v104.19454
title: Real-world Experience of Abrocitinib Treatment in Patients with Atopic Dermatitis and Hand Eczema: Up to 28-week Results from the BioDay Registry
is design publication: false
mg_insertedOn: 2026-03-11T17:09:09
mg_updatedOn: 2026-03-11T17:09:09

BioDay https://doi.org/10.2340/actadv.v103.5243
type: Publications
type: Observation
endpoint URL: catalogue-rdf
data set: Publications
is part of: BioDay
resource: BioDay
doi: actadv.v103.5243
title: Effectiveness of Upadacitinib in Patients with Atopic Dermatitis including those with Inadequate Response to Dupilumab and/or Baricitinib: Results from the BioDay Registry
is design publication: false
mg_insertedOn: 2026-03-11T17:09:09
mg_updatedOn: 2026-03-11T17:09:09

BioDay https://doi.org/10.1002%2Fclt2.12219
type: Publications
type: Observation
endpoint URL: catalogue-rdf
data set: Publications
is part of: BioDay
resource: BioDay
doi: 10.1002/clt2.12219
title: The positive effect of dupilumab on comorbid asthma in patients with atopic dermatitis
is design publication: false
mg_insertedOn: 2026-03-11T17:09:09
mg_updatedOn: 2026-03-11T17:09:09

BioDay https://doi.org/10.2340/actadv.v102.3978
type: Publications
type: Observation
endpoint URL: catalogue-rdf
data set: Publications
is part of: BioDay
resource: BioDay
doi: actadv.v102.3978
title: Daily Practice Experience of Baricitinib Treatment for Patients with Difficult-to-Treat Atopic Dermatitis: Results from the BioDay Registry
is design publication: false
mg_insertedOn: 2026-03-11T17:09:09
mg_updatedOn: 2026-03-11T17:09:09

BioDay https://doi.org/10.1001/jamadermatol.2022.3014
type: Publications
type: Observation
endpoint URL: catalogue-rdf
data set: Publications
is part of: BioDay
resource: BioDay
doi: jamadermatol.2022.3014
title: Dupilumab Drug Survival and Associated Predictors in Patients With Moderate to Severe Atopic Dermatitis Long-term Results From the Daily Practice BioDay Registry
is design publication: false
mg_insertedOn: 2026-03-11T17:09:09
mg_updatedOn: 2026-03-11T17:09:09

BioDay https://doi.org/10.1111/pai.70040
type: Publications
type: Observation
endpoint URL: catalogue-rdf
data set: Publications
is part of: BioDay
resource: BioDay
doi: pai.70040
title: Ocular surface disease in pediatric patients with moderate-to- severe atopic dermatitis
is design publication: false
mg_draft: false
mg_insertedOn: 2026-03-11T17:09:09
mg_updatedOn: 2026-03-11T17:09:09

BioDay https://doi.org/10.1111/cea.14637
type: Publications
type: Observation
endpoint URL: catalogue-rdf
data set: Publications
is part of: BioDay
resource: BioDay
doi: cea.14637
title: Increased Levels of Inflammatory Proteins, Including TARC/CCL17, in Skin of AD Patients During JAK Inhibitor Treatment
is design publication: false
mg_draft: false
mg_insertedOn: 2026-03-11T17:09:09
mg_updatedOn: 2026-03-11T17:09:09

BioDay https://doi.org/10.1016/j.jaad.2024.04.026
type: Publications
type: Observation
endpoint URL: catalogue-rdf
data set: Publications
is part of: BioDay
resource: BioDay
doi: j.jaad.2024.04.026
title: Dupilumab provides sustained effectiveness on patient-reported outcomes and favorable safety in patients with moderate-to-severe atopic dermatitis: Up to 5-year results from the daily practice BioDay registry
is design publication: false
mg_draft: false
mg_insertedOn: 2026-03-11T17:09:09
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BioDay http://doi.org/10.1001/jamadermatol.2024.3717
type: Publications
type: Observation
endpoint URL: catalogue-rdf
data set: Publications
is part of: BioDay
resource: BioDay
doi: jamadermatol.2024.3717
title: Drug Survival of Dupilumab,Methotrexate, and Cyclosporine A in Children With Atopic Dermatitis
is design publication: false
mg_draft: false
mg_insertedOn: 2026-03-11T17:09:09
mg_updatedOn: 2026-03-11T17:09:09

BioDay https://doi.org/10.1002/clt2.12381
type: Publications
type: Observation
endpoint URL: catalogue-rdf
data set: Publications
is part of: BioDay
resource: BioDay
doi: clt2.12381
title: Dupilumab induces a significant decrease of food specific immunoglobulin E levels in pediatric atopic dermatitis patients
is design publication: false
mg_draft: false
mg_insertedOn: 2026-03-11T17:09:09
mg_updatedOn: 2026-03-11T17:09:09

BioDay https://doi.org/10.1111/pai.14178
type: Publications
type: Observation
endpoint URL: catalogue-rdf
data set: Publications
is part of: BioDay
resource: BioDay
doi: pai.14178
title: Effect of dupilumab on asthma and aeroallergen sensitization in pediatric atopic dermatitis patients: Results of the BioDay registry
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mg_insertedOn: 2026-03-11T17:09:09
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BioDay https://doi.org/10.1111/cea.14585
type: Publications
type: Observation
endpoint URL: catalogue-rdf
data set: Publications
is part of: BioDay
resource: BioDay
doi: cea.14585
title: Type 2 Immune-Dominant Endotype Is Not Associated With Increased Responsiveness to Dupilumab Treatment in Adult Atopic Dermatitis Patients
is design publication: false
mg_draft: false
mg_insertedOn: 2026-03-11T17:09:09
mg_updatedOn: 2026-03-11T17:09:09

BioDay https://doi.org/10.1111/all.16414
type: Publications
type: Observation
endpoint URL: catalogue-rdf
data set: Publications
is part of: BioDay
resource: BioDay
doi: all.16414
title: Tralokinumab Treatment in Adult Atopic Dermatitis Patients: 28-Week Evaluation of Clinical Effectiveness, Safety, Serum Proteins and Total IgE Levels
is design publication: false
mg_draft: false
mg_insertedOn: 2026-03-11T17:09:09
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BioDay https://doi.org/10.1016/j.jid.2023.03.595
type: Publications
type: Observation
endpoint URL: catalogue-rdf
data set: Publications
is part of: BioDay
resource: BioDay
doi: j.jid.2023.03.595
title: Influence of pathogenic filaggrin variants on dupilumab treatment in atopic dermatitis
is design publication: false
mg_draft: false
mg_insertedOn: 2026-03-11T17:09:09
mg_updatedOn: 2026-03-11T17:09:09

BioDay http://doi.org/10.2340/actadv.v102.3978
type: Publications
type: Observation
endpoint URL: catalogue-rdf
data set: Publications
is part of: BioDay
resource: BioDay
doi: actadv.v102.3978
title: Daily Practice Experience of Baricitinib Treatment for Patients with Difficult-to-Treat Atopic Dermatitis: Results from the BioDay Registry
is design publication: false
mg_draft: false
mg_insertedOn: 2026-03-11T17:09:09
mg_updatedOn: 2026-03-11T17:09:09

BioDay http://doi.org/10.1001/jamadermatol.2024.2517
type: Publications
type: Observation
endpoint URL: catalogue-rdf
data set: Publications
is part of: BioDay
resource: BioDay
doi: jamadermatol.2024.2517
title: Long-Term Effectiveness and Reasons for Discontinuation of Dupilumab in Patients With Atopic Dermatitis
is design publication: false
mg_draft: false
mg_insertedOn: 2026-03-11T17:09:09
mg_updatedOn: 2026-03-11T17:09:09

BioDay https://doi.org/10.1111/cea.14305
type: Publications
type: Observation
endpoint URL: catalogue-rdf
data set: Publications
is part of: BioDay
resource: BioDay
doi: cea.14305
title: Switching from dupilumab to tralokinumab in atopic dermatitis patients with ocular surface disease: Preliminary case series
is design publication: false
mg_draft: false
mg_insertedOn: 2026-03-11T17:09:09
mg_updatedOn: 2026-03-11T17:09:09

BioDay https://doi.org/10.1111/all.15717
type: Publications
type: Observation
endpoint URL: catalogue-rdf
data set: Publications
is part of: BioDay
resource: BioDay
doi: all.15717
title: Dupilumab-associated ocular surface disease in atopic dermatitis patients: Clinical characteristics, ophthalmic treatment response and conjunctival goblet cell analysis
is design publication: false
mg_draft: false
mg_insertedOn: 2026-03-11T17:09:09
mg_updatedOn: 2026-03-11T17:09:09

BioDay https://doi.org/10.1002/clt2.12221
type: Publications
type: Observation
endpoint URL: catalogue-rdf
data set: Publications
is part of: BioDay
resource: BioDay
doi: clt2.12221
title: High dupilumab levels in tear fluid of atopic dermatitis patients with moderate‐to‐severe ocular surface disease
is design publication: false
mg_draft: false
mg_insertedOn: 2026-03-11T17:09:09
mg_updatedOn: 2026-03-11T17:09:09

BioDay http://doi.org/10.2340/actadv.v103.4842
type: Publications
type: Observation
endpoint URL: catalogue-rdf
data set: Publications
is part of: BioDay
resource: BioDay
doi: actadv.v103.4842
title: Economic and Humanistic Burden in Paediatric Patients with Atopic Dermatitis
is design publication: false
mg_draft: false
mg_insertedOn: 2026-03-11T17:09:09
mg_updatedOn: 2026-03-11T17:09:09

BioDay https://doi.org/10.1080/09273948.2023.2182325
type: Publications
type: Observation
endpoint URL: catalogue-rdf
data set: Publications
is part of: BioDay
resource: BioDay
doi: https://doi.org/10.1080/09273948.2023.2182325
title: Non-Infectious Uveitis Secondary to Dupilumab Treatment in Atopic Dermatitis Patients Shows a Pro- Inflammatory Molecular Profile
is design publication: false
mg_draft: false
mg_insertedOn: 2026-03-11T17:09:09
mg_updatedOn: 2026-03-11T17:09:09

BioDay https://doi.org/10.1111/cea.14442
type: Publications
type: Observation
endpoint URL: catalogue-rdf
data set: Publications
is part of: BioDay
resource: BioDay
doi: cea.14442
title: Differential dynamics of TARC during JAK-inhibitor therapy compared to biological therapies targeting type 2 inflammation
is design publication: false
mg_draft: false
mg_insertedOn: 2026-03-11T17:09:09
mg_updatedOn: 2026-03-11T17:09:09

BioDay http://doi.org/10.2340/actadv.v103.5243
type: Publications
type: Observation
endpoint URL: catalogue-rdf
data set: Publications
is part of: BioDay
resource: BioDay
doi: actadv.v103.5243
title: Effectiveness of Upadacitinib in Patients with Atopic Dermatitis including those with Inadequate Response to Dupilumab and/or Baricitinib: Results from the BioDay Registry
is design publication: false
mg_draft: false
mg_insertedOn: 2026-03-11T17:09:09
mg_updatedOn: 2026-03-11T17:09:09

BioDay https://doi.org/10.1111/jdv.19164
type: Publications
type: Observation
endpoint URL: catalogue-rdf
data set: Publications
is part of: BioDay
resource: BioDay
doi: jdv.19164
title: Limited excretion of dupilumab into breastmilk: A case report
is design publication: false
mg_draft: false
mg_insertedOn: 2026-03-11T17:09:09
mg_updatedOn: 2026-03-11T17:09:09

BioDay https://doi.org/10.1016/j.jid.2023.03.1659
type: Publications
type: Observation
endpoint URL: catalogue-rdf
data set: Publications
is part of: BioDay
resource: BioDay
doi: j.jid.2023.03.1659
title: Biological Tipping Point in Patients with Atopic Dermatitis Treated with Different Dosing Intervals of Dupilumab
is design publication: false
mg_draft: false
mg_insertedOn: 2026-03-11T17:09:09
mg_updatedOn: 2026-03-11T17:09:09

BioDay https://doi.org/10.1111/cea.14384
type: Publications
type: Observation
endpoint URL: catalogue-rdf
data set: Publications
is part of: BioDay
resource: BioDay
doi: cea.14384
title: IgE levels in patients with atopic dermatitis steadily decrease during treatment with dupilumab regardless of dose interval
is design publication: false
mg_draft: false
mg_insertedOn: 2026-03-11T17:09:09
mg_updatedOn: 2026-03-11T17:09:09

BioDay https://doi.org/10.1111/cod.14276
type: Publications
type: Observation
endpoint URL: catalogue-rdf
data set: Publications
is part of: BioDay
resource: BioDay
doi: cod.14276
title: Experiences from daily practice of upadacitinib treatment on atopic dermatitis with a focus on hand eczema: Results from the BioDay registry
is design publication: false
mg_draft: false
mg_insertedOn: 2026-03-11T17:09:09
mg_updatedOn: 2026-03-11T17:09:09

BioDay https://doi.org/10.1080/09546634.2023.2254567
type: Publications
type: Observation
endpoint URL: catalogue-rdf
data set: Publications
is part of: BioDay
resource: BioDay
doi: https://doi.org/10.1080/09546634.2023.2254567
title: Biologicals for pediatric patients with atopic dermatitis: practical challenges and knowledge gaps
is design publication: false
mg_draft: false
mg_insertedOn: 2026-03-11T17:09:09
mg_updatedOn: 2026-03-11T17:09:09

BioDay http://doi.org/10.1001/jamadermatol.2022.4639
type: Publications
type: Observation
endpoint URL: catalogue-rdf
data set: Publications
is part of: BioDay
resource: BioDay
doi: jamadermatol.2022.4639
title: Association of Serum Dupilumab Levels at 16Weeks With Treatment Response and Adverse Effects in Patients With Atopic Dermatitis
is design publication: false
mg_draft: false
mg_insertedOn: 2026-03-11T17:09:09
mg_updatedOn: 2026-03-11T17:09:09

BioDay http://doi.org/10.1001/jamadermatol.2022.3014
type: Publications
type: Observation
endpoint URL: catalogue-rdf
data set: Publications
is part of: BioDay
resource: BioDay
doi: jamadermatol.2022.3014
title: Dupilumab Drug Survival and Associated Predictors in Patients With Moderate to Severe Atopic Dermatitis
is design publication: false
mg_draft: false
mg_insertedOn: 2026-03-11T17:09:09
mg_updatedOn: 2026-03-11T17:09:09

BioDay https://doi.org/10.1111/all.15439
type: Publications
type: Observation
endpoint URL: catalogue-rdf
data set: Publications
is part of: BioDay
resource: BioDay
doi: all.15439
title: Patient-centered dupilumab dosing regimen leads to successful dose reduction in persistently controlled atopic dermatitis
is design publication: false
mg_draft: false
mg_insertedOn: 2026-03-11T17:09:09
mg_updatedOn: 2026-03-11T17:09:09

EPIC-NL https://doi.org/10.1093/ije/dyp217
type: Publications
type: Observation
endpoint URL: catalogue-rdf
data set: Publications
is part of: EPIC-NL
resource: EPIC-NL
doi: dyp217
title: Cohort Profile: The EPIC-NL study
is design publication: true
mg_insertedOn: 2026-03-11T17:09:09
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EPIC-NL https://link.springer.com/article/10.1023/A:1020009325797
type: Publications
type: Observation
endpoint URL: catalogue-rdf
data set: Publications
is part of: EPIC-NL
resource: EPIC-NL
doi: A:1020009325797
title: Prospect-EPIC Utrecht: study design and characteristics of the cohort population. European Prospective Investigation into Cancer and Nutrition
is design publication: true
reference: Boker LK, van Noord PA, van der Schouw YT, Koot NV, Bueno de Mesquita HB, Riboli E, Grobbee DE, Peeters PH. Prospect-EPIC Utrecht: study design and characteristics of the cohort population. European Prospective Investigation into Cancer and Nutrition. Eur J Epidemiol. 2001;17(11):1047-53. doi: 10.1023/a:1020009325797. PMID: 12380720.
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EPIC-NL https://academic.oup.com/ije/article/37/6/1236/729101?login=true
type: Publications
type: Observation
endpoint URL: catalogue-rdf
data set: Publications
is part of: EPIC-NL
resource: EPIC-NL
doi: https://academic.oup.com/ije/article/37/6/1236/729101
title: Cohort profile: the Doetinchem Cohort Study
is design publication: true
reference: Verschuren WM, Blokstra A, Picavet HS, Smit HA. Cohort profile: the Doetinchem Cohort Study. Int J Epidemiol. 2008 Dec;37(6):1236-41. doi: 10.1093/ije/dym292. Epub 2008 Jan 31. PMID: 18238821.
mg_draft: false
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MARS - Molecular Diagnosis and Risk Stratification of Sepsis https://doi.org/10.1186/s13054-015-1035-1
type: Publications
type: Observation
endpoint URL: catalogue-rdf
data set: Publications
is part of: MARS - Molecular Diagnosis and Risk Stratification of Sepsis
resource: MARS - Molecular Diagnosis and Risk Stratification of Sepsis
doi: s13054-015-1035-1
title: Likelihood of infection in patients with presumed sepsis at the time of intensive care unit admission: a cohort study
is design publication: false
mg_insertedOn: 2026-03-11T17:09:09
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MARS - Molecular Diagnosis and Risk Stratification of Sepsis https://doi.org/10.1164/rccm.201307-1376OC
type: Publications
type: Observation
endpoint URL: catalogue-rdf
data set: Publications
is part of: MARS - Molecular Diagnosis and Risk Stratification of Sepsis
resource: MARS - Molecular Diagnosis and Risk Stratification of Sepsis
doi: rccm.201307-1376OC
title: Electronic Implementation of a Novel Surveillance Paradigm for Ventilator-associated Events. Feasibility and Validation
is design publication: false
mg_insertedOn: 2026-03-11T17:09:09
mg_updatedOn: 2026-03-11T17:09:09

MARS - Molecular Diagnosis and Risk Stratification of Sepsis https://doi.org/10.1001/jama.2016.2691
type: Publications
type: Observation
endpoint URL: catalogue-rdf
data set: Publications
is part of: MARS - Molecular Diagnosis and Risk Stratification of Sepsis
resource: MARS - Molecular Diagnosis and Risk Stratification of Sepsis
doi: jama.2016.2691
title: Incidence, Risk Factors, and Attributable Mortality of Secondary Infections in the Intensive Care Unit After Admission for Sepsis
is design publication: false
mg_insertedOn: 2026-03-11T17:09:09
mg_updatedOn: 2026-03-11T17:09:09

MARS - Molecular Diagnosis and Risk Stratification of Sepsis https://doi.org/10.1097/ccm.0000000000002735
type: Publications
type: Observation
endpoint URL: catalogue-rdf
data set: Publications
is part of: MARS - Molecular Diagnosis and Risk Stratification of Sepsis
resource: MARS - Molecular Diagnosis and Risk Stratification of Sepsis
doi: ccm.0000000000002735
title: Validation of a Novel Molecular Host Response Assay to Diagnose Infection in Hospitalized Patients Admitted to the ICU With Acute Respiratory Failure
is design publication: false
mg_insertedOn: 2026-03-11T17:09:09
mg_updatedOn: 2026-03-11T17:09:09

The TWIN-study https://doi.org/10.1053/j.gastro.2021.01.030
type: Publications
type: Observation
endpoint URL: catalogue-rdf
data set: Publications
is part of: The TWIN-study
resource: The TWIN-study
doi: j.gastro.2021.01.030
title: Healthy Cotwins Share Gut Microbiome Signatures With Their Inflammatory Bowel Disease Twins and Unrelated Patients
reference: Brand, E. C., Klaassen, M. A. Y., Gacesa, R., Vich Vila, A., Ghosh, H., de Zoete, M. R., Boomsma, D. I., Hoentjen, F., Horjus Talabur Horje, C. S., van de Meeberg, P. C., Willemsen, G., Fu, J., Wijmenga, C., van Wijk, F., Zhernakova, A., Oldenburg, B., Weersma, R. K., & Dutch TWIN-IBD consortium and the Dutch Initiative on Crohn and Colitis (2021). Healthy Cotwins Share Gut Microbiome Signatures With Their Inflammatory Bowel Disease Twins and Unrelated Patients. Gastroenterology, 160(6), 1970–1985. https://doi.org/10.1053/j.gastro.2021.01.030
mg_draft: false
mg_insertedOn: 2026-03-11T17:09:09
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UMBRELLA https://doi.org/10.1007/s10549-017-4242-4
type: Publications
type: Observation
endpoint URL: catalogue-rdf
data set: Publications
is part of: UMBRELLA
resource: UMBRELLA
doi: s10549-017-4242-4
title: The Utrecht cohort for Multiple BREast cancer intervention studies and Long-term evaLuAtion (UMBRELLA): objectives, design, and baseline results
is design publication: true
mg_draft: false
mg_insertedOn: 2026-03-11T17:09:09
mg_updatedOn: 2026-03-11T17:09:09

VIOOL https://doi.org/10.1016/j.ijid.2025.108317
type: Publications
type: Observation
endpoint URL: catalogue-rdf
data set: Publications
is part of: VIOOL
resource: VIOOL
doi: j.ijid.2025.108317
title: Associations between virus single or coinfections and respiratory symptoms in young children; a community-based cohort study
mg_draft: false
mg_insertedOn: 2026-03-11T17:09:09
mg_updatedOn: 2026-03-11T17:09:09

Athero-Express https://doi.org/10.1007/s10564-004-2304-6
type: Publications
type: Observation
endpoint URL: catalogue-rdf
data set: Publications
is part of: Athero-Express
resource: Athero-Express
doi: s10564-004-2304-6
title: Athero-express: differential atherosclerotic plaque expression of mRNA and protein in relation to cardiovascular events and patient characteristics. Rationale and design
is design publication: true
mg_draft: false
mg_insertedOn: 2026-04-24T10:58:45
mg_updatedOn: 2026-04-24T10:58:45

Athero-Express https://doi.org/10.1159/000318160
type: Publications
type: Observation
endpoint URL: catalogue-rdf
data set: Publications
is part of: Athero-Express
resource: Athero-Express
doi: https://doi.org/10.1159/000318160
title: Aneurysm-express: human abdominal aortic aneurysm wall expression in relation to heterogeneity and vascular events - rationale and design
is design publication: true
mg_draft: false
mg_insertedOn: 2026-04-24T10:58:45
mg_updatedOn: 2026-04-24T10:58:45

Julius Huisartsen Netwerk https://doi.org/10.1186/s12913-018-3528-5
type: Publications
type: Observation
endpoint URL: catalogue-rdf
data set: Publications
is part of: Julius Huisartsen Netwerk
resource: Julius Huisartsen Netwerk
doi: s12913-018-3528-5
title: Routine primary care data for scientific research, quality of care programs and educational purposes: the Julius General Practitioners' Network (JGPN)
is design publication: true
mg_draft: false
mg_insertedOn: 2026-04-24T16:08:37
mg_updatedOn: 2026-04-24T16:08:37

http://catalogue.hdsu.nl/catalogue-rdf/api/rdf/SubpopulationCounts/ageGroup=Adult%20%2818%2B%20years%29&resource=MARS%20-%20Molecular%20Diagnosis%20and%20Risk%20Stratification%20of%20Sepsis&subpopulat…
type: Subpopulation counts
type: Observation
endpoint URL: catalogue-rdf
data set: Subpopulation counts
label: MARS - Molecular Diagnosis and Risk Stratification of Sepsis MARS - Molecular Diagnosis and Risk Stratification of Sepsis MARS - Molecular Diagnosis and Risk Stratification of Sepsis MARS-1 Adult (18+ years)
resource: MARS - Molecular Diagnosis and Risk Stratification of Sepsis
subpopulation: MARS - Molecular Diagnosis and Risk Stratification of Sepsis MARS - Molecular Diagnosis and Risk Stratification of Sepsis MARS-1
age group: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Adult%20%2818%2B%20years%29
mg_insertedOn: 2026-03-11T17:09:09
mg_updatedOn: 2026-03-11T17:09:09

ALL10 ALL10
type: Collection events
type: Observation
endpoint URL: catalogue-rdf
data set: Collection events
source: ALL10
resource: ALL10
title: ALL10
name: ALL10
pid: https://catalogue.hdsu.nl/HDSU/collections/ALL10/collection-events/ALL10
description: Protocol ALL 10, protocol voor diagnostiek en behandeling van kinderen en adolescenten (1-19 jaar) met Acute Lymfatische Leukemie (ALL)
source: ALL10 ALL10
subpopulations: ALL10 ALL10
keyword: Acute Lymfatische Leukemie
keywords: Acute Lymfatische Leukemie
start date: 2004-11-01
end date: 2012-04-30
age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Adolescent%20%2813-17%20years%29
age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Young%20adult%20%2818-24%20years%29
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age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Child%20%282-12%20years%29
number of participants: 778
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areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=General%20symptoms%20and%20signs%20%28R50-R69%29
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areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Chemotherapy%20interventions
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Other%20laboratory%20measures
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areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Biochemistry
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Death
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data categories: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/DataCategories/name=Biological%20samples
sample categories: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/SampleCategories/name=Granulocytes
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sample categories: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/SampleCategories/name=Leukocytes%2C%20Mononuclear
sample categories: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/SampleCategories/name=Serum
contact point: ALL10 Hester de Groot-Kruseman
publisher: ALL10 pmc
creator: ALL10 pmc
theme: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Themes/name=Health
theme: HEAL
access rights: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AccessRights/name=Non%20public
access rights: NON PUBLIC
applicable legislation: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Legislations/name=Data%20Governance%20Act
applicable legislation: oj
mg_draft: false
mg_insertedOn: 2026-03-11T17:09:09
mg_updatedOn: 2026-03-11T17:09:09

ALL11 ALL11
type: Collection events
type: Observation
endpoint URL: catalogue-rdf
data set: Collection events
source: ALL11
resource: ALL11
title: ALL11
name: ALL11
pid: https://catalogue.hdsu.nl/HDSU/collections/ALL11/collection-events/ALL11
description: PROTOCOL ALL 11: Treatment study protocol of the Dutch Childhood Oncology Group for Children and adolescents (1-19 year) with newly diagnosed acute lymphoblastic leukemia
source: ALL11 ALL11
subpopulations: ALL11 ALL11
keyword: Acute Lymfatische Leukemie
keywords: Acute Lymfatische Leukemie
start date: 2012-04-01
end date: 2020-07-31
age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Adolescent%20%2813-17%20years%29
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age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Infants%20and%20toddlers%20%282-23%20months%29
age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Child%20%282-12%20years%29
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theme: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Themes/name=Health
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access rights: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AccessRights/name=Non%20public
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applicable legislation: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Legislations/name=Data%20Governance%20Act
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mg_draft: false
mg_insertedOn: 2026-03-11T17:09:09
mg_updatedOn: 2026-03-11T17:09:09

BioDay BioDay Follow-up: 4 weeks
type: Collection events
type: Observation
endpoint URL: catalogue-rdf
data set: Collection events
source: BioDay
resource: BioDay
title: BioDay Follow-up: 4 weeks
name: BioDay Follow-up: 4 weeks
pid: https://catalogue.hdsu.nl/HDSU/collections/BioDay/collection-events/BioDay%20Follow-up:%204%20weeks
description: For lebrikizumab and JAK inhibitors only
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source: BioDay BioDay Hand eczema
subpopulations: BioDay BioDay Hand eczema
source: BioDay BioDay Atopic dermatitis
subpopulations: BioDay BioDay Atopic dermatitis
keyword: lebrikizumab
keywords: lebrikizumab
keyword: biologicals
keywords: biologicals
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keywords: JAK inhibitors
keyword: abrocitinib
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keyword: atopic dermatitis
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keyword: baricitinib
keywords: baricitinib
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keyword: prurigo nodularis
keywords: prurigo nodularis
keyword: registry
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keyword: multicenter
keywords: multicenter
keyword: daily practice
keywords: daily practice
keyword: tralokinumab
keywords: tralokinumab
keyword: real-world evidence
keywords: real-world evidence
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keywords: upadacitinib
keyword: dupilumab
keywords: dupilumab
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data categories: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/DataCategories/name=Imaging%20data
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standardized tools: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/StandardizedTools/name=Numeric%20%28Pain%29%20Rating%20Scale
standardized tools other: EASI, IGA (AD & PN), HECSI, NRS itch, NRS sleepdeprivation, IDQOL, CDLQI, CGAD, PGAD, RECAP proxy, RECAP, PGATE
core variables: Novel/avanced AD/PN systemic medication use, EASI, IGA, NRS itch, DLQI, Adverse events
publisher: BioDay UMCU
creator: BioDay Isala Ziekenhuis
creator: BioDay Catharina Ziekenhuis
creator: BioDay Radboudumc
creator: BioDay ZorgSaam
creator: BioDay WKZ

BioDay BioDay Inclusion
type: Collection events
type: Observation
endpoint URL: catalogue-rdf
data set: Collection events
source: BioDay
resource: BioDay
title: BioDay Inclusion
name: BioDay Inclusion
pid: https://catalogue.hdsu.nl/HDSU/collections/BioDay/collection-events/BioDay%20Inclusion
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subpopulations: BioDay BioDay Prurigo nodularis
source: BioDay BioDay Hand eczema
subpopulations: BioDay BioDay Hand eczema
source: BioDay BioDay Atopic dermatitis
subpopulations: BioDay BioDay Atopic dermatitis
keyword: lebrikizumab
keywords: lebrikizumab
keyword: biologicals
keywords: biologicals
keyword: JAK inhibitors
keywords: JAK inhibitors
keyword: abrocitinib
keywords: abrocitinib
keyword: atopic dermatitis
keywords: atopic dermatitis
keyword: baricitinib
keywords: baricitinib
keyword: atopic comorbidities
keywords: atopic comorbidities
keyword: prurigo nodularis
keywords: prurigo nodularis
keyword: registry
keywords: registry
keyword: multicenter
keywords: multicenter
keyword: daily practice
keywords: daily practice
keyword: tralokinumab
keywords: tralokinumab
keyword: real-world evidence
keywords: real-world evidence
keyword: upadacitinib
keywords: upadacitinib
keyword: dupilumab
keywords: dupilumab
number of participants: 2000
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areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Medication%20and%20supplement%20intake
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Skin%20and%20subcutaneous%20tissue
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Surgical%20interventions
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Age%2Fbirthdate
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Hematology
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Symptoms%20and%20signs%20involving%20the%20skin%20and%20subcutaneous%20tissue%20%28R20-R23%29
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Quality%20of%20life
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Drugs
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Immunology
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Ethnicity%2C%20race%20and%20religion
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Education
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Sex%2Fgender
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Perception%20of%20health
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Anthropometry
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Tobacco
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Hospitalizations
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Physical%20characteristics
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Biochemistry
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Microbiology
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Alcohol
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Sleep
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Contraception
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Labour%20force%20and%20retirement
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Virology
standardized tools: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/StandardizedTools/name=Work%20Productivity%20and%20Activity%20Impairment%20questionnaire
standardized tools: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/StandardizedTools/name=Numeric%20%28Pain%29%20Rating%20Scale
standardized tools: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/StandardizedTools/name=PROMIS%20Short%20Form%20v1.0%20-%20Fatigue%208a
standardized tools: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/StandardizedTools/name=Asthma%20Control%20Questionnaire
standardized tools: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/StandardizedTools/name=Numeric%20Rating%20Scale
standardized tools other: EASI, IGA (AD & PN), HECSI, NRS itch, NRS sleep deprivation, IDQOL, CDLQI, CGAD, DFI, ACT 4-11y, PGAD, RECAP proxy, WPAI-GH proxy, ACT 12-17y, RECAP, PROMIS Social Health (short version), PGATE, QOLHEQ
core variables: Age, Gender, Novel/advanced systemic AD/PN medication, EASI, IGA, NRS itch, DLQI

BioDay BioDay Follow-up: every 3 months
type: Collection events
type: Observation
endpoint URL: catalogue-rdf
data set: Collection events
source: BioDay
resource: BioDay
title: BioDay Follow-up: every 3 months
name: BioDay Follow-up: every 3 months
pid: https://catalogue.hdsu.nl/HDSU/collections/BioDay/collection-events/BioDay%20Follow-up:%20every%203%20months
description: Follow-up: every 3 months
source: BioDay BioDay Prurigo nodularis
subpopulations: BioDay BioDay Prurigo nodularis
source: BioDay BioDay Hand eczema
subpopulations: BioDay BioDay Hand eczema
source: BioDay BioDay Atopic dermatitis
subpopulations: BioDay BioDay Atopic dermatitis
keyword: lebrikizumab
keywords: lebrikizumab
keyword: biologicals
keywords: biologicals
keyword: JAK inhibitors
keywords: JAK inhibitors
keyword: abrocitinib
keywords: abrocitinib
keyword: atopic dermatitis
keywords: atopic dermatitis
keyword: baricitinib
keywords: baricitinib
keyword: atopic comorbidities
keywords: atopic comorbidities
keyword: prurigo nodularis
keywords: prurigo nodularis
keyword: registry
keywords: registry
keyword: multicenter
keywords: multicenter
keyword: daily practice
keywords: daily practice
keyword: tralokinumab
keywords: tralokinumab
keyword: real-world evidence
keywords: real-world evidence
keyword: upadacitinib
keywords: upadacitinib
keyword: dupilumab
keywords: dupilumab
number of participants: 2000
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Sleep
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Medication%20and%20supplement%20intake
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Surgical%20interventions
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Other%20psychological%20measures%20and%20assessments
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Biochemistry
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Skin%20and%20subcutaneous%20tissue
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Contraception
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Hematology
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Cause%20of%20death
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Quality%20of%20life
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Immunology
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Symptoms%20and%20signs%20involving%20the%20skin%20and%20subcutaneous%20tissue%20%28R20-R23%29
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Hospitalizations
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Perception%20of%20health
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Vital%20status
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Physical%20characteristics
data categories: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/DataCategories/name=Biological%20samples
data categories: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/DataCategories/name=Physiological%2FBiochemical%20measurements
data categories: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/DataCategories/name=Imaging%20data
data categories: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/DataCategories/name=Medical%20records
data categories: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/DataCategories/name=Survey%20data
data categories: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/DataCategories/name=Other
standardized tools: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/StandardizedTools/name=Numeric%20Rating%20Scale
standardized tools: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/StandardizedTools/name=Asthma%20Control%20Questionnaire
standardized tools: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/StandardizedTools/name=Work%20Productivity%20and%20Activity%20Impairment%20questionnaire
standardized tools: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/StandardizedTools/name=Numeric%20%28Pain%29%20Rating%20Scale
standardized tools other: EASI, IGA (AD & PN), HECSI, NRS itch, NRS sleepdeprivation, IDQOL, CDLQI, CGAD, PGAD, RECAP proxy, RECAP, PGATE (+every 6 months: PROMIS Social Health [SV], QOLHEQ, DFI, ACT 12-17y, ACT 4-11y)
core variables: Novel/avanced AD/PN systemic medication use, EASI, IGA, NRS itch, DLQI, Adverse events
publisher: BioDay UMCU
creator: BioDay Isala Ziekenhuis
creator: BioDay Catharina Ziekenhuis
creator: BioDay Radboudumc

EPIC-NL EPIC-NL Follow-Up 2011
type: Collection events
type: Observation
endpoint URL: catalogue-rdf
data set: Collection events
source: EPIC-NL
resource: EPIC-NL
title: EPIC-NL Follow-Up 2011
name: EPIC-NL Follow-Up 2011
pid: https://catalogue.hdsu.nl/HDSU/collections/EPIC-NL/collection-events/EPIC-NL%20Follow-Up%202011
description: Third follow-up in 2011 consisting of questionnaires
source: EPIC-NL EPIC-NL Prospect-EPIC
subpopulations: EPIC-NL EPIC-NL Prospect-EPIC
source: EPIC-NL EPIC-NL MORGEN-EPIC
subpopulations: EPIC-NL EPIC-NL MORGEN-EPIC
keyword: diabetes
keywords: diabetes
keyword: cardiovascular disease
keywords: cardiovascular disease
keyword: lifestyle
keywords: lifestyle
keyword: nutrition
keywords: nutrition
keyword: environmental exposure
keywords: environmental exposure
keyword: cancer
keywords: cancer
keyword: morbidity
keywords: morbidity
keyword: chronic disease
keywords: chronic disease
start date: 2011-01-01
age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Adult%20%2818%2B%20years%29
age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Aged%20%2865%2B%20years%29
age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Young%20adult%20%2818-24%20years%29
age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Adult%20%2825-44%20years%29
age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Aged%20%2880%2B%20years%29
age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Middle-aged%20%2845-64%20years%29
age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Aged%20%2865-79%20years%29
number of participants: 13961
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Tobacco
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Anthropometry
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Workplace%20characteristics
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Symptoms%20and%20signs%20involving%20cognition%2C%20perception%2C%20emotional%20state%20and%20behaviour%20%28R40-R46…
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Fertility%20and%20sexual%20health
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Physical%20activity
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Sleep
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Medication%20and%20supplement%20intake
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Symptoms%20and%20signs%20involving%20the%20circulatory%20and%20respiratory%20systems%20%28R00-R09%29
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Psychological%20distress%20and%20emotions
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Puberty%2C%20menstruation%2C%20menopause%20and%20andropause
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Alcohol
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Symptoms%20and%20signs%20involving%20the%20skin%20and%20subcutaneous%20tissue%20%28R20-R23%29
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Housing%20characteristics
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Chemical%20exposure
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Other%20perception%20of%20health%2C%20quality%20of%20life%20and%20functional%20limitation-related%20information
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Contraception
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Radiation%20exposure
data categories: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/DataCategories/name=Survey%20data
core variables: tinnitus, parkinson, migraine, depression; diabetes, cancer; pain
contact point: EPIC-NL EPIC-NL Study team
publisher: EPIC-NL UMCU
creator: EPIC-NL RIVM
creator: EPIC-NL UMCU
theme: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Themes/name=Health
theme: HEAL
access rights: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AccessRights/name=Non%20public
access rights: NON PUBLIC
applicable legislation: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Legislations/name=Data%20Governance%20Act
applicable legislation: oj
mg_draft: false
mg_insertedOn: 2026-03-11T17:09:09
mg_updatedOn: 2026-03-11T17:09:09

EPIC-NL EPIC-NL Follow-Up MORGEN-EPIC 2005
type: Collection events
type: Observation
endpoint URL: catalogue-rdf
data set: Collection events
source: EPIC-NL
resource: EPIC-NL
title: EPIC-NL Follow-Up MORGEN-EPIC 2005
name: EPIC-NL Follow-Up MORGEN-EPIC 2005
pid: https://catalogue.hdsu.nl/HDSU/collections/EPIC-NL/collection-events/EPIC-NL%20Follow-Up%20MORGEN-EPIC%202005
description: Second follow-up for MORGEN-EPIC subcohort in 2005 consisting of questionnaires
source: EPIC-NL EPIC-NL MORGEN-EPIC
subpopulations: EPIC-NL EPIC-NL MORGEN-EPIC
keyword: diabetes
keywords: diabetes
keyword: cardiovascular disease
keywords: cardiovascular disease
keyword: lifestyle
keywords: lifestyle
keyword: nutrition
keywords: nutrition
keyword: environmental exposure
keywords: environmental exposure
keyword: cancer
keywords: cancer
keyword: morbidity
keywords: morbidity
keyword: chronic disease
keywords: chronic disease
start date: 2005-01-01
age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Adult%20%2818%2B%20years%29
age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Aged%20%2865%2B%20years%29
age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Young%20adult%20%2818-24%20years%29
age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Adult%20%2825-44%20years%29
age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Aged%20%2880%2B%20years%29
age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Middle-aged%20%2845-64%20years%29
age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Aged%20%2865-79%20years%29
number of participants: 12230
contact point: EPIC-NL EPIC-NL Study team
publisher: EPIC-NL UMCU
creator: EPIC-NL RIVM
creator: EPIC-NL UMCU
theme: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Themes/name=Health
theme: HEAL
access rights: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AccessRights/name=Non%20public
access rights: NON PUBLIC
applicable legislation: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Legislations/name=Data%20Governance%20Act
applicable legislation: oj
mg_draft: false
mg_insertedOn: 2026-03-11T17:09:09
mg_updatedOn: 2026-03-11T17:09:09

EPIC-NL EPIC-NL Follow-Up 1999
type: Collection events
type: Observation
endpoint URL: catalogue-rdf
data set: Collection events
source: EPIC-NL
resource: EPIC-NL
title: EPIC-NL Follow-Up 1999
name: EPIC-NL Follow-Up 1999
pid: https://catalogue.hdsu.nl/HDSU/collections/EPIC-NL/collection-events/EPIC-NL%20Follow-Up%201999
description: Participants receive questionnaire in 1999
source: EPIC-NL EPIC-NL Prospect-EPIC
subpopulations: EPIC-NL EPIC-NL Prospect-EPIC
source: EPIC-NL EPIC-NL MORGEN-EPIC
subpopulations: EPIC-NL EPIC-NL MORGEN-EPIC
keyword: diabetes
keywords: diabetes
keyword: lifestyle
keywords: lifestyle
keyword: cardiovascular disease
keywords: cardiovascular disease
keyword: nutrition
keywords: nutrition
keyword: cancer
keywords: cancer
keyword: morbidity
keywords: morbidity
keyword: chronic disease
keywords: chronic disease
start date: 1999-01-01
age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Adult%20%2818%2B%20years%29
age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Aged%20%2865%2B%20years%29
age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Young%20adult%20%2818-24%20years%29
age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Adult%20%2825-44%20years%29
age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Aged%20%2880%2B%20years%29
age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Middle-aged%20%2845-64%20years%29
age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Aged%20%2865-79%20years%29
number of participants: 2849
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=General%20symptoms%20and%20signs%20%28R50-R69%29
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Tobacco
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Symptoms%20and%20signs%20involving%20nervous%20and%20musculoskeletal%20systems%20%28R25-R29%29
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Physical%20activity
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Transportation
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Alcohol
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Hospitalizations
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Contraception
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Other%20reproductive%20health-related%20information
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Symptoms%20and%20signs%20involving%20the%20circulatory%20and%20respiratory%20systems%20%28R00-R09%29
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Puberty%2C%20menstruation%2C%20menopause%20and%20andropause
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Symptoms%20and%20signs%20involving%20the%20digestive%20system%20and%20abdomen%20%28R10-R19%29
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Medication%20and%20supplement%20intake
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Visits%20to%20health%20professionals
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Anthropometry
data categories: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/DataCategories/name=National%20registries
data categories: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/DataCategories/name=Survey%20data
core variables: weight loss/gain, variation of weight and probable cause of change; illness; medication; activity, family health history
contact point: EPIC-NL EPIC-NL Study team
publisher: EPIC-NL UMCU
creator: EPIC-NL RIVM
creator: EPIC-NL UMCU
theme: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Themes/name=Health
theme: HEAL
access rights: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AccessRights/name=Non%20public
access rights: NON PUBLIC
applicable legislation: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Legislations/name=Data%20Governance%20Act
applicable legislation: oj
mg_draft: false
mg_insertedOn: 2026-03-11T17:09:09
mg_updatedOn: 2026-03-11T17:09:09

EPIC-NL EPIC-NL Follow-Up 2015
type: Collection events
type: Observation
endpoint URL: catalogue-rdf
data set: Collection events
source: EPIC-NL
resource: EPIC-NL
title: EPIC-NL Follow-Up 2015
name: EPIC-NL Follow-Up 2015
pid: https://catalogue.hdsu.nl/HDSU/collections/EPIC-NL/collection-events/EPIC-NL%20Follow-Up%202015
description: Fourth follow-up in 2015 consisting of questionnaires
source: EPIC-NL EPIC-NL Prospect-EPIC
subpopulations: EPIC-NL EPIC-NL Prospect-EPIC
source: EPIC-NL EPIC-NL MORGEN-EPIC
subpopulations: EPIC-NL EPIC-NL MORGEN-EPIC
keyword: diabetes
keywords: diabetes
keyword: lifestyle
keywords: lifestyle
keyword: cardiovascular disease
keywords: cardiovascular disease
keyword: nutrition
keywords: nutrition
keyword: cancer
keywords: cancer
keyword: morbidity
keywords: morbidity
keyword: chronic disease
keywords: chronic disease
start date: 2015-01-01
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EPIC-NL EPIC-NL Follow-Up 2003 for Prospect-EPIC
type: Collection events
type: Observation
endpoint URL: catalogue-rdf
data set: Collection events
source: EPIC-NL
resource: EPIC-NL
title: EPIC-NL Follow-Up 2003 for Prospect-EPIC
name: EPIC-NL Follow-Up 2003 for Prospect-EPIC
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description: Second follow-up for Prospect-EPIC subcohort in 2003 consisting of questionnaires
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subpopulations: EPIC-NL EPIC-NL Prospect-EPIC
keyword: diabetes
keywords: diabetes
keyword: lifestyle
keywords: lifestyle
keyword: cardiovascular disease
keywords: cardiovascular disease
keyword: nutrition
keywords: nutrition
keyword: cancer
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keyword: morbidity
keywords: morbidity
keyword: chronic disease
keywords: chronic disease
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areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Symptoms%20and%20signs%20involving%20nervous%20and%20musculoskeletal%20systems%20%28R25-R29%29
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EPIC-NL EPIC-NL baseline
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type: Observation
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resource: EPIC-NL
title: EPIC-NL baseline
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subpopulations: EPIC-NL EPIC-NL Prospect-EPIC
source: EPIC-NL EPIC-NL MORGEN-EPIC
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keyword: diabetes
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keyword: morbidity
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keyword: bloodsamples
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keyword: cardiovascular disease
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keyword: lifestyle
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keyword: environmental exposure
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start date: 1993-01-01
end date: 1997-12-31
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MARS - Molecular Diagnosis and Risk Stratification of Sepsis MARS - Molecular Diagnosis and Risk Stratification of Sepsis Daily plasma collection
type: Collection events
type: Observation
endpoint URL: catalogue-rdf
data set: Collection events
source: MARS - Molecular Diagnosis and Risk Stratification of Sepsis
resource: MARS - Molecular Diagnosis and Risk Stratification of Sepsis
title: MARS - Molecular Diagnosis and Risk Stratification of Sepsis Daily plasma collection
name: MARS - Molecular Diagnosis and Risk Stratification of Sepsis Daily plasma collection
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description: 2x 450 uL EDTA plasma 2x 900 uL Lithiumheparin plasma 2x 900 uL citrate plasma
source: MARS - Molecular Diagnosis and Risk Stratification of Sepsis MARS - Molecular Diagnosis and Risk Stratification of Sepsis MARS-1
subpopulations: MARS - Molecular Diagnosis and Risk Stratification of Sepsis MARS - Molecular Diagnosis and Risk Stratification of Sepsis MARS-1
keyword: Heparin
keywords: Heparin
keyword: Pathogen detection
keywords: Pathogen detection
keyword: EDTA
keywords: EDTA
keyword: Prospective
keywords: Prospective
keyword: Citrate
keywords: Citrate
keyword: Biomarkers
keywords: Biomarkers
keyword: Clinical
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keyword: Intensive Care
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keyword: Pneumonia
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keyword: ICU
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keyword: Infections
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keyword: Plasma
keywords: Plasma
keyword: Blood samples
keywords: Blood samples
keyword: Vital signs
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keyword: Biobank
keywords: Biobank
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end date: 2013-12-31
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sample categories: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/SampleCategories/name=Plasma
contact point: MARS - Molecular Diagnosis and Risk Stratification of Sepsis Olaf Cremer
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MARS - Molecular Diagnosis and Risk Stratification of Sepsis MARS - Molecular Diagnosis and Risk Stratification of Sepsis Daily plasma collection UMCU
type: Collection events
type: Observation
endpoint URL: catalogue-rdf
data set: Collection events
source: MARS - Molecular Diagnosis and Risk Stratification of Sepsis
resource: MARS - Molecular Diagnosis and Risk Stratification of Sepsis
title: MARS - Molecular Diagnosis and Risk Stratification of Sepsis Daily plasma collection UMCU
name: MARS - Molecular Diagnosis and Risk Stratification of Sepsis Daily plasma collection UMCU
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description: 2x 450 uL EDTA plasma 2x 900 uL Lithiumheparin plasma (until 31-OCT-2016) 2x 900 uL Na-heparin plasma (from 1-NOV-2016 until 2-NOV-2021 ) 2x 600 uL Na-heparin plasma (from 3-NOV-2021) 2x 900 uL citrate plasma (if available, no longer daily since 12-MAR-2015)
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subpopulations: MARS - Molecular Diagnosis and Risk Stratification of Sepsis MARS - Molecular Diagnosis and Risk Stratification of Sepsis MARS-2B
source: MARS - Molecular Diagnosis and Risk Stratification of Sepsis MARS - Molecular Diagnosis and Risk Stratification of Sepsis MARS-2A
subpopulations: MARS - Molecular Diagnosis and Risk Stratification of Sepsis MARS - Molecular Diagnosis and Risk Stratification of Sepsis MARS-2A
keyword: Heparin
keywords: Heparin
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keywords: Pathogen detection
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keyword: Prospective
keywords: Prospective
keyword: Citrate
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keyword: Clinical
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keyword: Intensive Care
keywords: Intensive Care
keyword: Cohort
keywords: Cohort
keyword: Pneumonia
keywords: Pneumonia
keyword: ICU
keywords: ICU
keyword: Infections
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keyword: Plasma
keywords: Plasma
keyword: Blood samples
keywords: Blood samples
keyword: Vital signs
keywords: Vital signs
keyword: Biobank
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end date: 2023-12-31
data categories: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/DataCategories/name=Biological%20samples
sample categories: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/SampleCategories/name=Plasma
contact point: MARS - Molecular Diagnosis and Risk Stratification of Sepsis Olaf Cremer
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creator: MARS - Molecular Diagnosis and Risk Stratification of Sepsis AMC
creator: MARS - Molecular Diagnosis and Risk Stratification of Sepsis UMCU
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MARS - Molecular Diagnosis and Risk Stratification of Sepsis MARS - Molecular Diagnosis and Risk Stratification of Sepsis Daily plasma collection UMCU-3
type: Collection events
type: Observation
endpoint URL: catalogue-rdf
data set: Collection events
source: MARS - Molecular Diagnosis and Risk Stratification of Sepsis
resource: MARS - Molecular Diagnosis and Risk Stratification of Sepsis
title: MARS - Molecular Diagnosis and Risk Stratification of Sepsis Daily plasma collection UMCU-3
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description: 2x 450 uL EDTA plasma 2x 600 uL Na-heparin plasma (until 23-JAN-2023) 2x 600 uL Lithiumheparin plasma (from 24-JAN-2023) 2x 900 uL citrate plasma (if available)
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MARS - Molecular Diagnosis and Risk Stratification of Sepsis MARS - Molecular Diagnosis and Risk Stratification of Sepsis PAX-gene collection AMC
type: Collection events
type: Observation
endpoint URL: catalogue-rdf
data set: Collection events
source: MARS - Molecular Diagnosis and Risk Stratification of Sepsis
resource: MARS - Molecular Diagnosis and Risk Stratification of Sepsis
title: MARS - Molecular Diagnosis and Risk Stratification of Sepsis PAX-gene collection AMC
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description: PAX-gene collection upon admisison and at every new episode of sepsis/organ failure in the AMC cohort 2011-2012: 2.5 mL 2012-2013: 2x 2.5mL
source: MARS - Molecular Diagnosis and Risk Stratification of Sepsis MARS - Molecular Diagnosis and Risk Stratification of Sepsis MARS-1
subpopulations: MARS - Molecular Diagnosis and Risk Stratification of Sepsis MARS - Molecular Diagnosis and Risk Stratification of Sepsis MARS-1
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keyword: Pathogen detection
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keyword: EDTA
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keyword: Prospective
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keyword: Citrate
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keyword: Biomarkers
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keyword: Intensive Care
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start date: 2011-01-01
end date: 2013-12-31
data categories: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/DataCategories/name=Biological%20samples
sample categories: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/SampleCategories/name=RNA
contact point: MARS - Molecular Diagnosis and Risk Stratification of Sepsis Olaf Cremer
publisher: MARS - Molecular Diagnosis and Risk Stratification of Sepsis UMCU
creator: MARS - Molecular Diagnosis and Risk Stratification of Sepsis AMC
creator: MARS - Molecular Diagnosis and Risk Stratification of Sepsis UMCU
theme: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Themes/name=Health
theme: HEAL
access rights: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AccessRights/name=Non%20public
access rights: NON PUBLIC
applicable legislation: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Legislations/name=Data%20Governance%20Act
applicable legislation: oj
mg_draft: false
mg_insertedOn: 2026-03-11T17:09:09
mg_updatedOn: 2026-03-11T17:09:09

The TWIN-study Baseline
type: Collection events
type: Observation
endpoint URL: catalogue-rdf
data set: Collection events
source: The TWIN-study
resource: The TWIN-study
title: Baseline
name: Baseline
pid: https://catalogue.hdsu.nl/HDSU/collections/The%20TWIN-study/collection-events/Baseline
description: At baseline, demographic factors, environmental data and disease characteristics will be collected from all participants. If specific informed consent is obtained, also nutritional questionnaire data, 60mL blood, faecal samples, saliva samples, urine samples and rectal biopsies will be collected.
source: The TWIN-study Twins
subpopulations: The TWIN-study Twins
keyword: baseline
keywords: baseline
keyword: start
keywords: start
keyword: T=0
keywords: T=0
start date: 2017-10-18
age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Young%20adult%20%2818-24%20years%29
age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Aged%20%2865%2B%20years%29
age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Adult%20%2818%2B%20years%29
age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Adolescent%20%2813-17%20years%29
age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Adult%20%2825-44%20years%29
age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Aged%20%2865-79%20years%29
age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Aged%20%2880%2B%20years%29
age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Middle-aged%20%2845-64%20years%29
number of participants: 138
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Other%20preschool%2C%20school%20or%20work%20life-related%20information
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Immunology
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Biological%20exposure
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Symptoms%20and%20signs%20involving%20the%20digestive%20system%20and%20abdomen%20%28R10-R19%29
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Biochemistry
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Genomics
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Hematology
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Microbiology
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Parenting%20and%20familial%20environment
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Other%20physical%20environment%20characteristics
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Psychological%20distress%20and%20emotions
data categories: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/DataCategories/name=Genomics
data categories: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/DataCategories/name=Medical%20records
data categories: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/DataCategories/name=Proteomics
data categories: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/DataCategories/name=Survey%20data
data categories: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/DataCategories/name=Metabolomics
data categories: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/DataCategories/name=Transcriptomics
data categories: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/DataCategories/name=Biological%20samples
data categories: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/DataCategories/name=Omics
sample categories: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/SampleCategories/name=Rectum%20-%20Tissue%20%28FFPE%29
sample categories: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/SampleCategories/name=Feces
sample categories: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/SampleCategories/name=Urine%2C%20first%20morning
sample categories: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/SampleCategories/name=Rectum%20-%20Tissue%20%28Frozen%29
sample categories: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/SampleCategories/name=Blood%20%28whole%29
sample categories: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/SampleCategories/name=Serum
sample categories: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/SampleCategories/name=Sputum
sample categories: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/SampleCategories/name=Plasma
standardized tools: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/StandardizedTools/name=Food%20Frequency%20Questionnaire
standardized tools: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/StandardizedTools/name=Food%20Frequency%20Questionnaire%20%28different%20forms%29
standardized tools: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/StandardizedTools/name=Health%20Assessment%20Questionnaire-Disability%20Index%20%28Nederlandse%20consensus%29%20%2F%20Vragenlijst%20Dagelijks%20Fun…
standardized tools other: short-IBD-Q, CDAI
core variables: nutritional questionnaire data
core variables: environmental data
core variables: blood
core variables: rectal biopsies
core variables: urine
core variables: demographic factors
core variables: saliva
core variables: disease characteristics
core variables: feces
contact point: The TWIN-study Sarah Luna Dijkstra
publisher: The TWIN-study UMC Utrecht
creator: The TWIN-study UMC Utrecht
theme: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Themes/name=Health
theme: HEAL
access rights: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AccessRights/name=Non%20public
access rights: NON PUBLIC
applicable legislation: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Legislations/name=Data%20Governance%20Act
applicable legislation: oj
mg_draft: false
mg_insertedOn: 2026-03-11T17:09:09

The TWIN-study Follow-up
type: Collection events
type: Observation
endpoint URL: catalogue-rdf
data set: Collection events
source: The TWIN-study
resource: The TWIN-study
title: Follow-up
name: Follow-up
pid: https://catalogue.hdsu.nl/HDSU/collections/The%20TWIN-study/collection-events/Follow-up
description: At follow-up, demographic factors, environmental data and disease characteristics will be collected from all participants. If specific informed consent is obtained, also nutritional questionnaire data, 60mL blood, faecal samples, saliva samples, urine samples and rectal biopsies will be collected. Follow-up takes place each year after the baseline study event.
source: The TWIN-study Twins
subpopulations: The TWIN-study Twins
keyword: follow-up
keywords: follow-up
start date: 2017-10-18
age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Young%20adult%20%2818-24%20years%29
age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Aged%20%2865%2B%20years%29
age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Adult%20%2818%2B%20years%29
age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Adolescent%20%2813-17%20years%29
age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Adult%20%2825-44%20years%29
age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Aged%20%2865-79%20years%29
age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Aged%20%2880%2B%20years%29
age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Middle-aged%20%2845-64%20years%29
number of participants: 138
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Other%20preschool%2C%20school%20or%20work%20life-related%20information
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Immunology
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Biological%20exposure
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Symptoms%20and%20signs%20involving%20the%20digestive%20system%20and%20abdomen%20%28R10-R19%29
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Biochemistry
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Genomics
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Hematology
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Microbiology
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Parenting%20and%20familial%20environment
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Other%20physical%20environment%20characteristics
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Psychological%20distress%20and%20emotions
data categories: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/DataCategories/name=Genomics
data categories: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/DataCategories/name=Medical%20records
data categories: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/DataCategories/name=Proteomics
data categories: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/DataCategories/name=Survey%20data
data categories: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/DataCategories/name=Metabolomics
data categories: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/DataCategories/name=Transcriptomics
data categories: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/DataCategories/name=Biological%20samples
data categories: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/DataCategories/name=Omics
sample categories: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/SampleCategories/name=Rectum%20-%20Tissue%20%28FFPE%29
sample categories: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/SampleCategories/name=Feces
sample categories: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/SampleCategories/name=Urine%2C%20first%20morning
sample categories: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/SampleCategories/name=Rectum%20-%20Tissue%20%28Frozen%29
sample categories: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/SampleCategories/name=Blood%20%28whole%29
sample categories: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/SampleCategories/name=Serum
sample categories: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/SampleCategories/name=Sputum
sample categories: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/SampleCategories/name=Plasma
standardized tools: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/StandardizedTools/name=Food%20Frequency%20Questionnaire
standardized tools: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/StandardizedTools/name=Food%20Frequency%20Questionnaire%20%28different%20forms%29
standardized tools: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/StandardizedTools/name=Health%20Assessment%20Questionnaire-Disability%20Index%20%28Nederlandse%20consensus%29%20%2F%20Vragenlijst%20Dagelijks%20Fun…
standardized tools other: short-IBD-Q, CDAI
core variables: nutritional questionnaire data
core variables: environmental data
core variables: blood
core variables: rectal biopsies
core variables: urine
core variables: demographic factors
core variables: saliva
core variables: disease characteristics
core variables: feces
contact point: The TWIN-study Sarah Luna Dijkstra
publisher: The TWIN-study UMC Utrecht
creator: The TWIN-study UMC Utrecht
theme: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Themes/name=Health
theme: HEAL
access rights: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AccessRights/name=Non%20public
access rights: NON PUBLIC
applicable legislation: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Legislations/name=Data%20Governance%20Act
applicable legislation: oj
mg_draft: false
mg_insertedOn: 2026-03-11T17:09:09
mg_updatedOn: 2026-03-11T17:09:09

UMBRELLA UMBRELLA Breast cancer
type: Collection events
type: Observation
endpoint URL: catalogue-rdf
data set: Collection events
source: UMBRELLA
resource: UMBRELLA
title: UMBRELLA Breast cancer
name: UMBRELLA Breast cancer
description: The Utrecht cohort for Multiple BREast cancer intervention studies and Long-term evaLuAtion (UMBRELLA) includes patients with histologically proven invasive breast cancer or ductal carcinoma in situ (DCIS) referred for breast cancer treatment. UMBRELLA holds the Trials within Cohorts study design. Participants are followed-up for 10 years.
source: UMBRELLA UMBRELLA participants
subpopulations: UMBRELLA UMBRELLA participants
keyword: Breast cancer, prospective cohort, multicenter, quality of life, Trials within Cohorts
keywords: Breast cancer, prospective cohort, multicenter, quality of life, Trials within Cohorts
start date: 2013-10-01
age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Adult%20%2818%2B%20years%29
age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Aged%20%2865%2B%20years%29
age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Young%20adult%20%2818-24%20years%29
age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Adult%20%2825-44%20years%29
age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Aged%20%2880%2B%20years%29
age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Middle-aged%20%2845-64%20years%29
age groups: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgeGroups/name=Aged%20%2865-79%20years%29
number of participants: 8100
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Symptoms%20and%20signs%20involving%20cognition%2C%20perception%2C%20emotional%20state%20and%20behaviour%20%28R40-R46…
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Other%20perception%20of%20health%2C%20quality%20of%20life%20and%20functional%20limitation-related%20information
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Sexual%20behaviours%20and%20orientation
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Symptoms%20and%20signs%20involving%20the%20urinary%20system%20%28R30-R39%29
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Quality%20of%20life
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Radiological%20interventions
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Alcohol
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Sleep
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Symptoms%20related%20to%20multiple%20categories
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Symptoms%20and%20signs%20involving%20the%20circulatory%20and%20respiratory%20systems%20%28R00-R09%29
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Family%20and%20household%20structure
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Symptoms%20and%20signs%20involving%20the%20digestive%20system%20and%20abdomen%20%28R10-R19%29
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Physical%20therapy%20interventions
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Cognitive%2C%20psychological%20and%20sensory%20interventions
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Age%2Fbirthdate
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=General%20symptoms%20and%20signs%20%28R50-R69%29
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Functional%20limitations
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Symptoms%20and%20signs%20involving%20nervous%20and%20musculoskeletal%20systems%20%28R25-R29%29
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Other%20socio-demographic%20and%20economic%20characteristics
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Life%20course%20development
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Physical%20activity
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Vital%20status
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Education
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Radiotherapy%20interventions
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Other%20and%20unspecified%20non-pharmacological%20interventions
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Leisure%20activities
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Sex%2Fgender
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Surgical%20interventions
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Perception%20of%20health
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Symptoms%20and%20signs%20involving%20the%20skin%20and%20subcutaneous%20tissue%20%28R20-R23%29
data categories: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/DataCategories/name=National%20registries
data categories: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/DataCategories/name=Other
data categories: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/DataCategories/name=Survey%20data
data categories: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/DataCategories/name=Medical%20records
data categories: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/DataCategories/name=Imaging%20data
standardized tools: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/StandardizedTools/name=EQ5D
standardized tools: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/StandardizedTools/name=EORTC%20Quality%20of%20Life%20Questionnaire-Core%2030
standardized tools other: HADS, WAI, EORTC BR23, SQUASH, general questionnaire, BREAST-Q
publisher: UMBRELLA UMC Utrecht
creator: UMBRELLA Alrijne Ziekenhuis Leiderdorp
creator: UMBRELLA Ziekenhuis Groep Twente
creator: UMBRELLA UMC Utrecht
theme: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Themes/name=Health
theme: HEAL
access rights: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AccessRights/name=Non%20public
access rights: NON PUBLIC
applicable legislation: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Legislations/name=Data%20Governance%20Act
applicable legislation: oj
mg_draft: false
mg_insertedOn: 2026-03-11T17:09:09
mg_updatedOn: 2026-03-11T17:09:09

VIOOL Symptom diaries
type: Collection events
type: Observation
endpoint URL: catalogue-rdf
data set: Collection events
source: VIOOL
resource: VIOOL
title: Symptom diaries
name: Symptom diaries
pid: https://catalogue.hdsu.nl/HDSU/collections/VIOOL/collection-events/Symptom%20diaries
description: Families filled in a daily symptom diary in an app. The questionnaire asked if the child had had the following symptoms more than usual in the past 24h: runny nose, coughing, wheezing, shortness of breath, ear pain, fever, vomiting, diarrhoea, crying, irritability, difficulty falling asleep, reduced playing, and reduced eating.
source: VIOOL VIOOL
subpopulations: VIOOL VIOOL
keyword: Daily symptom diary
keywords: Daily symptom diary
data categories: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/DataCategories/name=Survey%20data
contact point: VIOOL Patricia Bruijning-Verhagen
publisher: VIOOL UMCU
creator: VIOOL UMCU
theme: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Themes/name=Health
theme: HEAL
access rights: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AccessRights/name=Non%20public
access rights: NON PUBLIC
applicable legislation: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Legislations/name=Data%20Governance%20Act
applicable legislation: oj
mg_draft: false
mg_insertedOn: 2026-03-11T17:09:09
mg_updatedOn: 2026-03-11T17:09:09

VIOOL Baseline characteristics
type: Collection events
type: Observation
endpoint URL: catalogue-rdf
data set: Collection events
source: VIOOL
resource: VIOOL
title: Baseline characteristics
name: Baseline characteristics
pid: https://catalogue.hdsu.nl/HDSU/collections/VIOOL/collection-events/Baseline%20characteristics
description: At the start of the study, baseline information was collected for each child, household members, and household details. For example, regarding past medical history (allergies, vaccination, etc.), childcare use and housing situation (number of household members, pets, smoking habits at home, etc.).
source: VIOOL VIOOL
subpopulations: VIOOL VIOOL
keyword: Baseline questionnaire
keywords: Baseline questionnaire
data categories: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/DataCategories/name=Survey%20data
core variables: Education level of parents
core variables: Allergies
core variables: Child care frequency and type
core variables: Sex
core variables: Country of birth
core variables: Vaccination
contact point: VIOOL Patricia Bruijning-Verhagen
publisher: VIOOL UMCU
creator: VIOOL UMCU
theme: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Themes/name=Health
theme: HEAL
access rights: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AccessRights/name=Non%20public
access rights: NON PUBLIC
applicable legislation: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Legislations/name=Data%20Governance%20Act
applicable legislation: oj
mg_draft: false
mg_insertedOn: 2026-03-11T17:09:09
mg_updatedOn: 2026-03-11T17:09:09

VIOOL Midturbinate swabs
type: Collection events
type: Observation
endpoint URL: catalogue-rdf
data set: Collection events
source: VIOOL
resource: VIOOL
title: Midturbinate swabs
name: Midturbinate swabs
pid: https://catalogue.hdsu.nl/HDSU/collections/VIOOL/collection-events/Midturbinate%20swabs
description: Once a week, parents collected a mid-turbinate swab from the child, irrespective of symptoms. The swabs were stored in home freezers until the end of the study period.
source: VIOOL VIOOL
subpopulations: VIOOL VIOOL
keyword: Midturbinate nasal swab
keywords: Midturbinate nasal swab
data categories: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/DataCategories/name=Biological%20samples
sample categories: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/SampleCategories/name=Nasal%20swabs
contact point: VIOOL Patricia Bruijning-Verhagen
publisher: VIOOL UMCU
creator: VIOOL UMCU
theme: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Themes/name=Health
theme: HEAL
access rights: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AccessRights/name=Non%20public
access rights: NON PUBLIC
applicable legislation: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Legislations/name=Data%20Governance%20Act
applicable legislation: oj
mg_draft: false
mg_insertedOn: 2026-03-11T17:09:09
mg_updatedOn: 2026-03-11T17:09:09

VIOOL Saliva swab
type: Collection events
type: Observation
endpoint URL: catalogue-rdf
data set: Collection events
source: VIOOL
resource: VIOOL
title: Saliva swab
name: Saliva swab
pid: https://catalogue.hdsu.nl/HDSU/collections/VIOOL/collection-events/Saliva%20swab
description: A saliva swab was taken at the beginning and end of the study period.
source: VIOOL VIOOL
subpopulations: VIOOL VIOOL
keyword: Saliva swab
keywords: Saliva swab
data categories: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/DataCategories/name=Biological%20samples
sample categories: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/SampleCategories/name=Mouth%20swabs
contact point: VIOOL Patricia Bruijning-Verhagen
publisher: VIOOL UMCU
creator: VIOOL UMCU
theme: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Themes/name=Health
theme: HEAL
access rights: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AccessRights/name=Non%20public
access rights: NON PUBLIC
applicable legislation: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Legislations/name=Data%20Governance%20Act
applicable legislation: oj
mg_draft: false
mg_insertedOn: 2026-03-11T17:09:09
mg_updatedOn: 2026-03-11T17:09:09

Athero-Express Athero-Express Baseline
type: Collection events
type: Observation
endpoint URL: catalogue-rdf
data set: Collection events
source: Athero-Express
resource: Athero-Express
title: Athero-Express Baseline
name: Athero-Express Baseline
pid: https://catalogue.hdsu.nl/HDSU/collections/Athero-Express/collection-events/Athero-Express%20Baseline
description: Moment of surgery (endarterectomy).
source: Athero-Express Athero-Express AAA-Express
subpopulations: Athero-Express Athero-Express AAA-Express
source: Athero-Express Athero-Express
subpopulations: Athero-Express Athero-Express
keyword: atherosclerosis
keywords: atherosclerosis
keyword: plaque
keywords: plaque
keyword: aneurysm
keywords: aneurysm
keyword: arterial endarterectomy
keywords: arterial endarterectomy
number of participants: 3500
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Vital%20status
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Biochemistry
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Date%20and%20time-related%20information
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Birthplace
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Pregnancy%2C%20delivery%20and%20birth
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Psychological%20distress%20and%20emotions
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Alcohol
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Histology
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Age%2Fbirthdate
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Other%20socio-demographic%20and%20economic%20characteristics
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Puberty%2C%20menstruation%2C%20menopause%20and%20andropause
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=General%20symptoms%20and%20signs%20%28R50-R69%29
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Hematology
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Symptoms%20and%20signs%20involving%20cognition%2C%20perception%2C%20emotional%20state%20and%20behaviour%20%28R40-R46…
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Death
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Data%20and%20sample%20collection%20center-related%20information
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Quality%20of%20life
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Other%20end%20of%20life%20or%20death-related%20information
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Questionnaire%20and%20interview-related%20information
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Physical%20and%20cognitive%20measure%20and%20biosample-related%20information
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Ethnicity%2C%20race%20and%20religion
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Identifiers
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Sex%2Fgender
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Education
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Nutrition
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Genomics
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Contraception
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Anthropometry
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Administrative%20information
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Surgical%20interventions
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Circulation%20and%20respiration
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Medication%20and%20supplement%20intake
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Symptoms%20and%20signs%20involving%20the%20circulatory%20and%20respiratory%20systems%20%28R00-R09%29
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Physical%20characteristics
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Drugs
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Tobacco
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Other%20administrative%20information
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Physical%20activity
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Cause%20of%20death
sample categories: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/SampleCategories/name=Arteries%20-%20Tissue%20%28Frozen%29
sample categories: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/SampleCategories/name=RNA
sample categories: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/SampleCategories/name=Serum
sample categories: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/SampleCategories/name=Arteries%20-%20Tissue%20%28FFPE%29
sample categories: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/SampleCategories/name=DNA
sample categories: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/SampleCategories/name=Blood%20%28whole%29
sample categories: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/SampleCategories/name=Plasma
standardized tools: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/StandardizedTools/name=Short-Form%2036%20Health%20Survey
core variables: (Immuno)histochemical analysis of plaques
core variables: Clinical characteristics (e.g. age, BMI, gender)
contact point: Athero-Express Sander van der Laan
publisher: Athero-Express UMC Utrecht
creator: Athero-Express UMC Utrecht
theme: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Themes/name=Health
theme: HEAL
access rights: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AccessRights/name=Non%20public
access rights: NON PUBLIC

Athero-Express Athero-Express Follow-up
type: Collection events
type: Observation
endpoint URL: catalogue-rdf
data set: Collection events
source: Athero-Express
resource: Athero-Express
title: Athero-Express Follow-up
name: Athero-Express Follow-up
pid: https://catalogue.hdsu.nl/HDSU/collections/Athero-Express/collection-events/Athero-Express%20Follow-up
description: Follow-up is done: one time at 3 months after surgery every year at 12 months after surgery, for 3 years
source: Athero-Express Athero-Express AAA-Express
subpopulations: Athero-Express Athero-Express AAA-Express
source: Athero-Express Athero-Express
subpopulations: Athero-Express Athero-Express
keyword: atherosclerosis
keywords: atherosclerosis
keyword: plaque
keywords: plaque
keyword: aneurysm
keywords: aneurysm
keyword: arterial endarterectomy
keywords: arterial endarterectomy
number of participants: 3500
data categories: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/DataCategories/name=Survey%20data
contact point: Athero-Express Sander van der Laan
publisher: Athero-Express UMC Utrecht
creator: Athero-Express UMC Utrecht
theme: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Themes/name=Health
theme: HEAL
access rights: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AccessRights/name=Non%20public
access rights: NON PUBLIC
applicable legislation: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Legislations/name=Data%20Governance%20Act
applicable legislation: oj
mg_draft: false
mg_insertedOn: 2026-04-24T10:58:45
mg_updatedOn: 2026-04-24T10:58:45

HEM-PRO Data collection
type: Collection events
type: Observation
endpoint URL: catalogue-rdf
data set: Collection events
source: HEM-PRO
resource: HEM-PRO
title: Data collection
name: Data collection
pid: https://catalogue.hdsu.nl/HDSU/collections/HEM-PRO/collection-events/Data%20collection
description: Data extraction took place on one moment in time in 2025
source: HEM-PRO Total knee arthroplasty
subpopulations: HEM-PRO Total knee arthroplasty
source: HEM-PRO Total hip arthroplasty
subpopulations: HEM-PRO Total hip arthroplasty
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Air%20pollution%20%28outdoor%29
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Date%20and%20time-related%20information
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Geocodes%20for%20residential%20address
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Chemical%20exposure
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Age%2Fbirthdate
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Metals%20%26%20elements
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Meteorology
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Built%20environment%2Fneighbourhood%20characteristics
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Food%20environment
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Non-targeted%20%2F%20suspect%20screening%20of%20chemicals
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Other%20chemicals
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Noise%2C%20traffic%2C%20or%20light
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Other%20physical%20environment%20characteristics
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Persistent%20organic%20pollutants
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Natural%20environment
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Biological%20exposure
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Surgical%20interventions
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Chemicals
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Light
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Symptoms%20and%20signs%20involving%20nervous%20and%20musculoskeletal%20systems%20%28R25-R29%29
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Air%20pollution%20%28indoor%29
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Workplace%20characteristics
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Housing%20characteristics
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Physical%20environment
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Water%20DBPs
areas of information: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AreasOfInformationCohorts/name=Radiation%20exposure
data categories: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/DataCategories/name=Medical%20records
core variables: cementation of femoral stem
core variables: Pettersson score
core variables: pre/post op Hb-rates
core variables: post-operative bleeding events
core variables: TKA
core variables: type, severity and treatment regimen for bleeding disorders
core variables: post-operative complications (hemarthrosis, wound dehiscence or signs of internal bleeding within one month after surgery, prosthetic joint infection and loosening or liner wear diagnosed by the orthopedic surgeon)
core variables: post-operative loading protocol
core variables: HIV/hepatitis status
core variables: time to failure of prosthesis
core variables: BMI
core variables: THA
core variables: pre-operative angiography
publisher: HEM-PRO UMCU - VCK
creator: HEM-PRO UMCU - VCK
theme: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Themes/name=Health
theme: HEAL
access rights: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AccessRights/name=Non%20public
access rights: NON PUBLIC
applicable legislation: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Legislations/name=Data%20Governance%20Act
applicable legislation: oj
mg_draft: false
mg_insertedOn: 2026-04-24T11:09:49
mg_updatedOn: 2026-04-24T11:09:49

EPIC-NL EPIC-NL data request form
type: Documentation
type: Observation
endpoint URL: catalogue-rdf
data set: Documentation
resource: EPIC-NL
name: EPIC-NL data request form
type: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/DocumentTypes/name=Study%2C%20other%20information
description: Data request form
mg_draft: false
mg_insertedOn: 2026-03-11T17:09:09
mg_updatedOn: 2026-03-11T17:09:09

EPIC-NL Informed consent MORGEN
type: Documentation
type: Observation
endpoint URL: catalogue-rdf
data set: Documentation
resource: EPIC-NL
name: Informed consent MORGEN
type: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/DocumentTypes/name=Informed%20consent
description: Informed consent EPIC-NL MORGEN
mg_draft: false
mg_insertedOn: 2026-03-11T17:09:09
mg_updatedOn: 2026-03-11T17:09:09

EPIC-NL Informed consent Prospect
type: Documentation
type: Observation
endpoint URL: catalogue-rdf
data set: Documentation
resource: EPIC-NL
name: Informed consent Prospect
type: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/DocumentTypes/name=Informed%20consent
description: Informed consent EPIC-NL Prospect
mg_draft: false
mg_insertedOn: 2026-03-11T17:09:09
mg_updatedOn: 2026-03-11T17:09:09

The TWIN-study Informatie en toestemmingsformulier
type: Documentation
type: Observation
endpoint URL: catalogue-rdf
data set: Documentation
resource: The TWIN-study
name: Informatie en toestemmingsformulier
type: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/DocumentTypes/name=Informed%20consent
description: Participant information and informed consent document
mg_draft: false
mg_insertedOn: 2026-03-11T17:09:09
mg_updatedOn: 2026-03-11T17:09:09

ALL10 pmc
type: Organisations
type: Observation
type: Agent
type: Organization
endpoint URL: catalogue-rdf
data set: Organisations
resource: ALL10
id: pmc
type: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgentTypes/name=Organisation
organisation: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Organisations/name=Princess%20M%C3%A1xima%20Center
other organisation: Prinses Máxima Centrum
role: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/OrganisationRoles/name=Data%20access%20provider
role: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/OrganisationRoles/name=Researcher
role: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/OrganisationRoles/name=Data%20holder
name: Princess Máxima Center
organisation name: Princess Máxima Center
organisation pid: https://ror.org/02aj7yc53
organisation website: www.prinsesmaximacentrum.nl
is lead organisation: true
mg_draft: false
mg_insertedOn: 2026-03-11T17:09:09
mg_updatedOn: 2026-03-11T17:09:09
mg_tableclass: catalogue-rdf.Organisations

HDSU MOLGENIS
type: Organisations
type: Observation
type: Agent
type: Organization
endpoint URL: catalogue-rdf
data set: Organisations
resource: HDSU
id: MOLGENIS
type: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgentTypes/name=Organisation
name: University Medical Center Groningen
organisation name: University Medical Center Groningen
organisation pid: https://ror.org/03cv38k47
organisation website: www.umcg.nl
mg_draft: false
mg_insertedOn: 2026-03-11T17:09:09
mg_updatedOn: 2026-03-11T17:09:09
mg_tableclass: catalogue-rdf.Organisations

ALL11 PMC
type: Organisations
type: Observation
type: Agent
type: Organization
endpoint URL: catalogue-rdf
data set: Organisations
resource: ALL11
id: PMC
type: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgentTypes/name=Organisation
organisation: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Organisations/name=Princess%20M%C3%A1xima%20Center
other organisation: Prinses Máxima Centrum
role: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/OrganisationRoles/name=Data%20access%20provider
role: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/OrganisationRoles/name=Researcher
role: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/OrganisationRoles/name=Data%20holder
name: Princess Máxima Center
organisation name: Princess Máxima Center
organisation pid: https://ror.org/02aj7yc53
organisation website: www.prinsesmaximacentrum.nl
is lead organisation: true
mg_draft: false
mg_insertedOn: 2026-03-11T17:09:09
mg_updatedOn: 2026-03-11T17:09:09
mg_tableclass: catalogue-rdf.Organisations

BioDay WKZ
type: Organisations
type: Observation
type: Agent
type: Organization
endpoint URL: catalogue-rdf
data set: Organisations
resource: BioDay
id: WKZ
type: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgentTypes/name=Organisation
organisation: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Organisations/name=Wilhelmina%20Children%27s%20Hospital
name: Wilhelmina Children's Hospital
organisation name: Wilhelmina Children's Hospital
organisation pid: https://ror.org/05fqypv61
organisation website: en
is lead organisation: false
mg_draft: false
mg_insertedOn: 2026-03-11T17:09:09
mg_updatedOn: 2026-03-11T17:09:09
mg_tableclass: catalogue-rdf.Organisations

BioDay Nij Smellinghe
type: Organisations
type: Observation
type: Agent
type: Organization
endpoint URL: catalogue-rdf
data set: Organisations
resource: BioDay
id: Nij Smellinghe
type: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgentTypes/name=Organisation
organisation: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Organisations/name=Ziekenhuis%20Nij%20Smellinghe
role: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/OrganisationRoles/name=Data%20holder
role: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/OrganisationRoles/name=Data%20provider
name: Ziekenhuis Nij Smellinghe
organisation name: Ziekenhuis Nij Smellinghe
organisation pid: https://ror.org/030gj2p37
organisation website: www.nijsmellinghe.nl
is lead organisation: false
mg_draft: false
mg_insertedOn: 2026-03-11T17:09:09
mg_updatedOn: 2026-03-11T17:09:09
mg_tableclass: catalogue-rdf.Organisations

BioDay ZorgSaam
type: Organisations
type: Observation
type: Agent
type: Organization
endpoint URL: catalogue-rdf
data set: Organisations
resource: BioDay
id: ZorgSaam
type: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgentTypes/name=Organisation
organisation: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Organisations/name=ZorgSaam
other organisation: ZorgSaam hospital
name: ZorgSaam
organisation name: ZorgSaam
organisation pid: https://ror.org/01qkq7780
organisation website: www.zorgsaam.org
is lead organisation: false
mg_draft: false
mg_insertedOn: 2026-03-11T17:09:09
mg_updatedOn: 2026-03-11T17:09:09
mg_tableclass: catalogue-rdf.Organisations

BioDay HagaZiekenhuis
type: Organisations
type: Observation
type: Agent
type: Organization
endpoint URL: catalogue-rdf
data set: Organisations
resource: BioDay
id: HagaZiekenhuis
type: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgentTypes/name=Organisation
organisation: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Organisations/name=Haga%20Hospital
name: Haga Hospital
organisation name: Haga Hospital
organisation pid: https://ror.org/03q4p1y48
organisation website: www.hagaziekenhuis.nl
is lead organisation: false
mg_draft: false
mg_insertedOn: 2026-03-11T17:09:09
mg_updatedOn: 2026-03-11T17:09:09
mg_tableclass: catalogue-rdf.Organisations

BioDay St. Antonius Ziekenhuis
type: Organisations
type: Observation
type: Agent
type: Organization
endpoint URL: catalogue-rdf
data set: Organisations
resource: BioDay
id: St. Antonius Ziekenhuis
type: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgentTypes/name=Organisation
organisation: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Organisations/name=St.%20Antonius%20Ziekenhuis
name: St. Antonius Ziekenhuis
organisation name: St. Antonius Ziekenhuis
organisation pid: https://ror.org/01jvpb595
organisation website: www.antoniusziekenhuis.nl
is lead organisation: false
mg_draft: false
mg_insertedOn: 2026-03-11T17:09:09
mg_updatedOn: 2026-03-11T17:09:09
mg_tableclass: catalogue-rdf.Organisations

BioDay Catharina Ziekenhuis
type: Organisations
type: Observation
type: Agent
type: Organization
endpoint URL: catalogue-rdf
data set: Organisations
resource: BioDay
id: Catharina Ziekenhuis
type: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgentTypes/name=Organisation
organisation: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Organisations/name=Catharina%20Ziekenhuis
name: Catharina Ziekenhuis
organisation name: Catharina Ziekenhuis
organisation pid: https://ror.org/01qavk531
organisation website: www.catharinaziekenhuis.nl
is lead organisation: false
mg_draft: false
mg_insertedOn: 2026-03-11T17:09:09
mg_updatedOn: 2026-03-11T17:09:09
mg_tableclass: catalogue-rdf.Organisations

BioDay MUMC
type: Organisations
type: Observation
type: Agent
type: Organization
endpoint URL: catalogue-rdf
data set: Organisations
resource: BioDay
id: MUMC
type: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgentTypes/name=Organisation
organisation: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Organisations/name=Maastricht%20University%20Medical%20Centre
name: Maastricht University Medical Centre
organisation name: Maastricht University Medical Centre
organisation pid: https://ror.org/02d9ce178
organisation website: www.mumc.nl
is lead organisation: false
mg_draft: false
mg_insertedOn: 2026-03-11T17:09:09
mg_updatedOn: 2026-03-11T17:09:09
mg_tableclass: catalogue-rdf.Organisations

BioDay Spaarne Gasthuis
type: Organisations
type: Observation
type: Agent
type: Organization
endpoint URL: catalogue-rdf
data set: Organisations
resource: BioDay
id: Spaarne Gasthuis
type: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgentTypes/name=Organisation
organisation: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Organisations/name=Spaarne%20Gasthuis
name: Spaarne Gasthuis
organisation name: Spaarne Gasthuis
organisation pid: https://ror.org/05d7whc82
organisation website: spaarnegasthuis.nl
is lead organisation: false
mg_draft: false
mg_insertedOn: 2026-03-11T17:09:09
mg_updatedOn: 2026-03-11T17:09:09
mg_tableclass: catalogue-rdf.Organisations

BioDay Meander
type: Organisations
type: Observation
type: Agent
type: Organization
endpoint URL: catalogue-rdf
data set: Organisations
resource: BioDay
id: Meander
type: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgentTypes/name=Organisation
organisation: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Organisations/name=Meander%20Medisch%20Centrum
name: Meander Medisch Centrum
organisation name: Meander Medisch Centrum
organisation pid: https://ror.org/04n1xa154
organisation website: www.meandermc.nl
is lead organisation: false
mg_draft: false
mg_insertedOn: 2026-03-11T17:09:09
mg_updatedOn: 2026-03-11T17:09:09
mg_tableclass: catalogue-rdf.Organisations

BioDay IJsselland Ziekenhuis
type: Organisations
type: Observation
type: Agent
type: Organization
endpoint URL: catalogue-rdf
data set: Organisations
resource: BioDay
id: IJsselland Ziekenhuis
type: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgentTypes/name=Organisation
organisation: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Organisations/name=IJsselland%20Ziekenhuis
name: IJsselland Ziekenhuis
organisation name: IJsselland Ziekenhuis
organisation pid: https://ror.org/03qh1f279
organisation website: www.ysl.nl
is lead organisation: false
mg_draft: false
mg_insertedOn: 2026-03-11T17:09:09
mg_updatedOn: 2026-03-11T17:09:09
mg_tableclass: catalogue-rdf.Organisations

BioDay Medisch Centrum Leeuwarden
type: Organisations
type: Observation
type: Agent
type: Organization
endpoint URL: catalogue-rdf
data set: Organisations
resource: BioDay
id: Medisch Centrum Leeuwarden
type: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgentTypes/name=Organisation
organisation: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Organisations/name=Medisch%20Centrum%20Leeuwarden
name: Medisch Centrum Leeuwarden
organisation name: Medisch Centrum Leeuwarden
organisation pid: https://ror.org/0283nw634
organisation website: www.mcl.nl
is lead organisation: false
mg_draft: false
mg_insertedOn: 2026-03-11T17:09:09
mg_updatedOn: 2026-03-11T17:09:09
mg_tableclass: catalogue-rdf.Organisations

BioDay Isala Ziekenhuis
type: Organisations
type: Observation
type: Agent
type: Organization
endpoint URL: catalogue-rdf
data set: Organisations
resource: BioDay
id: Isala Ziekenhuis
type: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgentTypes/name=Organisation
organisation: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Organisations/name=Isala
name: Isala
organisation name: Isala
organisation pid: https://ror.org/046a2wj10
organisation website: www.isala.nl
is lead organisation: false
mg_draft: false
mg_insertedOn: 2026-03-11T17:09:09
mg_updatedOn: 2026-03-11T17:09:09
mg_tableclass: catalogue-rdf.Organisations

BioDay Tergooi
type: Organisations
type: Observation
type: Agent
type: Organization
endpoint URL: catalogue-rdf
data set: Organisations
resource: BioDay
id: Tergooi
type: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgentTypes/name=Organisation
organisation: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Organisations/name=Tergooi
name: Tergooi
organisation name: Tergooi
organisation pid: https://ror.org/045nawc23
organisation website: www.tergooi.nl
is lead organisation: false
mg_draft: false
mg_insertedOn: 2026-03-11T17:09:09
mg_updatedOn: 2026-03-11T17:09:09
mg_tableclass: catalogue-rdf.Organisations

BioDay Bravis
type: Organisations
type: Observation
type: Agent
type: Organization
endpoint URL: catalogue-rdf
data set: Organisations
resource: BioDay
id: Bravis
type: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgentTypes/name=Organisation
organisation: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Organisations/name=Bravis%20Ziekenhuis
name: Bravis Ziekenhuis
organisation name: Bravis Ziekenhuis
organisation pid: https://ror.org/05564wx43
organisation website: www.bravisziekenhuis.nl
is lead organisation: false
mg_draft: false
mg_insertedOn: 2026-03-11T17:09:09
mg_updatedOn: 2026-03-11T17:09:09
mg_tableclass: catalogue-rdf.Organisations

BioDay Diakonessenhuis
type: Organisations
type: Observation
type: Agent
type: Organization
endpoint URL: catalogue-rdf
data set: Organisations
resource: BioDay
id: Diakonessenhuis
type: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgentTypes/name=Organisation
organisation: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Organisations/name=Diakonessenhuis%20hospital
role: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/OrganisationRoles/name=Data%20provider
name: Diakonessenhuis hospital
organisation name: Diakonessenhuis hospital
organisation pid: https://ror.org/01nrpzj54
organisation website: Pub
is lead organisation: false
mg_draft: false
mg_insertedOn: 2026-03-11T17:09:09
mg_updatedOn: 2026-03-11T17:09:09
mg_tableclass: catalogue-rdf.Organisations

BioDay UMCU
type: Organisations
type: Observation
type: Agent
type: Organization
endpoint URL: catalogue-rdf
data set: Organisations
resource: BioDay
id: UMCU
type: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgentTypes/name=Organisation
organisation: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Organisations/name=University%20Medical%20Center%20Utrecht
role: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/OrganisationRoles/name=Researcher
name: University Medical Center Utrecht
organisation name: University Medical Center Utrecht
organisation pid: https://ror.org/0575yy874
organisation website: www.umcutrecht.nl
is lead organisation: true
mg_draft: false
mg_insertedOn: 2026-03-11T17:09:09
mg_updatedOn: 2026-03-11T17:09:09
mg_tableclass: catalogue-rdf.Organisations

BioDay Radboudumc
type: Organisations
type: Observation
type: Agent
type: Organization
endpoint URL: catalogue-rdf
data set: Organisations
resource: BioDay
id: Radboudumc
type: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgentTypes/name=Organisation
organisation: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Organisations/name=Radboud%20University%20Medical%20Center
name: Radboud University Medical Center
organisation name: Radboud University Medical Center
organisation pid: https://ror.org/05wg1m734
organisation website: www.radboudumc.nl
is lead organisation: false
mg_draft: false
mg_insertedOn: 2026-03-11T17:09:09
mg_updatedOn: 2026-03-11T17:09:09
mg_tableclass: catalogue-rdf.Organisations

BioDay Antonius
type: Organisations
type: Observation
type: Agent
type: Organization
endpoint URL: catalogue-rdf
data set: Organisations
resource: BioDay
id: Antonius
type: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgentTypes/name=Organisation
organisation: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Organisations/name=Antonius%20Ziekenhuis
other organisation: Antonius Ziekenhuis, Sneek
role: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/OrganisationRoles/name=Data%20holder
role: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/OrganisationRoles/name=Data%20provider
name: Antonius Ziekenhuis
organisation name: Antonius Ziekenhuis
organisation pid: https://ror.org/0489xrh07
organisation website: www.mijnantonius.nl
is lead organisation: false
mg_draft: false
mg_insertedOn: 2026-03-11T17:09:09
mg_updatedOn: 2026-03-11T17:09:09
mg_tableclass: catalogue-rdf.Organisations

BioDay Tjongerschans
type: Organisations
type: Observation
type: Agent
type: Organization
endpoint URL: catalogue-rdf
data set: Organisations
resource: BioDay
id: Tjongerschans
type: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgentTypes/name=Organisation
organisation: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Organisations/name=Tjongerschans
other organisation: Ziekenhuis Tjongerschans
name: Tjongerschans
organisation name: Tjongerschans
organisation pid: https://ror.org/021dfp132
organisation website: www.tjongerschans.nl
is lead organisation: false
mg_draft: false
mg_insertedOn: 2026-03-11T17:09:09
mg_updatedOn: 2026-03-11T17:09:09
mg_tableclass: catalogue-rdf.Organisations

BioDay UMCG
type: Organisations
type: Observation
type: Agent
type: Organization
endpoint URL: catalogue-rdf
data set: Organisations
resource: BioDay
id: UMCG
type: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgentTypes/name=Organisation
organisation: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Organisations/name=University%20Medical%20Center%20Groningen
name: University Medical Center Groningen
organisation name: University Medical Center Groningen
organisation pid: https://ror.org/03cv38k47
organisation website: www.umcg.nl
is lead organisation: true
mg_draft: false
mg_insertedOn: 2026-03-11T17:09:09
mg_updatedOn: 2026-03-11T17:09:09
mg_tableclass: catalogue-rdf.Organisations

EPIC-NL RIVM
type: Organisations
type: Observation
type: Agent
type: Organization
endpoint URL: catalogue-rdf
data set: Organisations
resource: EPIC-NL
id: RIVM
type: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgentTypes/name=Organisation
organisation: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Organisations/name=National%20Institute%20for%20Public%20Health%20and%20the%20Environment
name: National Institute for Public Health and the Environment
organisation name: National Institute for Public Health and the Environment
organisation pid: https://ror.org/01cesdt21
organisation website: www.rivm.nl
is lead organisation: true
mg_draft: false
mg_insertedOn: 2026-03-11T17:09:09
mg_updatedOn: 2026-03-11T17:09:09
mg_tableclass: catalogue-rdf.Organisations

EPIC-NL UMCU
type: Organisations
type: Observation
type: Agent
type: Organization
endpoint URL: catalogue-rdf
data set: Organisations
resource: EPIC-NL
id: UMCU
type: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgentTypes/name=Organisation
organisation: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Organisations/name=University%20Medical%20Center%20Utrecht
name: University Medical Center Utrecht
organisation name: University Medical Center Utrecht
organisation pid: https://ror.org/0575yy874
organisation website: www.umcutrecht.nl
is lead organisation: true
mg_draft: false
mg_insertedOn: 2026-03-11T17:09:09
mg_updatedOn: 2026-03-11T17:09:09
mg_tableclass: catalogue-rdf.Organisations

MARS - Molecular Diagnosis and Risk Stratification of Sepsis UMCU
type: Organisations
type: Observation
type: Agent
type: Organization
endpoint URL: catalogue-rdf
data set: Organisations
resource: MARS - Molecular Diagnosis and Risk Stratification of Sepsis
id: UMCU
type: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgentTypes/name=Organisation
organisation: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Organisations/name=University%20Medical%20Center%20Utrecht
role: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/OrganisationRoles/name=Researcher
name: University Medical Center Utrecht
organisation name: University Medical Center Utrecht
organisation pid: https://ror.org/0575yy874
organisation website: www.umcutrecht.nl
is lead organisation: true
mg_draft: false
mg_insertedOn: 2026-03-11T17:09:09
mg_updatedOn: 2026-03-11T17:09:09
mg_tableclass: catalogue-rdf.Organisations

MARS - Molecular Diagnosis and Risk Stratification of Sepsis AMC
type: Organisations
type: Observation
type: Agent
type: Organization
endpoint URL: catalogue-rdf
data set: Organisations
resource: MARS - Molecular Diagnosis and Risk Stratification of Sepsis
id: AMC
type: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgentTypes/name=Organisation
organisation: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Organisations/name=Amsterdam%20University%20Medical%20Centers
name: Amsterdam University Medical Centers
organisation name: Amsterdam University Medical Centers
organisation pid: https://ror.org/05grdyy37
organisation website: www.amsterdamumc.org
is lead organisation: false
mg_draft: false
mg_insertedOn: 2026-03-11T17:09:09
mg_updatedOn: 2026-03-11T17:09:09
mg_tableclass: catalogue-rdf.Organisations

The TWIN-study UMC Utrecht
type: Organisations
type: Observation
type: Agent
type: Organization
endpoint URL: catalogue-rdf
data set: Organisations
resource: The TWIN-study
id: UMC Utrecht
type: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgentTypes/name=Organisation
organisation: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Organisations/name=University%20Medical%20Center%20Utrecht
role: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/OrganisationRoles/name=Researcher
name: University Medical Center Utrecht
organisation name: University Medical Center Utrecht
organisation pid: https://ror.org/0575yy874
organisation website: www.umcutrecht.nl
is lead organisation: true
mg_draft: false
mg_insertedOn: 2026-03-11T17:09:09
mg_updatedOn: 2026-03-11T17:09:09
mg_tableclass: catalogue-rdf.Organisations

UMBRELLA UMC Utrecht
type: Organisations
type: Observation
type: Agent
type: Organization
endpoint URL: catalogue-rdf
data set: Organisations
resource: UMBRELLA
id: UMC Utrecht
type: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgentTypes/name=Organisation
organisation: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Organisations/name=University%20Medical%20Center%20Utrecht
name: University Medical Center Utrecht
organisation name: University Medical Center Utrecht
organisation pid: https://ror.org/0575yy874
organisation website: www.umcutrecht.nl
is lead organisation: true
mg_draft: false
mg_insertedOn: 2026-03-11T17:09:09
mg_updatedOn: 2026-03-11T17:09:09
mg_tableclass: catalogue-rdf.Organisations

UMBRELLA Ziekenhuis Groep Twente
type: Organisations
type: Observation
type: Agent
type: Organization
endpoint URL: catalogue-rdf
data set: Organisations
resource: UMBRELLA
id: Ziekenhuis Groep Twente
type: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgentTypes/name=Organisation
organisation: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Organisations/name=Ziekenhuis%20Groep%20Twente
name: Ziekenhuis Groep Twente
organisation name: Ziekenhuis Groep Twente
organisation pid: https://ror.org/04grrp271
organisation website: www.zgt.nl
is lead organisation: false
mg_draft: false
mg_insertedOn: 2026-03-11T17:09:09
mg_updatedOn: 2026-03-11T17:09:09
mg_tableclass: catalogue-rdf.Organisations

UMBRELLA Alrijne Ziekenhuis Leiderdorp
type: Organisations
type: Observation
type: Agent
type: Organization
endpoint URL: catalogue-rdf
data set: Organisations
resource: UMBRELLA
id: Alrijne Ziekenhuis Leiderdorp
type: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgentTypes/name=Organisation
organisation: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Organisations/name=Alrijne%20Ziekenhuis
other organisation: Leiderdorp
name: Alrijne Ziekenhuis
organisation name: Alrijne Ziekenhuis
organisation pid: https://ror.org/017rd0q69
organisation website: www.alrijne.nl
is lead organisation: false
mg_draft: false
mg_insertedOn: 2026-03-11T17:09:09
mg_updatedOn: 2026-03-11T17:09:09
mg_tableclass: catalogue-rdf.Organisations

VIOOL UMCU
type: Organisations
type: Observation
type: Agent
type: Organization
endpoint URL: catalogue-rdf
data set: Organisations
resource: VIOOL
id: UMCU
type: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgentTypes/name=Organisation
organisation: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Organisations/name=University%20Medical%20Center%20Utrecht
name: University Medical Center Utrecht
organisation name: University Medical Center Utrecht
organisation pid: https://ror.org/0575yy874
organisation website: www.umcutrecht.nl
is lead organisation: true
mg_draft: false
mg_insertedOn: 2026-03-11T17:09:09
mg_updatedOn: 2026-03-11T17:09:09
mg_tableclass: catalogue-rdf.Organisations

Athero-Express UMC Utrecht
type: Organisations
type: Observation
type: Agent
type: Organization
endpoint URL: catalogue-rdf
data set: Organisations
resource: Athero-Express
id: UMC Utrecht
type: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgentTypes/name=Organisation
organisation: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Organisations/name=University%20Medical%20Center%20Utrecht
other organisation: University Medical Center Utrecht
role: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/OrganisationRoles/name=Data%20access%20provider
role: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/OrganisationRoles/name=Data%20provider
role: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/OrganisationRoles/name=Data%20holder
role: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/OrganisationRoles/name=Data%20originator
name: University Medical Center Utrecht
organisation name: University Medical Center Utrecht
organisation pid: https://ror.org/0575yy874
organisation website: www.umcutrecht.nl
is lead organisation: true
mg_draft: false
mg_insertedOn: 2026-04-24T10:58:45
mg_updatedOn: 2026-04-24T10:58:45
mg_tableclass: catalogue-rdf.Organisations

HEM-PRO UMCU - VCK
type: Organisations
type: Observation
type: Agent
type: Organization
endpoint URL: catalogue-rdf
data set: Organisations
resource: HEM-PRO
id: UMCU - VCK
type: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgentTypes/name=Organisation
organisation: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Organisations/name=University%20Medical%20Center%20Utrecht
department: Van Creveldkliniek
role: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/OrganisationRoles/name=Data%20originator
role: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/OrganisationRoles/name=Researcher
role: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/OrganisationRoles/name=Data%20holder
name: University Medical Center Utrecht
organisation name: University Medical Center Utrecht
organisation pid: https://ror.org/0575yy874
organisation website: www.umcutrecht.nl
is lead organisation: true
mg_draft: false
mg_insertedOn: 2026-04-24T11:09:49
mg_updatedOn: 2026-04-24T11:09:49
mg_tableclass: catalogue-rdf.Organisations

HEM-PRO UMCU - Ort
type: Organisations
type: Observation
type: Agent
type: Organization
endpoint URL: catalogue-rdf
data set: Organisations
resource: HEM-PRO
id: UMCU - Ort
type: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgentTypes/name=Organisation
organisation: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Organisations/name=University%20Medical%20Center%20Utrecht
department: Orthopaedics
name: University Medical Center Utrecht
organisation name: University Medical Center Utrecht
organisation pid: https://ror.org/0575yy874
organisation website: www.umcutrecht.nl
is lead organisation: false
mg_draft: false
mg_insertedOn: 2026-04-24T11:09:49
mg_updatedOn: 2026-04-24T11:09:49
mg_tableclass: catalogue-rdf.Organisations

HEM-PRO UMCU - Rad
type: Organisations
type: Observation
type: Agent
type: Organization
endpoint URL: catalogue-rdf
data set: Organisations
resource: HEM-PRO
id: UMCU - Rad
type: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgentTypes/name=Organisation
organisation: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Organisations/name=University%20Medical%20Center%20Utrecht
department: Radiology and Nuclear Medicine
name: University Medical Center Utrecht
organisation name: University Medical Center Utrecht
organisation pid: https://ror.org/0575yy874
organisation website: www.umcutrecht.nl
mg_draft: false
mg_insertedOn: 2026-04-24T11:09:49
mg_updatedOn: 2026-04-24T11:09:49
mg_tableclass: catalogue-rdf.Organisations

Julius Huisartsen Netwerk UMCU
type: Organisations
type: Observation
type: Agent
type: Organization
endpoint URL: catalogue-rdf
data set: Organisations
resource: Julius Huisartsen Netwerk
id: UMCU
type: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgentTypes/name=Organisation
organisation: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Organisations/name=University%20Medical%20Center%20Utrecht
name: University Medical Center Utrecht
organisation name: University Medical Center Utrecht
organisation pid: https://ror.org/0575yy874
organisation website: www.umcutrecht.nl
is lead organisation: true
mg_draft: false
mg_insertedOn: 2026-04-24T16:08:38
mg_updatedOn: 2026-04-24T16:08:38
mg_tableclass: catalogue-rdf.Organisations

HDSU UMC Utrecht
type: Organisations
type: Observation
type: Agent
type: Organization
endpoint URL: catalogue-rdf
data set: Organisations
resource: HDSU
id: UMC Utrecht
type: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/AgentTypes/name=Organisation
organisation: http://catalogue.hdsu.nl/CatalogueOntologies/api/rdf/Organisations/name=University%20Medical%20Center%20Utrecht
name: University Medical Center Utrecht
organisation name: University Medical Center Utrecht
organisation pid: https://ror.org/0575yy874
organisation website: www.umcutrecht.nl
is lead organisation: true
mg_draft: false
mg_insertedOn: 2026-04-30T14:59:04
mg_updatedOn: 2026-04-30T14:59:04
mg_tableclass: catalogue-rdf.Organisations